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@fiddlinchuck

Dear Christine, I was diagnosed with a similar meningioma and underwent surgery for the removal in 2018 at Oregon Health Sciences University in Portland, OR. They were terrific. I think you have made a wise move in seeking care at a facility where specialists do this kind of surgery frequently and the attitude toward you is caring. What to expect after surgery? I was placed in the ICU for 2 days after surgery, then moved to a regular neurosurgery recovery area for another 4 days. The next part is what I did not see coming. I was discharged to another hospital closer to home that had an intensive physical therapy program. I was there for just over a week, and then discharged for ongoing outpatient therapy. I started that program with physical speech, and occupational therapy. I quickly proficiencies the Occupational therapy, but continued with the other 2 therapies for 3 more months until I achieved the goals they set for me which, in my case, were driven by Medicare. So, I did not anticipate the 3 months of therapy. Because neurosurgery patients are regarded as having a high risk of falling with potential serious consequences from a fall, I was required to use a walker for 2 months after surgery before graduating to a cane. That part was difficult for me, as I have always been very active. My surgery resulted in leaving a small part of the meningioma in place, because surgical removal might have blinded me in my right eye, as my optical nerve was encased in the tumor. Therefore, I was requested to come in for followup MRIs, initially at 6-month intervals (I am now on 12-month intervals) to check on whether the remnant has begun growing again. I am very fortunate in that my recovery has been totally uneventful and pain free. The strongest pain med I was on after surgery was Tylenol. But, I am told that this is not typical, and may be different for you. I hope this information is helpful to you. Be strong and positive, as you are in good hands. I wish you well in your journey. Alll my best to you, Fiddlinchuck.

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Replies to "Dear Christine, I was diagnosed with a similar meningioma and underwent surgery for the removal in..."

@fiddlinchuck -- Thank you! Mine isn't near my eye, but it is in my right sinus... the concerns are that it has also involved the large vein at the base of my skull. I pray I have a good surgical outcome like yours! I've already been told they might not be able to take the whole tumor out because of the location and the possibility of nerve damage. Blessings to you as you continue your recovery!