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Newly diagnosed and confused over treatment for lichen sclerosus

Posted by ronag @ronag, Jan 24, 2023

I've been diagnosed with lichen sclerosus. I have questions as to what is the best treatment: which steroid and at what dosage. My gynecologist initially prescribed mometasone cream 0.1% twice a week. This didn't really control the itching. My dermatologist is recommending clobetasol ointment 0.05% once a day for 2 months, followed by twice weekly forever. Itching, while not completely gone, is certainly more controlled after a week's treatment with the clobetasol. However, I'm a bit concerned over using it daily for 2 months. Can you please share what's worked for you? Can I expect to be using a steroid for life? To throw into the mix--I have long covid. Thank you for any help in navigating this.

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sap52203 | @sap52203 | Aug 7 7:48pm
In reply to @echapman "I was advised not to use anything not specifically designed to treat LS symptoms. That would..." + (show)
Profile picture for echapman @echapman

I was advised not to use anything not specifically designed to treat LS symptoms. That would disqualify emu as it wasn't made for LS. I stick with my Lisepten. It works. Why should I try anything else.

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As I stated before … just sharing my experience. You do you!! I will do what works best for me and has proven results. I’m not on here advocating any certain cream or ointment. Always clear anything with your doctor…which I did with Emuaid.
Thanks
Sharon.

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hopefulme3 | @hopefulme3 | Aug 8 12:08pm

What is Lisepten? I haven’t heard of it.

How do you use EMU oil & which one?

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hopefulme3 | @hopefulme3 | Aug 8 12:21pm

Did you get an answer? I’ve had it for years, ignored it and it keeps spreading. A gyn has a method with radiofrequency after clobetosol, then PRP. She retired so I never got the treatment. Place in Pensacola FL, Coyle Institute, has a different method using laser. Would love to know anyone who tried these methods or different. My derm said use Elliquel. Thanks!

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bethdoraine | @bethdoraine | Aug 9 10:57am
In reply to @hopefulme3 "What is Lisepten? I haven’t heard of it. How do you use EMU oil & which..." + (show)
Profile picture for hopefulme3 @hopefulme3

What is Lisepten? I haven’t heard of it.

How do you use EMU oil & which one?

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I have using EMU OIL for years with great success. It gives almost instant relief and, in a few days, it is in remission. It will keep in the fridge for years. I always have it on hand at room temperature for the next flareup. I only but Pure Refined Purple Emu Oil and I buy
it on line. You apply it with your fingers and it gives wide silky coverage. I tried Emuaid in the past. Although it is a very good cream and gave short term temporary relief, it did not heal the way Pure Emu Oil does.
Good luck on your journey

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