Hi everyone. Wanted to find out any success stories on stage IV with Leptomeningeal mets.
My dad who was doing very good , being on Keytruda for 18 months , last PET in January showed no brain mets, shrinking tumor in Lungs, they even decided to do scans every 6 months instead of 3 but last week he did MRI and we were told that he has LEPTO.. and we were told that he needs to do a radiation on the entire brain. WBRT.
I was soo happy when he was doing so good and don’t understand if 6 months ago there was nothing , how come that quickly it spreaded again?
Any advice is appreciated. Shall we do WBRT? At least rush to do it when physically he is doing ok for now. Read not encouraging things about WBRT and very confused what to do.
My dad is in country Georgia, i am trying to help him from US as much as I can but with Covid situation its even harder. He usually does his treatments in Istanbul, Turkey but now don’t even know what is he gonna do.
Is there any possibility that I can get a second opinion here is US?