New daily persistent headache. I feel alone with my pain

Hello, my name is Nathalie, I am 54 years old. I live with the new daily persistent headhich since June 24, 2010. I live in Quebec, Canada. It took several years to get the diagnosis. Digging for the cause of my headaches. I was also found to have a tumor in the pituitary gland. Which put the doctors on the wrong track. The tumor was not the cause of my headaches. I had to stop my job and I haven't worked for 12 years now. I've seen great headache specialists. I tried many medications, without success, including botox. The only thing that has helped me so far has been changing my pace of life.
Fortunately, I have disability insurance which allowed me to stop working. I walk regularly, I avoid sulphites, MSG and processed products. I try to avoid stressful situations and I set limits. But every day since 12 years the headaches are there. They increase with temperature changes and in Quebec the temperatures change every day. What did me a great good is to read by this blog that I am not alone. Yes there is not much research. Yes I have the impression that the pharmaceutical companies are ignoring us, but reading you, even if I don't know you, I feel understood. I am no longer alone with my pain and without medication to relieve it. Thank you for reading me and sorry for my English which is quite average.