New Transplant Blog Posts

Posted by Kristin Eggebraaten @keggebraaten, Feb 21, 2017

Hello everyone,
We hope this finds everyone well today! We have started this discussion today to announce a new blog post. Every week, we will reply to this discussion to let you know when something new is published. Watch for new information often!

Have a productive and enjoyable week!
– Kristin

Morning! Today's blog post is a deep dive into the living donor evaluation process. Many thanks to Living Donor Coordinators Lisa King, R.N. and Kay Kosberg, R.N. from our Rochester, Minnesota campus, for participating in this interview! We've seen a lot of recent dialogue in the discussion group on the eval process so we hope this post is helpful to readers who are just starting or in the midst of the process. Have a great day! https://connect.mayoclinic.org/newsfeed-post/what-to-expect-during-a-living-donor-evaluation/

REPLY

Thanks, Lisa King RN and Kay Kosberg RN. for this interview. As a non-living transplant recipient, I am in awe of the process for living organ donation. It was not an option for me when/where I was first a patient. I am happy to see how medical advances continue to improve the lives of so many people.

REPLY

Sharing a link to our latest blog post, which rounds up three entries from the archives on living organ donation. If you have a passion for educating others about living organ donation, this is a great post to share with the people around you! https://connect.mayoclinic.org/newsfeed-post/three-cant-miss-posts-if-youre-considering-living-organ-donation/

What other topics related to living organ donation would you like to see us cover on the blog?

REPLY

I have not posted for a long time but I have been following discussions when I have time. I just thought I'd let people know that I'm now on the transplant waitlist with a GFR of 19. I'm also actively seeking a living kidney donor as I have no family members that are able to donate because they have PKD (my genetic kidney disease) or they have already donated a kidney. I feel good but I'm very busy with family commitments and seeking a donor so I do not have time to stay active with Connect. I do want to thank all those on Connect for their support and all I learned from them. I do champion Connect on my website that I am using to find a kidney because I think Mayo and Connect is a great source of information and support. All the best!

REPLY
@IWantToBelieve

I have not posted for a long time but I have been following discussions when I have time. I just thought I'd let people know that I'm now on the transplant waitlist with a GFR of 19. I'm also actively seeking a living kidney donor as I have no family members that are able to donate because they have PKD (my genetic kidney disease) or they have already donated a kidney. I feel good but I'm very busy with family commitments and seeking a donor so I do not have time to stay active with Connect. I do want to thank all those on Connect for their support and all I learned from them. I do champion Connect on my website that I am using to find a kidney because I think Mayo and Connect is a great source of information and support. All the best!

Jump to this post

I'm so glad you took the time to update everyone. I too had PKD and I understand that it can be especially difficult to find a donor. I was blessed to have a lot of potential donors but many were disqualified for various reasons and was losing energy and hope as my kidney function declined. I was reluctant to tell people because it was hard to deal with and I didn't feel worthy. I happened to mention I was sick and needed a kidney to a coworker and she immediately asked if she could donate. By some miracle we were a match and 6 weeks later we were in surgery. I was able to have my PKD giant kidneys removed at the same time I got my new kidney and have been healthy ever after. Hope it out there!!! Keep the faith and know good things will happen. Prayer helped me cope during the helpless, lonely times. Good luck and keep us all posted.

REPLY
@IWantToBelieve

I have not posted for a long time but I have been following discussions when I have time. I just thought I'd let people know that I'm now on the transplant waitlist with a GFR of 19. I'm also actively seeking a living kidney donor as I have no family members that are able to donate because they have PKD (my genetic kidney disease) or they have already donated a kidney. I feel good but I'm very busy with family commitments and seeking a donor so I do not have time to stay active with Connect. I do want to thank all those on Connect for their support and all I learned from them. I do champion Connect on my website that I am using to find a kidney because I think Mayo and Connect is a great source of information and support. All the best!

