← Return to Pacemaker recipients: Looking for support from others

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@bibi12

I'm a new pacemaker recipient. I'm so new to heart disease and pacemaker surgery a support group would be wonderful

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Replies to "I'm a new pacemaker recipient. I'm so new to heart disease and pacemaker surgery a support..."

I have had a pacemaker for 2 years, as pulse was at 20 while running, then it was changed in April 2015 as it was eroding through my skin, placed from left side of chest to right side, then in September 2015 pulse up to 220 while exercising, had to have a pacemaker-defibrillator implanted. I feel great, no problems except the leads from the pacemaker defibrillator came loose and I can feel it against skin when I touch the area. Went to the doctor who put in all three, and he said it looks as if the sleeves of the suture came loose. Not a concern unless it comes through the skin. I went for a second opinion and the doctor confirmed that information. i feel great, continue to exercise and have no ill effects from any of the implants. I also have AFIB and the only problem and this came on about a month ago, when I feel a flutter from the AFIB, I have a pain in my right upper jaw. Been to the dentist 4 times over it and he assured me everything all right with the teeth and gums. Have to see the cardiologist in two weeks and will find out more. Hope this helps.
Bill Michalski

The middle of June I celebrate one year with my new "normal" life style. Years back I was diagnosed with junctional node rhythm and the way for me to have a NSR was to cough all the time, run all the time-literally so it was just accepted I was not meant to have a NSR. In Feb 2015 for several months I felt like my head was just not in the game-like I was in a fog or not receiving enough blood. Consequently I went through a bunch of tests but in Nov 2014 at my physical they couldn't feel my pulse which started off a series of test-I ended up wearing a monitor for a month which showed I had 6 second pauses in my heart beating. I have a strong heart, no calcifications, excellent system with a very good ejection fraction-I just have no rhythm. I am also on Metoprolol that I can vary. Yet I go through days where I don't even realize I have a PM and maybe weeks then I hit a period where it just feels like there is a battle with my heart so I'm not sure if its the PM working so much and the natural heart beat is resting more. Some days naps are my best friend.

I also excercise and light lifting. I was told to keep my pule around 120. Thought my treadmill wont puck up my pulse. So i was informed i hit 160 regularly. @billmichalski. I also have the 3 lead with difi. I worry abkut a false shock. Even though last visit the pulse limit was raised to 160 in the pacemaker.

I am just now seeing this post. I really don't want to say welcome aboard but welcome aboard. This is a good place to learn, share and if need be pray.