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Posted by @brittneyj025 in Brain & Nervous System, Jun 11, 2012

Has anyone here been treated for Neurosarcoidosis? if so what treatments worked for you?

Kimberly and DADE like this

Posted by @ddade19, Tue, Jul 26 at 3:32am CDT

I have Neurosarcoid and I have been treated with predisone, and remecade! I've had Neurosarcoid for 8 yrs. Now. Sending prayers to you!!!


Posted by @colleenyoung, Tue, Jul 26 at 10:31am CDT

Welcome to Connect @ddade19. I hope @brittneyj025 will return to join you here. It has been a while since she posted.

In the meantime, we would like to get to know a bit more about you. I'm not that familiar with neurosarcoidosis. What were the symptoms or circumstances that led to your diagnosis? And how are you doing now?

Teresa, Mentor likes this

Posted by @sebley12, Wed, Aug 10 at 1:30pm CDT

I have heard of this before but actually have just Sarcoidosis of the lungs. Its rather annoying with the constant cough. I will keep you in my prayers.


Posted by @ddade19, Wed, Aug 10 at 9:57pm CDT

Thank you so much!

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