Mayo Clinic Connect
Is reclast a safe treatment for osteoporosis I have not done anything so far except strontium citrate
Liked by Merry, Volunteer Mentor
Please check into the side effects before you take that drug. I joined a group of people dedicated to using natural remedies for bone loss. Many of the women are improving (measured by their DEXA scan scores) without these heavy duty drugs. My understanding, which my doctor confirmed, is that the bisphosphonates stop the body from shedding old bone. Instead of letting it leave the body, the old, dead bone lingers on the new bone giving it the appearance of being thicker bone.. the minute you stop taking those drugs, all of the old dead bone is eliminated from the body! You are back to the beginning. I talked to three women who got osteonecrosis from bisphosphonates- they told me you can’t stop the osteonecrosis by going off the drug. Once it starts, it won’t stop. I’ve had fractures as well. I’m going with food-based calcium tablet, magnesium, boron, vitamins d3 and K2 (mk4 and mk7), and a good food-based multivitamin. You can only absorb 500 mg total of calcium and magnesium at a time so I take only that amount every 4 hours. I will get a new DEXA scan around March or April. I had a shortage of human growth hormone (HGH), so I take that daily (by prescription). And because my osteoporosis is so bad, I am taking a low-dose estrogen and progesterone daily. I have not had anymore fractures ( knock on wood). I will post the results of my next scan when I have them.)
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@parrotqueen What is the name of the osteoporosis group you belong to ? Id like to read what others say . Linda
Please read what I have written about supplementation. You can do natural supplementation at the same time as bisphosphonates j- so really nothing to lose. Women are posting great results in the natural remedies osteoporosis group I’m in! I understand you want to use bisphosphonates, but you can also try food- based vitamins and minerals at the same time. This will give you an even greater chance of success. I also eat foods high in all the nutrients I need. Let us k ow what you choose to do and how it goes. So sorry about your femurs! I broke my hip and it was no fun.
I've known people who increased bone density using algaecal….but the strontium citrate they recommend taking with it, actually alters the DEXA scans because it takes the place of calcium in the bone and since it weighs more than calcium, it makes the scan look like you've increased bone density, when in fact you haven't. AND….when people quit strontium citrate later down the line, their bones scans actually show worse density than before taking the strontium. Just so many questions about it. BUT….at the same time, I hate the drugs!!!
Liked by parrotqueen
Hey Lioness! It is on Facebook and it is called Osteoporosis Natural Remedies. There are many posts per day. I like that you can post a question and you will get answers quickly. At one point I was able to talk to a couple of women who had taken drugs like Reclast or Prolia and had osteonecrosis as a result – and that happened the day I was supposed to go on Prolia – when I was conflicted. I'm foggy about how it happened exactly, but one of the women in the group said I needed to talk to those women, and I wrote back that I would love to talk to them, and somehow it happened. Women who are doing what you and I are doing post their DEXA scan scores for others to see – so you can actually see the improvement. Others post about books they are reading, movies they saw on You Tube, advice they got, how they are exercising, etc. It is one of my favorite places on FB . You have to apply to get into the group – it is not public. Hope to see you there!
@parrotqueen Sounds good I/ll have to look it up Im not much for social media and never joined a group except Connect . Thanks still doing pain free from my fibro This is an amazing mineral.
I have been treated with bisphosphanates, forteo, prolia and I had 11 non-traumatic spontaneous vertebral compression fractures during treatment. I now take 680 mg strontium citrate without side effects and the fractures have stopped. Do not take it within 2 hours of ingesting calcium — so I take it at bedtime. My teeth are really strong and it feels like my bones are too. Most people who take strontium citrate report their fractures STOP. They won't do any studies but the END OF FRACTURES SAYS IT ALL!
IT was a 9 year nightmare until I started the strontium citrate. Good luck to all of you.
Thank you so much for your post breakdancer. Are you active on inspire.com?
Hello @bonelady — welcome to Connect. I'm glad you found us. I was diagnosed with osteopenia a little over a year ago but have not done anything other than trying to add more calcium rich food to my diet. I did find some information on the Mayo Clinic website on osteoporosis.
Osteoporosis treatment: Medications can help — Osteoporosis treatment may involve medication along with lifestyle change. Get answers to some of the most common questions about osteoporosis treatment.
