Nissen Fundoplication reversal

Posted by myskye @myskye, Oct 18, 2016

I had a Nissen Fundoplication procedure done last Oct. I have not have success with it at all. The wrap was to tight and I have to have a dilation done almost every two months. I am looking at have a reversal done and wonder if anyone has had this done and if so, did things improve Thank You

@kdubois

@myskye

Did they test the functionality of your esophagus first? I just had a Nissen on Oct. 18 at Mayo – Rochester, and they tested my esophageal function beforehand. If it wasn’t functioning well enough, they would have done a 270º wrap instead of a 360º wrap. Luckily, mine worked well.

Unfortunately, my brother had a Nissen a few years ago by a doctor in NY. They didn’t test his esophageal functionality first, and his doesn’t function at 100%. He didn’t have to have surgery to fix it though because he ended up getting sick and having allergies to moving to a new environment so badly that he sneezed and coughed enough that the surgery undid itself.

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Mayo diagnosed me with mild sleep apnea, but since I’ve lost 60 pounds from ceasing PPIs and other drugs, they believe that this has probably been cured for me. They’d have to retest me to make sure.

Another thing that Mayo thinks may have been caused by my GERD is mild asthma. Now that my fundoplication is complete and was successful, they expect my asthma do go away also.

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I had fundiplication surgery in August of 2015 due to a large hiatal hernia that was pressing on my lung. For months afterwards I had stomach pain. I went back to the GI specialist and after tests I was diagnosed with gastroparesis. Apparently the vagus nerve was damaged during the surgery. It is a terrible disease and it has changed my life. I am trying to do the best I can by limiting my diet and eating smaller meals more frequently. I only wish i had sought a second opinion before having the surgery. I was unaware of the risk of damage to the vagus nerve.

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I had the fundiplication done after I was diagnosed with idiopathic gastroparesis but the Dr accidentally cut my spleen and because he couldn’t stop the bleeding he had to remove it. Wished I’d never had it done. I just wanted the gastric pacemaker implanted so I could eat again, which it does work, but he insisted I have the fundiplication & pylori plasty done also. I wouldn’t want anyone to have the the fundiplication. The gastric pacemaker yes, it has changed my life.

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I had a nissen fundoplication done Nov.1,2016. It was done in pittsburgh,pa. by Dr. Blair jobe. On Nov.22, 2016 after having 5 incidences of food sticking i had to have my first dilation. Then on Jan. 10, 2017 i had to have a second dilation due to 3 more incidences of food sticking. Currently i can eat chicken as long as it is cut up to less than 1 inch long and must have it with gravy. I also have gotten use to drinking a lot of ensure. I still get heartburn at times. The surgeon has me back on 30 mg x2 of prevacid as well as 1000mg x 4 of sucralfate tablets. Still i get the bloating feeling, nausea, gag reflex, and lots of gas. This is the 116 th day after the initial operation. I was initially diagnosed with low grade barrett’s dysplasia. I do have rheumatoid arthritis and control it with 4 mg of predsinone as well as 1-2 10 mg of oxycodone. My hope was to get back on Mobic (NSAID) to help control all my RA pain. I’ve tried it 3 times and got horrific heartburn. The reason the doc gave was that if the pill hits any part of the esophagus on the way down to the LES the esophagus will get irritated. 1 month before the initial operation i was on the heavy doses of the antacid described above. i had no reflux or heartburn with this “kitchen sink” regime of antacids. I wish I didn’t have this operation because of all the bad side effects. I even use miralax once per day to keep the requirenebt of 1 bile movement/day. i am considering having the reversal because of the gag syndrome which comes on at any time. There are times when i felt breathing may have been difficult. i also have 2 artificial knees and 1 artificial left hip. The left hip cup will need replaced within 1 year because it was the soft plastic. The left knee will need replaced probably within 2 years. Can anyone shed light on if they have had the nissen reversed? I also have a problem with oral thrush due to RA. Anytime i eat a starch or sugar i get more thrush and need nystatin swish and spit 4 times a day. I also clen the tongue with a 50-50 mix of hydrogen peroxide with a napkin….. Any feedback on nissen reversal would be appreciated. I’m 65 years old and weigh 167 lbs….. thank you

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I had one dilation but still have problems but not as bad as yours. Wish I had never had it done. I still can’t vomit if I need to just dry heaves. Miserable!

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@katmandoo

I had one dilation but still have problems but not as bad as yours. Wish I had never had it done. I still can’t vomit if I need to just dry heaves. Miserable!

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I met with a surgeon on Tuesday and have scheduled a redo on my nissen for April 19 . I was having a dilation almost monthly with two having to be done in the ER. The outcome is my wrap is way to tight. He will go in and take off half the wrap to widen it so i will finely be able to eat with out food getting stuck. I never really vomit from my stomach because the food usually doesn’t make it done that far, it will get blocked going down and than if i eat or drink it just piles on top of what is stuck and i end up throwing it all up. It is a nightmare and i, too wish i never had it done. I will keep you posted on how it goes.

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@katmandoo

I had one dilation but still have problems but not as bad as yours. Wish I had never had it done. I still can’t vomit if I need to just dry heaves. Miserable!

