Newly diagnosed at 46 mm ascending aorta dilation (aneurysm)

Posted by ronludington @ronludington, Jul 31 8:37am

Pretty stressed out, this information was just given to me by my rheumatologist. I had a ct to check my lungs as I had GCA 7 years ago, which turned into PMR. Been on and off prednisone ever since. She is wanting to put me on kevzara, I don't know how that would affect me.. I've made an appointment with a vascular surgeon Rebecca Kelso at Novant Health Heart & Vascular Institute . However it's not until mid November. I'm seeing online that Atrium Health Sanger Heart & Vascular Institute might be better place. (Both near Charlotte, nc) All my records are with novant. Not sure what to do, change to Sanger? But how do you pick a Dr? Maybe go to the novant appointment, then switch ? 46 seems to be getting pretty close and it's just freaking me out.

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

Profile picture for ronludington @ronludington

I tried to post another question, but it wouldn't let me.
Do they Stent AAA ever ?
I've seen conflicting info on this. It probably depends on the aaa and your Dr skill. But just really wonder if it's an option, or is it a cut your chest open only option ?

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TEVAR for ascending aorta isn't done except with experimental procedures. They can to them in some cases on the descending aorta. The surgeon told me last week that the issue with the ascending aorta is that it moves a lot and the landings where it would hit the native tissue would put too much torque there. If the root is involved, its even more complicated. I have a section of my ascending aorta that is 4.2cm from the dacron graft to 4.6 on the distal end. I asked if TEVAR was an option and was told no because of that. Besides, my tissue may be too thin anyway. The section that was replaced tore when it was 4.7 and it was very thin and the root was 4.8 and it ruptured. At any rate, I am back to the watch and wait. I went from 4.4 to 4.6 from November to August.

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Profile picture for ronludington @ronludington

Being there not wanting to fix until 5.5... life goes on. Can't even see the vascular surgeon until november....

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Lil FYI The latest number is 5.0.
5.5 was a while ago.

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Profile picture for brene @brene

Lil FYI The latest number is 5.0.
5.5 was a while ago.

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Ooops I meant that info for another person’s share.

I’m wishing you the best!

Thank you so much for your share because I learned a lot. I have 4.5 aneurysm on my ascending aorta and I’m seeing the interventional cardiologist this Friday at Mayo Clinic in Phoenix.

I have a lot of questions and I know I’m going to learn a lot from him.

Blessings & Blue Skies

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I got a diagnosis of ascending aortic aneurysm "out of the blue" and started digging into possible causes. At that time, I also had PMR and was trying to figure out if that was a possible cause. My recollection is that PMR is not, but GCA is. (I never had GCA.)

I know nothing beyond that. Seven years ago seems like a long time. Yet, in your place, I'd make sure the surgeon knows about the GCA.

FWIW, I'm around 4.5 diagnosed two years ago and the panic has subsided. Once you get comfortable with your surgeon and dig around a bit more, I think you'll feel better. At least I did. It hasn't gone away, but it's not on my mind all the time.

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People use medical abbreviations so often. I look them up to find out what’s the issue.. I will continue looking up what I don’t know, but, be aware all abbreviations are not just known to everyone..

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Saw a vascular surgeon, she was pretty much useless. Other than getting me started on an additional blood pressure med. Said I would never see her again.. referred me to a cardiologist that has 0 experience. I am attempting to switch from novant to Sanger. Tough to get a referral between the organizations though.

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As other have written on this forum and from personal experience once diagnosed for Acceding Aorta Aneurism it is best to consult with a Cardio thoracic specialist at a major hospital who is very familiar with the condition and operates if/when required. Comments and recommendations from my local cardiologists could have being fatal if I have not contacted the specialist.

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Profile picture for 23997929 @23997929

As other have written on this forum and from personal experience once diagnosed for Acceding Aorta Aneurism it is best to consult with a Cardio thoracic specialist at a major hospital who is very familiar with the condition and operates if/when required. Comments and recommendations from my local cardiologists could have being fatal if I have not contacted the specialist.

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And that is exactly what I'm trying to do.....Sanger is a major

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