New & feeling lost online: Seeking heart transplant support group

Posted by bellini @bellini, Jun 2 1:38pm

Hello, could anyone advise on how I join the online group meeting? Thanks

Hi @bellini, welcome to the Transplants group. You have successfully posted. Can you tell me which meeting you are trying to join? I can help.

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@colleenyoung My Mayo Social Worker told me that I could join on Wednesdays a meeting in regards to transplant(heart). I figure out how to get to a meeting thru Mayo Clinic Connect. Thanks for your assistance.

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@bellini Hi and Welcome to Connect. I caught your question and it sounds like your talking about the Wed Zoom meeting at Mayo In Arizona. I attend when im free and im a Heart Transplant Receipiant so if I can be of any Help please let me know.
Blessings
Dana

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@bellini

@colleenyoung My Mayo Social Worker told me that I could join on Wednesdays a meeting in regards to transplant(heart). I figure out how to get to a meeting thru Mayo Clinic Connect. Thanks for your assistance.

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Bellini, if Dana is right and you are looking for the Heart transplant support group, here is further information:

The heart transplant support group meets every Wednesday from 1 to 2 p.m. Currently the group meets on Zoom instead of in person.
Contact the social workers (Lisa, Amanda or Tiffany) at 480-342-2161 or through the patient portal online.

I also want to invite you to connect with fellow heart transplant recipients here on Mayo Clinic Connect, like @danab @estrada53 @scottj @amynewheart @mlee1969 and @glinda.

Bellini, are you awaiting transplant or have you had your transplant already?

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@bellini Hello! I am Scott Jensen and an active participant in the Wednesday, 1:00 PM Zoom call for Heart Transplant patients both recipients and those in waiting. It is hosted and moderated by the team social workers but it is in fact our meeting. We share stories, offer support, and are trying our best to build community.

If that is the group you were told to find you can join Zoom Meeting by clicking the link below
https://mchealth.zoom.us/j/8639020999?pwd=dnMwdmQ2L1pMNjdGby9PQUhwVWlsUT09
I think you would enjoy it.
Best always,
s!

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@scottij

@bellini Hello! I am Scott Jensen and an active participant in the Wednesday, 1:00 PM Zoom call for Heart Transplant patients both recipients and those in waiting. It is hosted and moderated by the team social workers but it is in fact our meeting. We share stories, offer support, and are trying our best to build community.

If that is the group you were told to find you can join Zoom Meeting by clicking the link below
https://mchealth.zoom.us/j/8639020999?pwd=dnMwdmQ2L1pMNjdGby9PQUhwVWlsUT09
I think you would enjoy it.
Best always,
s!

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Thank you I look forward to joining this week.

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@bellini

Thank you I look forward to joining this week.

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and after bragging about being a regular attendee I will not be on the call this week due to a personal conflict. I hope to see you in the future.
Best always,
s!

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@scottij

and after bragging about being a regular attendee I will not be on the call this week due to a personal conflict. I hope to see you in the future.
Best always,
s!

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We'll miss you, Scott!

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@bellini

@colleenyoung My Mayo Social Worker told me that I could join on Wednesdays a meeting in regards to transplant(heart). I figure out how to get to a meeting thru Mayo Clinic Connect. Thanks for your assistance.

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Hi @bellini! I know Colleen, Dana and Scott have welcomed you to Connect. I'm joining them in greeting you! Please join us on Wednesday at our heart transplant support group meetings. I've been attending since I was first evaluated for heart failure, nearly five years ago. I still attend regularly because I know what a confusing and powerful journey each of us undergoes and it's great to voice our concerns, listen to others and get ideas and answers from those who have gone down this same path.

Hope to see you on Wednesday!
Ellen

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@estrada53

We'll miss you, Scott!

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I may be gone for quite some time. She-who-Must-Be-Obeyed and I are going to Sedona for a short two day get away this week. I have a different appointment next week. Going to Oceanside to see dear friends the following week. I can tell things are returning to normal because I am starting to encounter scheduling conflicts like the old days.
Best always,
s!

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I will plan on attending this week also. Being retired I seem to miss what day it is on occasion an have missed the last few. But im.setting an alarm for Wednesday at 1 to help me remember. 😆 tough getting old
Dana

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@bellini Great to see you there yesterday and I also welcome you to continue to join us here also. There are others that would enjoy hearing about your Journey here and can help thru the process.
Dana

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