Jump to this post

@jolinda, I am happy to welcome you to Connect. It is an honor to meet you and to greet you first thing this morning! As a recipient, myself, I know how much your words of encouragement can mean to someone who needs a transplant. Your amazing story is proof that miracles do happen! Thank you for sharing it.
I want to invite you to read and to participate in any of our discussions. Feel free to join in and ask a question, make a comment, answer a question.

Jolinda, How long ago did you receive your kidney transplant?
Rosemary

REPLY
@IWantToBelieve

I have not posted for a long time but I have been following discussions when I have time. I just thought I'd let people know that I'm now on the transplant waitlist with a GFR of 19. I'm also actively seeking a living kidney donor as I have no family members that are able to donate because they have PKD (my genetic kidney disease) or they have already donated a kidney. I feel good but I'm very busy with family commitments and seeking a donor so I do not have time to stay active with Connect. I do want to thank all those on Connect for their support and all I learned from them. I do champion Connect on my website that I am using to find a kidney because I think Mayo and Connect is a great source of information and support. All the best!

Jump to this post

@IWantToBelieve I am not familiar with GFR but I presume it is similar to the MELD for liver function. What is the range of numbers for GFR and if you are waiting for a cadaver donor what number is generally where transplants occur?
JK

REPLY

New blog post alert! 🙂 This post, written by @lisalucier, introduces you to a Amanda Chaney, Doctor of Nursing Practice and liver transplant nurse practitioner at Mayo Clinic’s campus in Jacksonville, Florida. Learn about the role Amanda's mentor and "nursing mom" have played in her career, how she took inspiration from the popular TV show "Survivor" to improve new staff training, and what nickname she earned herself at work. Enjoy! https://connect.mayoclinic.org/newsfeed-post/meet-the-expert-blog-post-dr-amanda-chaney/

REPLY

New blog post by @keggebraaten is up! Check out this "countdown to living donor surgery" with key steps for living donors. https://connect.mayoclinic.org/newsfeed-post/countdown-to-living-donor-surgery-key-steps/

REPLY

Hello everyone!
Today's blog post is information for some of the most special people in a transplant patient's life – their caregivers. We know that caring for loved ones can be rewarding, but sometimes our caregivers also need extra support. Our hope is that this blog post gives you all a boost of energy and knowledge so caring for loved one can be the best experience for you.

Have a wonderful week!
Kristin
https://mayocl.in/2o3ttLL

REPLY
@keggebraaten

Hello everyone!
Today's blog post is information for some of the most special people in a transplant patient's life – their caregivers. We know that caring for loved ones can be rewarding, but sometimes our caregivers also need extra support. Our hope is that this blog post gives you all a boost of energy and knowledge so caring for loved one can be the best experience for you.

Have a wonderful week!
Kristin
https://mayocl.in/2o3ttLL

Jump to this post

This is the kind of information that my husband, my caregiver, would have appreciated during 'our' journey to transplant.

REPLY
@keggebraaten

Hello everyone!
Today's blog post is information for some of the most special people in a transplant patient's life – their caregivers. We know that caring for loved ones can be rewarding, but sometimes our caregivers also need extra support. Our hope is that this blog post gives you all a boost of energy and knowledge so caring for loved one can be the best experience for you.

Have a wonderful week!
Kristin
https://mayocl.in/2o3ttLL

Jump to this post

@rosemarya and all, I think any caregiver would be helped by this. Our caregivers most often give it their all, it's not easy for them either. When I was going through all of this, the biggest problem was the possibility each day that I might have an HE episode. Thankfully my daughter did come and stay with me a weekend so my husband could go to CA and visit our son for the weekend — they have a tradition of watching the Superbowl together.
I was talking to my son last night and all of this came up. We both agreed that I did very well dealing with everything except for the constant fear of having an HE episode. He also is amazed that my doctor did not diagnose me considering all the symptoms I had.
JK

REPLY
Please sign in or register to post a reply.