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i wish you well. I may still pursue having my nissen undone. I never had any gagging or nausea until this was done. Please keep me informed…..thank you….kozlo52

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@katmandoo

I had one dilation but still have problems but not as bad as yours. Wish I had never had it done. I still can’t vomit if I need to just dry heaves. Miserable!

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I will

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@katmandoo

I had one dilation but still have problems but not as bad as yours. Wish I had never had it done. I still can’t vomit if I need to just dry heaves. Miserable!

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Welcome to Connect, @kozlo52

Here is some information from Mayo Clinic about the revision of Nissen Fundoplication
http://bit.ly/2eMroSS

I would also invite you to view this older discussion on Connect, and I hope @pawsboy9, @gregoryd, @tgirl, @SherryD, and our Mentor @kdubois, will join this conversation and share their experiences:
http://mayocl.in/2eum6ru

@kozlo52, have you spoke to your doctors about reversing the Nissen fundoplication? What are their thoughts?

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@katmandoo

I had one dilation but still have problems but not as bad as yours. Wish I had never had it done. I still can’t vomit if I need to just dry heaves. Miserable!

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I have not spoken to the doctor yet. i did talk to my GI doctor and he said the prognosis of low grade barrett’s dysplasia was correct. So if i get this undone then i have have to still deal with massive amounts of antacids as well as a possible RFA (radio frequency ablation) of the questionable bad cells in the esophagus. The RFA is painful as well as a lot of swelling of the tissue, which means liquid diet again. i have to address my other problems of my stenosis from C3-C7 in my neck as well as L4-L5 in my back. I did not get this procedure at the right time. i only hope that things settle down in the esophagus for now. Today is 117 days after the fundo….kozlo52

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@katmandoo

I had one dilation but still have problems but not as bad as yours. Wish I had never had it done. I still can’t vomit if I need to just dry heaves. Miserable!

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I did review your referenced website for the older discussions. Now i have tried something different for my RA and back/neck pain. Advil makes an enteric coated 200 mg ibuprofen that is designed to be absorbed thru the small intestine. It is a brown coated pill. i have talked to the advil people and that is what they told me. Well after 2 hours i still got heartburn. How is this possible since it is dseigned to breakdown in the small iintestine? Since my wrap is good according to the surgeon, why am i still getting heartburn? I am on 30 mg x2 of prevacid; 1000mg sulcrafate x4. i will get back to the surgeon again., but are there any ideas? Personally either the hiatal is not really fixed or the vegus nerve has been disturbed? What procedure would could be used to verify vegus nerve is still ok?… thank you…kozlo52

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@katmandoo

I had one dilation but still have problems but not as bad as yours. Wish I had never had it done. I still can’t vomit if I need to just dry heaves. Miserable!

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@kozlo52 I’m so sorry that you continue to have heartburn issues after surgery, especially while juggling additional medical stuff. I have been fortunate and haven’t had any heartburn post nissen fundoplication surgery (10/18/2016 at Mayo), and I have had the post-surgery testing to check my wrap. Post-surgery, to check the status of the wrap and the hernia, what kind of testing did they do… esophagram?

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@katmandoo

I had one dilation but still have problems but not as bad as yours. Wish I had never had it done. I still can’t vomit if I need to just dry heaves. Miserable!

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Kelly , i really don’t know what they did to verify the status of the wrap and hernia. We were told by the surgeon that everrything went well and was ok. But i will ask them about the esophagram to verify wrap and hiatal hernia integrity…..don’t forget i kave RA and even though i take my NSAID Mobic, i still get heartburn 7 hours later. They tell me this is due to the pill hitting some of the upper esophagus muscles on the way down and aggravates a burn. i don’t believe it. Thanks for the advice…..kozlo52

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@katmandoo

I had one dilation but still have problems but not as bad as yours. Wish I had never had it done. I still can’t vomit if I need to just dry heaves. Miserable!

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Immediately after my surgery, while I was still unconscious, Mayo did some imaging on me to check the wrap… BUT a month or so after my surgery, my Mayo doctors ordered another esophagram (just like the one I had pre-surgery) to check the wrap and to see how everything was functioning. If you haven’t had one post-surgery and are still having heartburn issues, I would definitely ask.

Something’s awry if you are experiencing heartburn no matter what else you are taking. Daily, I take a pill at 8:00 a.m., another at noon, two at 5:00 p.m., and I take other pills as needed, and I don’t have any heartburn.

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@katmandoo

I had one dilation but still have problems but not as bad as yours. Wish I had never had it done. I still can’t vomit if I need to just dry heaves. Miserable!

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I have taken 2 prevacid daily for years to help control my Barretts Esophagus. I continued to take them after my wrap;. The new surgeon that i saw last week that is going to attempt to fix my wrap said that i should not have to take any meds, he explained that because the wrap prevents acid from going back through the esophagus, no meds are needed. I have stopped and will havwait two weeks to see if i still experience reflux, if i do, he says that besides my wrap being to tight, it would also be to loose at some point and he will have to fix that also. 🙁

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