New at this
Hello all. My dad has dementia. He's 81. My mom, who passed last year, was hiding it until she became ill. We have records going back 4-5 years noting cognitive decline, dementia and falls. Since my moms passing my dad has made poor decisions with a new girlfriend, lost his drivers license (he failed the cognitive test twice), constantly forgets things and has declined where almost all people notice he has an issue. We stepped forward moving for an emergency conservatorship because he planned to marry and couldn't understand his new girlfriend was balking at a prenup. Since then I've learned more about dementia, but my heart hurts because my dad won't see me, yells at me if I do get him on the phone or texts me hurtful things at random times. I know I'm doing the right thing and my dad would want me to do it if I told him this 10 years ago. It's just hard wanting to have a conversation with him and the proverbial lights just aren't on with him. Once the conservatorship is finalized, we have fears the girlfriend will bail, routines will change and depression will hit. A bit overwhelming.
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@chadley Welcome to Mayo Clinic Connect!! I’m sure the members will step to give some guidance. Since non of us licensed medical persons, we cannot diagnose or suggest treatments. Members just give guidance based on their own experiences. But, it’s a great group and I’m sure you will get some help!
I’m sorry about your father. I know firsthand how difficult it is to face this.
It’s good you stepped in to get guardianship. Hope it goes smoothly. Will you or a professional be in charge of the decisions for your father? I’d discuss it thoroughly with the attorneys and the court because it’s a huge responsibility. Hope you have help.
People with dementia often are resistant to care and act in ways that are not in their best interest. It can be hurtful and frustrating. Keep learning as much as you can about his condition. And get support from family, friends and support groups. Sites like this one are invaluable, imo.
My dad had Alzheimer’s for quite a few years. His symptoms weren’t severe until the end, but caring for him was a huge endeavor. We did have good times though and I cherish those memories. While dementia can change a lot about the person, in my dad’s case, he retained most of his qualities and we miss him dearly.
I’m sure on some level your dad welcomes help from his family. I hope that brings you comfort.
I am sorry about your challenges with your father. I am caring for my husband who was a brilliant physician, master bridge player and active outdoorsman. He is none of those things anymore. The hardest part for me of this dementia journey is accepting that his behavior today is not that of the man I married 44 years ago it is the dementia. I have gained a lot of understanding of the disease and its effects by educating myself about the different types of dementia and the way that the brain changes over time. These changes affect everything because the whole brain is involved. I think you have done the best thing for him in gaining conservatorship. He needs someone to make decisions in his best interest. There is a lot of support out there. The Alzheimers Association has many resources that you can avail yourself of online. Try to take it one day at a time.
Thank you for the kind words and I'm sorry that you had to go through it with your dad. I plan to handle the conservatorship personally. I know it's a lot but I want to make sure my dad is in the best place possible.
Thank you. My heart goes out to you as well.
I am sort of in a similar state as Chad but it is slightly different with me. My 86 year old mother has dementia and it runs in her family so we've seen it before. My 88 yr old father is her primary carer and wants to keep her at home. I am 53 and live in the house with them. It's been a little over a year and I help out the best I can but I am essentially told pretty consistently that what I do is not enough, not the right way to do it, not at the right time and, not the right things. 1st, there is an inherent disconnect bw thinking what I do is not helpful (it actually is) but still wanting more from me. My father yells at me a couple of times a week. My siblings and I are on the same page that we need more PROFESSIONAL help (right now we have aides from 10 - 4 six days a week) like a live in person who is not me as I'm gone most of the day (which my dad seems to be jealous of) but they are not willing to push him. My father is rail thin, clearly overwhelmed and exhausted but doesn't really want more help. His moods are changeable on a dime and it is very difficult to deal with. My siblings are hardly around but he seems to value their opinions over mine despite the fact that I live IN THE HOUSE. I am exhausted of it and also dealing with my own health issues. It's really hard. I can't tell if my dad is in denial or is going senile. It's possible he's just super overwhelmed but I struggle with that idea bc it's been going on for years now and he's still obsessed with controlling everything. Good luck Chad. My dad picks fights wioith me incessantly and sometimes so do my siblings based on his errant information but at east we're all still speaking. Sort of. I'm sorry to hear you're in that situation.
I can relate to your situation. If I had to it over, I would not do it. I was able to provide care so that my dad didn’t have to go into long term care. The stress, daily demands, constant alertness, resistance to care…..it’s really a job for 3 shifts of people eventually. It definitely affected my health.
@krisingle1 Welcome to Mayo Clinic Connect! I’m so sorry about your home situation with your mom and dad. This is such a frightening time for them and everything is new and different.
Is it possible to get your father out of the house for a walk and/or lunch? I’m sure he needs a break! Just a thought.
Thanks, Celia. I definitely needed to hear that.
I am glad I was able to help my dad stay at home and eventually pass away there, but the toll was high for me. I worked too, which was very challenging. I finally got 2 sets of outside health care to come in. That was a great help. My dad was 88 too. Sometimes, I think navigating care with 2 seniors with one having dementia is really tough. My dad and I did pretty well, but my mom was difficult. So, I get it. Good luck with everything.