← Return to NSCLC with Leptomeningeal mets

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ina3 (@ina3)

NSCLC with Leptomeningeal mets

Lung Cancer | Last Active: Jun 15, 2020 | Replies (12)

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@merpreb

@ina3– Welcome back to Mayo Connect. What a tough time for you and your father. It really is scary and frustrating when medicines stop working. I had SBRT- for lung cancer. I have met one person who has had WBRT and he did great for it. I also found this
https://clinicaltrials.gov/ct2/show/NCT04233021
Did your dad have any other treatments before he was on Keytruda?

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Replies to "@ina3- Welcome back to Mayo Connect. What a tough time for you and your father. It..."

no neverr had what you had….. I have Mesothelioma in my left lung and plain old carcinoma in my right lung. I have had chemo that I was allergic to and immune therapy which made my body ache bad and radiation for the carcinoma in my right lung. nothing to be done for my left lung except to drain the fluid off several times. It keeps coming back and so needs to be drained ,more often. that doesn't hurt. sure feels better after draining and I can breathe a little better. Am on oxygen at night. Nancy

Yes, he did chemo too Carbo, Alimta and Zometa but stopped 6 months ago

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