New here, architectural distorotion, scared

Posted by laurakwalker1980 @laurakwalker1980, Jul 7, 2025

Hi all. I am new here. This is my first time posting a question. A couple weeks ago I had a follow up mammo, due to some cystic changes they wanted to monitor. Well, they apparently found a "new" place. They mentioned architectural distortion and a BI-RADS 4, noting that a biopsy was recommended. I was scheduled 2 1/2 hours away from my home to a Comprehensive Breast Center in about 6 weeks. When they called to set up the appointment, they said they would be doing their own mammo and ultrasound, and if they feel a biopsy is needed, they will do it that same day. The report says there is a "1 cm irregular shaped high density mass with irregular margins and architectural distortion. Further evaluation with stereotactic guided core needle biopsy recommended". I have had several people tell me not to worry, while others sound very concerned. I am so worried and I hate having to wait so long for the follow up. Can someone give me so guidance? What questions should I be asking? Also, the report says my breasts are "extremely dense". Please, any advice , input would be greatly appreciated! Anyone have similar findings - what was your outcome? I'm about to turn 45 in 33 days. I have 5 children and my first grandbaby is due September 20. I'm so scared. My husband is not exactly being dismissive, but I've had cysts in the past and he will only allow himself to believe its only a cyst and no need to worry. If he only knew how it feels.

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Profile picture for anne4880 @anne4880

I’m so sorry for your diagnosis. My mother had breast cancer and then ovarian cancer. I am 62 and was diagnosed in December as well. I think because my mother went through so much and I was married to a surgeon I have a different view. I guess I’m just used to being around people with medical problems or cancer. Sometimes I have a more clinical view and that makes it easier for me. I do see a psychologist once a week and have found that to be very helpful. I also have a good outlook, but it’s very important to have a good support system. Especially if your husband is having a difficult time dealing with the diagnosis. Get as informed as you can. Knowledge is power!! The more you know the less anxiety you will have. But I know for myself that it will be a difficult road. I am having 12 weeks of chemotherapy to start and may need another 12 weeks before I have surgery. Then radiation. Just know too that some people have a difficult time facing a cancer diagnosis, including friends and family members. It’s not a reflection on you and doesn’t mean they love you less!! Stay strong and as healthy as you can. Try to get some exercise if you can. The Susan B Komen foundation has been helpful as well as the American Cancer Society. They have numbers that you can call for support.
I hope this helps you. I found that reading about my cancer is helpful and may be useful for you as well. It puts you in control. You can google the questions that you want to ask your Oncologist and team members.
Or ask the people here. I hope I haven’t overwhelmed you, this is my first post on this site. If anyone has any advice please let me know.
Anne
Best wishes to you!

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@anne4880, what a helpful post for @laurakwalker1980. You sound like a very pragmatic person. How are you doing on chemotherapy?

@laurakwalker1980, how are you doing?

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