NJH Patients

Posted by clynnford @clynnford, Mar 1, 2023

Hello!

I have an upcoming appointment at NJH for outpatient treatment. I made the appointment upon first hearing about my MAC diagnosis, however...I am not feeling sick in the least! My diagnosis consisted of both CT and sputum positive results. Currently I feel like I should I delay my visit to NJH until when / if I ever feel unwell due to this condition. My kids say go now to nip it in the bud...What to do?

Cheryl

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

@msk

Hello
I will be going to NJH in monday and looking forward to hearing what they have to say.
Question for those if you that have been there. Did medicare and supplement cover NJH? Is considered a second opinion?
Thanks for your help.
Miriam

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If you went through intake and scheduling and gave them your insurance info, you should be fine. Believe me, if your insurance does not cover you, NJH will want a huge sum of money upfront, but will give you 59% discount on some awfully high rates.

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@rstel7272

If you went through intake and scheduling and gave them your insurance info, you should be fine. Believe me, if your insurance does not cover you, NJH will want a huge sum of money upfront, but will give you 59% discount on some awfully high rates.

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Thanks

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@msk

Hello
I will be going to NJH in monday and looking forward to hearing what they have to say.
Question for those if you that have been there. Did medicare and supplement cover NJH? Is considered a second opinion?
Thanks for your help.
Miriam

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I have private ins and have already met my deductible so hopefully this trip to NJH won't break the bank!

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Hello, I have not heard of Pulmonary HTN, what is that?

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@msk

Hello
I will be going to NJH in monday and looking forward to hearing what they have to say.
Question for those if you that have been there. Did medicare and supplement cover NJH? Is considered a second opinion?
Thanks for your help.
Miriam

Jump to this post

Medicare paid their portion and my secondary picked up the rest. Aside from my first visit in 2011 for which I paid $2000 up front, I've never paid for anything except the very expensive genetic testing (which was optional but I didn't understand that at the time. The testing did, however, show my Alpha-1 Antitrypsin deficiency which is a protein produced in the liver that protects the lungs. My numbers aren't low enough to need infusions, but I know folks who do have to do that route. Without AAT, one is likely to have bronchiectasis or some form of COPD.) Sorry! This is far more than you asked about. Good luck with your visit. I've been going twice a year and have never had anything but exceptional care.

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@srsmith3802

I have MAI diagnosed since 8/22. I just had my second Pulmonary Function Test and it showed a significantly lower diffusing capacity. My pulmonologist mentioned either repeating the test or doing a right heart Cath to check for pulmonary HTN. Can you tell me more about your pulmonary HTN and how it was diagnosed and checked by NJH to determine yours was “still mild”. Thanks in advance

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i had a CT scan and was told I had an enlarged heart. I then had an Echo Cardiagram and showed normal sized heart, both venticals normal, but a small leak in Pulmonary valve. Also measures your Pulmonry artery pressure, it was higher than normal, but mildly so. Second one, 3 yrs later, said moderate!
I went to NJH because I didn't like that it was not being checked each year. Also have MAC, and Bronchiestasis. I had an Echo Cardiagram while in Denver, but I went to Rose Medical. They specialize in Cardiac problems. I needed to go there straight from airport for another problem, so they did it there. My numbers, although lower than the one I had at home, still indicate mild PH, not moderate
The gold standard, they say, is to have a Cardiac Cath.. But the Cardiologist, and Pulmonologist in Denver thought mild, with no heart involement, was very good. I trust them much more than my old Pulmonologist that asked me; "who told you that you had Pulmonary Hypertention!" Thats when I made appoiuntment with NJH. I trust NJH. They helped me before, when doctors here didn't. Once a patient there, always a patient.
I know they do Echos at NJH, but I was just in Rose Medical so they called NJH and did some of my testing there.
I have no symptoms, and my right side of heart is normal. I hope I have helped you some.

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@busybeans

Medicare paid their portion and my secondary picked up the rest. Aside from my first visit in 2011 for which I paid $2000 up front, I've never paid for anything except the very expensive genetic testing (which was optional but I didn't understand that at the time. The testing did, however, show my Alpha-1 Antitrypsin deficiency which is a protein produced in the liver that protects the lungs. My numbers aren't low enough to need infusions, but I know folks who do have to do that route. Without AAT, one is likely to have bronchiectasis or some form of COPD.) Sorry! This is far more than you asked about. Good luck with your visit. I've been going twice a year and have never had anything but exceptional care.

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Thank you so much. I hope they figure it out. Been on 3 meds for 1 yr 3 mo and lungs still are showing infection with nodules showing up. Meds are beginning to make me feel sick. Especially rifampin. Looking forward to hearing what they say.
Miriam

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@Cathln

i had a CT scan and was told I had an enlarged heart. I then had an Echo Cardiagram and showed normal sized heart, both venticals normal, but a small leak in Pulmonary valve. Also measures your Pulmonry artery pressure, it was higher than normal, but mildly so. Second one, 3 yrs later, said moderate!
I went to NJH because I didn't like that it was not being checked each year. Also have MAC, and Bronchiestasis. I had an Echo Cardiagram while in Denver, but I went to Rose Medical. They specialize in Cardiac problems. I needed to go there straight from airport for another problem, so they did it there. My numbers, although lower than the one I had at home, still indicate mild PH, not moderate
The gold standard, they say, is to have a Cardiac Cath.. But the Cardiologist, and Pulmonologist in Denver thought mild, with no heart involement, was very good. I trust them much more than my old Pulmonologist that asked me; "who told you that you had Pulmonary Hypertention!" Thats when I made appoiuntment with NJH. I trust NJH. They helped me before, when doctors here didn't. Once a patient there, always a patient.
I know they do Echos at NJH, but I was just in Rose Medical so they called NJH and did some of my testing there.
I have no symptoms, and my right side of heart is normal. I hope I have helped you some.

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Thank you. Looking forward to finally finding out whats going on.
Miriam

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@Cathln

i had a CT scan and was told I had an enlarged heart. I then had an Echo Cardiagram and showed normal sized heart, both venticals normal, but a small leak in Pulmonary valve. Also measures your Pulmonry artery pressure, it was higher than normal, but mildly so. Second one, 3 yrs later, said moderate!
I went to NJH because I didn't like that it was not being checked each year. Also have MAC, and Bronchiestasis. I had an Echo Cardiagram while in Denver, but I went to Rose Medical. They specialize in Cardiac problems. I needed to go there straight from airport for another problem, so they did it there. My numbers, although lower than the one I had at home, still indicate mild PH, not moderate
The gold standard, they say, is to have a Cardiac Cath.. But the Cardiologist, and Pulmonologist in Denver thought mild, with no heart involement, was very good. I trust them much more than my old Pulmonologist that asked me; "who told you that you had Pulmonary Hypertention!" Thats when I made appoiuntment with NJH. I trust NJH. They helped me before, when doctors here didn't. Once a patient there, always a patient.
I know they do Echos at NJH, but I was just in Rose Medical so they called NJH and did some of my testing there.
I have no symptoms, and my right side of heart is normal. I hope I have helped you some.

Jump to this post

Thank you for your reply, very helpful!

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@msk

Hello
I will be going to NJH in monday and looking forward to hearing what they have to say.
Question for those if you that have been there. Did medicare and supplement cover NJH? Is considered a second opinion?
Thanks for your help.
Miriam

Jump to this post

Hi, I went to NJH last October. I have Medicare and a supplemental insurance. I have not received any bills. Hope this helps.

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