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Pacemaker recipients: Looking for support from others

Posted by balubeje @balubeje, May 25, 2016

I am coming on a year post op having a pacemaker placement for bradycardia. I would be interested in a support group with the same concerns. I think a support network would be so beneficial.

Interested in more discussions like this? Go to the Pacemaker & ICDs Support Group.

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marke92 | @marke92 | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

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I can say i feel good and i do not have any trouble getting things done.

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marke92 | @marke92 | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

Jump to this post

I was told the samething at first. I guess they install so nany pacemakers they have gotten it down to just routine. I would recommed you have bloid work done after 6 months. Then every six months there after. I do and the results have been good. With the mefs added to my life. I feel better on the safe side. @jimana

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jimana | @jimana | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

Jump to this post

I feel an occasional flutter which I assume is a PVC or a PAC, but there don't seem to be nearly as many as before the pacer was implanted. BTW, I saw my cardiologist yesterday for the first time since the pacemaker was installed in April. His recommendation was that we not change anything and said he would like to see me in one year - I guess he must be happy, and if he's happy, I'm happy. He did say, however, that even though I have not had any A-fib post-pacemaker, I definitely will have at some time. I hope to prove him wrong.

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marke92 | @marke92 | Oct 6, 2016
In reply to @bibi12 "I'm a new pacemaker recipient. I'm so new to heart disease and pacemaker surgery a support..." + (show)
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I'm a new pacemaker recipient. I'm so new to heart disease and pacemaker surgery a support group would be wonderful

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I also excercise and light lifting. I was told to keep my pule around 120. Thought my treadmill wont puck up my pulse. So i was informed i hit 160 regularly. @billmichalski. I also have the 3 lead with difi. I worry abkut a false shock. Even though last visit the pulse limit was raised to 160 in the pacemaker.

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marke92 | @marke92 | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

Jump to this post

Do any of you feel like your heart flutters at times? I do.

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marke92 | @marke92 | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

Jump to this post

Ok i got this now.

REPLY
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marke92 | @marke92 | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

Jump to this post

Trying to tag @balubeje so thats all this reply is for.

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marke92 | @marke92 | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

Jump to this post

At first i was prescibed way too much blood pressure medicine. I got dizzy ever time i stood up. I also still check my pulse. This after a year and a half. Im sill not use to this big bump in my chest.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 5, 2016
In reply to @colleenyoung "What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect members who have mentioned that they have pacemakers. Please meet @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98.

@balubeje why don't you kick off the conversation. What is your primary concern? How has living with a pacemaker changed how you live today?

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Great question, Marke92. Do you have "internal feelings" with your pacemaker? How does it make you feel?

REPLY
Profile picture for marke92
marke92 | @marke92 | Oct 5, 2016
In reply to @colleenyoung "What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect members who have mentioned that they have pacemakers. Please meet @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98.

@balubeje why don't you kick off the conversation. What is your primary concern? How has living with a pacemaker changed how you live today?

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I also would like to hear what other people have to say about internal feelings. How they feel with having a pacemaker. How if at all the meds effect them. Whats normal or expected and whats not.

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