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PET shows hypermetabolic activity: What does it all mean?

Posted by oakhillbull @oakhillbull, May 1, 2019

I am new to this site looking for information I received yesterday from my oncologist.
I have been on Ibrance/Letrozole for 3 years 2 months. Have bone Mets spine and ribs. I had a PET scan last week and it showed no hypermetabolic activity. Onocoligist stayed a lot us not known about scarring over. We decided to stay on the Ibrance/letrozole and watch. I don’t understand scarring over. What happens under the scars? Am I cured? I was told when diagnosed I would never be cured. I’m just so confused and today looking for more information when this occurs. Has anyone had this happen to them? Thanks for anything you can tell me.

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dwin100037 | @dwin100037 | Oct 21, 2022
In reply to @colleenyoung "@dwin100037, just checking in. Did you get clarity on you mother's diagnosis from the conference call..." + (show)
@colleenyoung

@dwin100037, just checking in. Did you get clarity on you mother's diagnosis from the conference call with the physician team? Does your mom have cancer?

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My mom had an appt today with her oncologist now he is telling her she may have brain cancer .... he is sending her for an emergency MRI tomorrow...why would a physician put that out there before he even has information to back that up..... I'm really not understanding how this works I guess PET scan shows one spot on lung, biopsy showed all benign prior to scan. Now brain cancer? It is possible to have brain cancer and a 2.5cm mass in your lung without it being other places in your body?

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1 reply
windyshores | @windyshores | Oct 22, 2022
In reply to @dwin100037 "My mom had an appt today with her oncologist now he is telling her she may..." + (show)
@dwin100037

My mom had an appt today with her oncologist now he is telling her she may have brain cancer .... he is sending her for an emergency MRI tomorrow...why would a physician put that out there before he even has information to back that up..... I'm really not understanding how this works I guess PET scan shows one spot on lung, biopsy showed all benign prior to scan. Now brain cancer? It is possible to have brain cancer and a 2.5cm mass in your lung without it being other places in your body?

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What a roller coaster you and your mom are on. Hope the MRI does not show cancer.

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1 reply
dwin100037 | @dwin100037 | Oct 22, 2022
In reply to @windyshores "What a roller coaster you and your mom are on. Hope the MRI does not show..." + (show)
@windyshores

What a roller coaster you and your mom are on. Hope the MRI does not show cancer.

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Me too! Thank I will update as soon as we know.

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penbaby | @penbaby | Dec 12, 2022

My doctor wants to do a biopsy in breast area after my pet scan show new hypermetabolic in my lymph nodes in neck. So confused

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1 reply
mcrowe2360 | @mcrowe2360 | Dec 17, 2022

Hi...not sure where to post this question. I had stage 2a lung cancer and a lobectomy of the upper left quadrant. 4 rounds of chemo ended Aug of 2022.
Just had PET after 18 months (original was right before lobectomy) and comment on test said "noted new focus on hypermetabolism involving the vulva/vaginal canal. What does that mean? Seeing GY next Tuesday but hoped to see if anyone knows of this?

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Dec 18, 2022
In reply to @penbaby "My doctor wants to do a biopsy in breast area after my pet scan show new..." + (show)
@penbaby

My doctor wants to do a biopsy in breast area after my pet scan show new hypermetabolic in my lymph nodes in neck. So confused

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@penbaby, did your doctor explain why the biopsy was taken of the breast tissue? Was there a lump in the breast? Did you get the results yet?

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Moderator
Colleen Young, Connect Director | @colleenyoung | Dec 18, 2022
In reply to @mcrowe2360 "Hi...not sure where to post this question. I had stage 2a lung cancer and a lobectomy..." + (show)
@mcrowe2360

Hi...not sure where to post this question. I had stage 2a lung cancer and a lobectomy of the upper left quadrant. 4 rounds of chemo ended Aug of 2022.
Just had PET after 18 months (original was right before lobectomy) and comment on test said "noted new focus on hypermetabolism involving the vulva/vaginal canal. What does that mean? Seeing GY next Tuesday but hoped to see if anyone knows of this?

Jump to this post

Hi @mcrowe2360, you may wish to join the discussions in the Lung Cancer group here: https://connect.mayoclinic.org/group/lung-cancer/

I will be interested to hear what you learn at your appointment on Tuesday with the GYN. Just keep in mind that not everything that is hypermetabolic is cancer.

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