1. < Breast Cancer

PET shows hypermetabolic activity: What does it all mean?

Posted by oakhillbull @oakhillbull, May 1, 2019

I am new to this site looking for information I received yesterday from my oncologist.
I have been on Ibrance/Letrozole for 3 years 2 months. Have bone Mets spine and ribs. I had a PET scan last week and it showed no hypermetabolic activity. Onocoligist stayed a lot us not known about scarring over. We decided to stay on the Ibrance/letrozole and watch. I don’t understand scarring over. What happens under the scars? Am I cured? I was told when diagnosed I would never be cured. I’m just so confused and today looking for more information when this occurs. Has anyone had this happen to them? Thanks for anything you can tell me.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

pbemesderfer | @pbemesderfer | Mar 10, 2022

No i was not diagnosed with breast cancer. I have never had a mamo gram. But the pet scan doesn't show any cancer in my chest except the right lung area

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 10, 2022
In reply to @pbemesderfer "No i was not diagnosed with breast cancer. I have never had a mamo gram. But..." + (show)
@pbemesderfer

No i was not diagnosed with breast cancer. I have never had a mamo gram. But the pet scan doesn't show any cancer in my chest except the right lung area

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Thanks for explaining a bit more @pbemesderfer. When will you be talking with your doctor to discussion the results of the PET scan?

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Mentor
Chris, Volunteer Mentor | @auntieoakley | Mar 13, 2022

@stephers911 , I have been waiting to post, and hoping to hear from you. I am here if you need me, just tag me or reply. . Did you see the doctor? How are you doing? Can I help direct you to a better suited conversation?

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1 reply
stephers911 | @stephers911 | Mar 13, 2022
In reply to @auntieoakley "@stephers911 , I have been waiting to post, and hoping to hear from you. I am..." + (show)
@auntieoakley

@stephers911 , I have been waiting to post, and hoping to hear from you. I am here if you need me, just tag me or reply. . Did you see the doctor? How are you doing? Can I help direct you to a better suited conversation?

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Thank you so much for the prompt response. I have Stage IV Sarcoidosis with it in my lungs, skin and lymph. . I got a PET scan and my internal mammary lymphs were Metabolically active along with some other new lymphs. Wondering if anyone in here with Sarcoidosis

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 13, 2022
In reply to @stephers911 "Thank you so much for the prompt response. I have Stage IV Sarcoidosis with it in..." + (show)
@stephers911

Thank you so much for the prompt response. I have Stage IV Sarcoidosis with it in my lungs, skin and lymph. . I got a PET scan and my internal mammary lymphs were Metabolically active along with some other new lymphs. Wondering if anyone in here with Sarcoidosis

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Stephers, you will find discussions about sarcoidosis in the Lung Health group. You may wish to join these discussions:
- Sarcoidosis: What treatments have you had with few side effects? https://connect.mayoclinic.org/discussion/sarcoidosis/
- Pulmonary Sarcoidosis: How are you dealing with it? https://connect.mayoclinic.org/discussion/sarcoidosis-2c9d88/

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dwin100037 | @dwin100037 | Oct 14, 2022

My mom recently had a lung biopsy of a 2.5 cm mass in the left upper lobe all the biopsies came back benign. She then had a PET scan done 2 weeks later and the Physicians are now saying she has cancer and will need to have a thoracotomy or cyber knife to remove mass. I am having a problem understanding how one minute it's not cancer and the next minute it is cancer. Please help me here. Thank you

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1 reply
windyshores | @windyshores | Oct 14, 2022
In reply to @dwin100037 "My mom recently had a lung biopsy of a 2.5 cm mass in the left upper..." + (show)
@dwin100037

My mom recently had a lung biopsy of a 2.5 cm mass in the left upper lobe all the biopsies came back benign. She then had a PET scan done 2 weeks later and the Physicians are now saying she has cancer and will need to have a thoracotomy or cyber knife to remove mass. I am having a problem understanding how one minute it's not cancer and the next minute it is cancer. Please help me here. Thank you

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Are these the same physicians/ What are they saying to explain this? I would ask them, either in person or via the portal.

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dwin100037 | @dwin100037 | Oct 14, 2022

Same physicians yes and I am doing a conference call today with doctors to discuss that exact thing.

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 17, 2022
In reply to @dwin100037 "Same physicians yes and I am doing a conference call today with doctors to discuss that..." + (show)
@dwin100037

Same physicians yes and I am doing a conference call today with doctors to discuss that exact thing.

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@dwin100037, just checking in. Did you get clarity on you mother's diagnosis from the conference call with the physician team? Does your mom have cancer?

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2 replies
dwin100037 | @dwin100037 | Oct 18, 2022
In reply to @colleenyoung "@dwin100037, just checking in. Did you get clarity on you mother's diagnosis from the conference call..." + (show)
@colleenyoung

@dwin100037, just checking in. Did you get clarity on you mother's diagnosis from the conference call with the physician team? Does your mom have cancer?

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I spoke with physician and she stated this time that the biopsy was non-diagnostic when before she said absolutely benign. Doctor is stating she is a stage 1. I requested a referral for a 2nd opinion from Markey Cancer Center. So that is our next step before making any further decisions.

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