Have you discussed any treatments with your doctor or have they recommended anything to you?
Hi John, I was recently diagnosed with osteopenia, most likely due to my Celiacs. They put me on Calcuim suppliments, along with Vitamin D as I am also deficient there. I can't say that I see much difference in the way I feel but I do realize that I don't absorb nutrients due to the Celiacs. The puzzling thing to me is, why would they give me suppliments in pill or capsule form if my digestive system won't even absorb the nutrients from food. Kind of a waste of money it seems.
Liked by John, Volunteer Mentor
Hi @greff, I also have osteopenia and my doc told me I need to take 1200 mg calcium a day. I tried it for a couple of weeks but it made me so constipated I stopped taking it and really try to eat more foods with calcium and drink more milk which I rarely did before I was diagnosed. Here's a good article on the subject:
Calcium and Bone Health — https://www.helpguide.org/articles/healthy-eating/calcium-and-bone-health.htm
Thanks for the article. What makes even more of a bugger on top of having Celiacs is I am lactose intolerant, so dairy doesn't set well with me, which of course, is full of calcium. I will check this article out. Thanks again.
Hi all. I‘’m a bit confused – some of the comments I read talk about research, do you really think that you can do enough research & separate fact from fiction and will know better than a physician who went through undergrad, med school, residency & perhaps a fellowship? I think the bigger problem is a lack of confidence in the medical & research world. To those that comment on the side effects of the meds, has your physician reported it? If not, why not. Why isn’t your doc altering your meds when you complain? I feel all of your pain as I have been there & continue to travel down that road but, I trust my medical team to be watching out for me. This is your life, do what’s best 🙂
Liked by Rosemary, Volunteer Mentor, John, Volunteer Mentor, JK, Alumna Mentor
On the flip side, if you are better informed you can communicate better with your doctors and possibly get a better outcome. I have a great Mayo doctor team but there are many different specialties which they also don’t know about or have no medical training to handle. I was prescribed gabapentin for my symptoms of neuropathy which were only numbness. After telling my primary care doctor it’s not helping she consulted with her team and and was told the drug does nothing for numbness. Then when diagnosed by a neurologist the next month with idiopathic small fiber neuropathy I got the same from him – nothing available to fix the numbness. Just my humble opinion 🙂
Liked by Rosemary, Volunteer Mentor, JK, Alumna Mentor
I do agree that a person needs to have confidence in the medical professionals they see. However, not all medical professionals are trained the same way. Their education, residence, fellowship varies for most specialists/physicians. I have had great doctors and I have had doctors that misdiagnosed, mistreated, and appeared to work outside of their scope of expertise. I appreciate the comments on this website as sometimes we need to advocate for ourselves or process with others to aid in making medical decisions. Getting second opinions is a good thing. To give one example of several specialists who misdiagnosed me and could not come up with why I had multiple symptoms that were effecting me, I kept getting referred from one provider to another when the whole time, the issue was a med issue. I found this out with the help of others who were also frustrated with feeling like they were not getting any answers. I do agree that a person needa to find a medical provider that they have confidence in, rather than just being frustrated with seeing a medical professional who is not treating the medical issue with success.
You really have to be careful of the calcium you take. Many on the market are full of 'fillers'. Years ago, after 2 miscarriages, my OBgYN put me on calcium, Within just a few years I had bone spurs all along my spine, Someone shared Shaklee with me and I switched to their calcium. Within just a few months, the spurs started clearing up, my constipation went away. To this day (I'm now 65), my primary care doctor tells me my blood markers are excellent. All that to say…. not all vitamins on the shelves in our healthfood stores are the same!!!
I was put on gabapentin for 14 years….then developed an allergic reaction to it. Was switched to carbamazapene (which my mother's pain doctor said he wouldn't give to his worst enemy). I found out why….one of the biggest side effects is it can cause bone loss. Now I have osteoporosis. I now take tumeric for my nerve pain from transverse myelitis and get even better relief than I ever did from drugs!
I heard that tumeric is difficult for our body to absorb. Do you take anything with it to break it down intestinally.
I take a curcumin that has black pepper and oil in it to help the body absorb it. The orientals have used it for years (besides just in their food)….
Liked by JK, Alumna Mentor
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