Pacemaker recipients: Looking for support from others

Posted by balubeje @balubeje, May 25, 2016

I am coming on a year post op having a pacemaker placement for bradycardia. I would be interested in a support group with the same concerns. I think a support network would be so beneficial.

Liked by Solo Act

@ala123

@danab Hi I have had 3 ablations for afib, aflutter and tachycardia over the past 3 years and my EP has mentioned that I may need a pacemaker. Did you have to take high doses of betablockers along with your PM? Also you say you had a PM for ten years…. Sounds like you were able to have it removed, so how did that work?

Jump to this post

hELLO FOR WHAT I AM ON MY SECOND PACEMAKER. tHEY ONLY LAST 1M YEARS. i WOULD RATHER HAT THAT AND TO BE SO RISKY ABOUT DOING ANYTHING PHYSICAL. i FEEL FINE. iT'S QUIED AND KEEPS O RUNNIG AND THE DOC TELLS ME THAT i'M DOING OK. nANCY

REPLY
@danab

@elwood Hi I'm not an expert on Afib but have you mentioned your concerned to your EP Cardiologist? Pacemakers have lots of adjustments and maybe just some changes could work better for your condition I remember having mine adjusted regularly to solve issues. So I would suggest asking about how we could get it working better. Let's us know how you make out. And have a Blessed Day
Dana

Jump to this post

hI aLL i KNOW IS…….sINCE i HAVE HAD THE PACEMAKER i HAVE not HAD ANY TROUBLE AT ALL. JUST COASTING FOR THE PAST 20 YEARS i HAVE HAD THE PACEMAKER. nO PROBLEMS AT ALL. nANCY

REPLY
@bill54321

It has more uses than just a demand feature like mind. You would have to talk to others

Jump to this post

yES IT IS. iT KEEEPS YOU STEADY PURRING TO YOUR OWN DANCE……. yOU DON'T JEED ANYONE ELSE. jUST YOU. dON'T FOOL AROUND JUST GET IT DONE. nANCY/SHORTSHOLT

REPLY
@elwood

was of opinion pacemaker intended to resolve afib. This apparently not the case?

Jump to this post

pS tHIS IS MY SECOND PACEMAKER. eVERY 10 YEARS YOU GET A NEW ONE. i OLD ONE HAD QUIT MY NEW ONE RIGHT AWAY AND YOU CAN STILL DANCE TO YOUR OWN PACEMAKER. nANCY /SHORTSHOT

REPLY
@ala123

@danab Hi I have had 3 ablations for afib, aflutter and tachycardia over the past 3 years and my EP has mentioned that I may need a pacemaker. Did you have to take high doses of betablockers along with your PM? Also you say you had a PM for ten years…. Sounds like you were able to have it removed, so how did that work?

Jump to this post

@ala123 well in my case my heart got worse to the point that meds would not keep me under control and my pacemaker was having to give me shocks(mine had a difibulator) to often to regulate me so I ended up getting a Heart Transplant which also meant my pacemaker was not needed anymore. But don't let that worry you I have known many that lived a very long life with meds and pacemaker only. At first my pacemaker did very well and I had a very nice life with no issues. I did have a couple of ablations also but towards the end they were not helping and that's when I was evaluated for a Heart transplant. But I still am thankful for the additional year's I had working with the pacemaker and got me to a point where I could retire since my old work I could not still do with a transplant.

REPLY

@danab ah, I understand. So thankful you were able to work with the pacemaker and then get the transplant.

REPLY
@ala123

@danab ah, I understand. So thankful you were able to work with the pacemaker and then get the transplant.

Jump to this post

Nancy /shortshot……. I had my first pacemaker in 208 sencond one december of328 Tjeu ;ast fpr 10 years. My doc is great and he keeeps me ticking. I have to transmit to hime every three months and if there is anythng out of order he calls me and I go in. So far nothing has be out ot order.

REPLY
@danab

@ala123 well in my case my heart got worse to the point that meds would not keep me under control and my pacemaker was having to give me shocks(mine had a difibulator) to often to regulate me so I ended up getting a Heart Transplant which also meant my pacemaker was not needed anymore. But don't let that worry you I have known many that lived a very long life with meds and pacemaker only. At first my pacemaker did very well and I had a very nice life with no issues. I did have a couple of ablations also but towards the end they were not helping and that's when I was evaluated for a Heart transplant. But I still am thankful for the additional year's I had working with the pacemaker and got me to a point where I could retire since my old work I could not still do with a transplant.

Jump to this post

I think you are a very couragous person. I am a 90 yr old Korean Aidman veteran. I appreciate you!

REPLY
@shortshot80

pS tHIS IS MY SECOND PACEMAKER. eVERY 10 YEARS YOU GET A NEW ONE. i OLD ONE HAD QUIT MY NEW ONE RIGHT AWAY AND YOU CAN STILL DANCE TO YOUR OWN PACEMAKER. nANCY /SHORTSHOT

Jump to this post

I believe the new batteries have extended the pace makers life. I have had mine 5 years and they tell me not to worry for another 10 years. I do have mine checked every 6 months

REPLY
@cupcake1979

I had a pacemaker dual chamber in January due to my heart stopping. I have since in the last 10 days experienced low blood pressure tachy. I was placed on beta blocker which landed me in the er due to heart rate dropping to 47. Echocardiagram comes back normal also blood test along with ekg. I am currently experience constant chest pains, migraines, shortness of breath and weakness. Can anyone shed any light

Jump to this post

@cupcake1979 Hi I am wondering how its going? Its been a couple of months since the pacemaker surgery I prey the problems you are having are subsiding.
Have a Blessed Day
Dana

REPLY
Please login or register to post a reply.