Any Optic Nerve Meningioma Patients Who've Had Surgery?

No other options per neuro surgeon in Tucson AZ. He has done 1 a year in his 32 years of being neuro surgeon. In the past year alone, he has done 4. I asked why not a clinical study on why there are 4 this past year alone. He said not enough for a study and the numbers are considered not huge. It is rare to have an optic nerve meningioma, but it does occur. Mine is pressing on the left optic nerve near the chiasm area. It is creating my vision to be distorted (tunnel vision) and my peripheral fields are affected. I had cataract surgery in September then YAG because a piece of "protein" was left behind the lens. But, I still could not see well. Finally went to neuro opthamologist (only one in Tucson BTW) and he sent me for MRI. MRI revealed a 10x7x7 mm meningioma. I saw surgeon and because of location, surgery is the only option. Cannot do radiation therapy or stereotactic radiation surgery or gamma knife either. I feel so overwhelmed. My only recourse is surgery which is scheduled next month.

I live in Tucson. My tumor is also pressing on my left optic nerve. I have not had surgery yet. Scheduled for next month in March in Tucson with a neuro surgeon who has done these before. He said all his surgeries are successes, but there is always a risk because of this type of surgery that it might also leave me blind. He cannot "remove" entire tumor, but will remove the bulk of it and give me time to preserve my eyesight. Because there is already damage to the optic nerve, eyesight does not get better, it will only preserve what I have now. Pray for me!

I wish you all the best and hope it will come out better than expected. Pls can you share who is your surgeon...

Thinking of you and praying for best possible outcome!!

Kurt Schroeder at Center of NeuroSciences on River Road in Tucson AZ

thank you and thank you for your well wishes.

Thank you very much, his name sounds so German...by the way I'm German!!!

Mine also was growing around mine. Therefore they were unable to remove all of mine. The only issue I have 8 years later, is dry eye. I do where trifocals.

I have had experience with this. My surgeon removed as much as he could, but I still have bone and tumor pressing on my right optic nerve.In fact it is bent into a V. I did have cyber knife on the remaining tumor. My outcome has been pretty good. I also have a tumor near my optic on the left and this year I had gamma knife at Swedish Hospital in Seattle. I have also had cyber knife on the tumor close to my brain stem, and I have had 2 craniotomies to remove meningioma tumors. My neuro did offer surgery on the left optic tumor but after much prayer and consideration my husband and I opted for the gamma knife because I feel it is less invasive and honestly I just didn't feel up to another surgery:-) Weirdly my half brother also had a tumor wrapped around his optic nerve which did happen to blind him before he knew he had it. His VA surgeon removed as much as he could. While my sight isn't 20/20 I can see very well considering all that has been done. I only need glasses to read and my peripheral is definitely a bit dicey but a head turn takes care of the problem. The radiation did not shrink my tumors but hopefully stopped them in their tracks. I have referred to these last naughty 3 as Ted, Tina and Tiny. While they are not exactly pals we've worked out a way to get along:-) Wishing you all the best, consider all your information and advice and then listen to your heart and head. It's a beautiful life. Hugs and love, peg

Just curious how many still deal with facial pain after surgery. Not all mine was removed and it's been 8 years this June.