Organ Donation and Transplant: What is Your story?

Posted by Rosemary, Volunteer Mentor @rosemarya, Oct 26, 2020

Every transplant patient has a unique story to tell. Let's create this place to share our stories. By sharing, we can meet others like us, we can encourage people who are at the beginning of their journey, and we can support those who are on the waiting list.

Here are some questions for you to consider as you write your story:
– Focus on yourself and how you felt, what you did, who helped you.
– How did you find out that you would need an organ transplant?
– What was the waiting and recovery like for you?
– How has your life changed since your transplant?

Organ donation and transplant is a very personal. To respect the privacy of all be sure to have permission before sharing identifying details about others involved in your story, for example
– your donor/recipient (age, circumstances of death, etc)
– your caregiver or family members (say "my husband", rather than using a full name)

What is your transplant story?

Note: If you want to ask a question for another member who has posted their transplant story here in this discussion, be sure to add their @membername in your post, for example @rosemarya. Your question may already be discussed in other transplant discussions. Be sure to check here first: https://connect.mayoclinic.org/group/transplants/ That way this discussion can be reserved for member transplant stories and hopefully make it easier to read and find similar symptoms to your own.

Interested in more discussions like this? Go to the Transplants Support Group.

@22shannon

Thank you , I am super grateful for this blessing, just shockingly came hand in hand with " drama" / heartbreak. I need to not let the games/ opposite of support get in my way of taking top care of my health.

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Absolutely!
Hang in there. I and all of your other friends here at Connect stand with you and we support you. You can count on us and you can lean on us. We all wish you nothing less than the very best! Have a Happy Thankgiving. You are really blessed and have so much to be thankful for. 💕

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@22shannon

Thank you , I am super grateful for this blessing, just shockingly came hand in hand with " drama" / heartbreak. I need to not let the games/ opposite of support get in my way of taking top care of my health.

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@
Hi, @22shannon. I am happy to read that you are taking the higher road in this unfortunate situation and making your health your top priority. When all is said and done, that is what each of us needs to do.
Shannon, How long ago was your surgery for your 2nd kidney? How is the physical recovery coming along? What are some of your plans for the future?

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@rosemarya

@
Hi, @22shannon. I am happy to read that you are taking the higher road in this unfortunate situation and making your health your top priority. When all is said and done, that is what each of us needs to do.
Shannon, How long ago was your surgery for your 2nd kidney? How is the physical recovery coming along? What are some of your plans for the future?

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HI ,
Thank you, my top priority is health and fitness, I only had 1 Kidney TX in 2015, and Pancreas Tx 2002, My recovery for kidney was pretty good after I got off the prednisone , after about a yr.
I work full time remotely for a health care call center , helping people on special diets and want to work in a transplant or clinical trails dept , so far I have not been able to find any remote/hybrid positions in that. Such as to take calls like as a transplant representative. I fly back and forth quit a bit from AZ to CA.

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