Neuropathy pills: How to avoid scams?

Posted by wideawakechas @wideawakechas, Oct 26, 2021

Has anyone heard of or tried a pill treatment called Vita Soothe Pro? Nerve Savior?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@johnbishop

Welcome @davidlscott73, I am in complete agreement with you on sugar. I haven't been able to completely quit eating sugar but I have made a big dent in my old habits and it most definitely helps with how I feel during the day. It also made a difference in getting rid of some of that extra baggage around my midsection.

Do you mind sharing what brought you to Connect? Do you have questions on neuropathy or other conditions?

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Well, I have constant bad numbness in both feet with tingling but not pain. I assume that it was caused by alcoholism for about 15 years. I stopped 7 years ago but the neuropathy did not improve. Now im flooded with tons of advice from people to “cure” it and nothing has helped. So I’m careful and sought help here.

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@uaa

Hola
Alguien sabe del desarrollo de Winsantor que hasta donde conozco ha desarrollado un medicamento que no solo detiene la neuropatia sino que restaura los nervios dañados o sea que tiene un efector reversible.
Hasta donde se, estan ya en la fase 3, para su autorizacion y la ultima informacion que tengo es que en el transcurso de este año terminarian de hacer sus pruebas y ofrecer el medicamento comercialmente

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Welcome, @uaa. I changed your language settings to Spanish so that you can read my English post in Spanish and your Spanish posts would be translated automatically for English speakers.

Read more about the language feature here:
- Traducción automática entre español e inglés / Automatic translation Spanish and English https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/nueva-funcin-traduccin-automtica-entre-espaol-e-ingls-new-feature-automatic-translation-between-spanish-and-english/

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@bigjohnscho

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

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Spinal Cord Implants for Peripheral Neuropathy: Has anyone had any experience (good or bad) with spinal cord stimulators? How well did it work? What percentage of pain relief did you realize? Were you able to come off your pain meds? Did you experience any infection issues? Brand of the device you had implanted? Based on your experience, would you recommend an implant to relieve neuropathic pain?

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@mlee5309

I would love to know if anyone has tried hyperbaric chamber sessions for neuropathy. I am out of ideas but I’ve never tried this or seen ir mentioned. Probably a scam but I’m desperate enough to fall for any scam at this point

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I tried hyperbaric chamber sessions for 12 weeks with no change in my peripheral neuropathy pain.

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@mlee5309

Have you ever tried a hyperbaric chamber? I can’t find any personal anecdotes of anyone who has for neuropathy

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I tried hyperbaric chamber sessions for 12 weeks with no change in my peripheral neuropathy pain. In actuality, I was sent to the chamber to promote the healing of a wound on my right foot from a metatarsal amputation. The wound did not heal any faster either so I don't know why hyperbaric chambers should be recommended for anything beyond preventing the "bends" in divers.

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@aaroncush

The last thing I heard about WinSantor was they did not have the funding necessary to begin phase 3 trials.

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Here is a link to a podcast with WinSantor where they talk about funding from a few weeks ago: https://m.youtube.com/watch?v=jJetVLUnhQM&t=3522s

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@paulbse

Spinal Cord Implants for Peripheral Neuropathy: Has anyone had any experience (good or bad) with spinal cord stimulators? How well did it work? What percentage of pain relief did you realize? Were you able to come off your pain meds? Did you experience any infection issues? Brand of the device you had implanted? Based on your experience, would you recommend an implant to relieve neuropathic pain?

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@paulbse, There are a lot of members who have shared their experience with spinal cord stimulators. Here is a link that shows the discussions and comments on spinal cord stimulators:
https://connect.mayoclinic.org/search/discussions/?search=spinal%20cord%20stimulator/

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@davidlscott73

Well, I have constant bad numbness in both feet with tingling but not pain. I assume that it was caused by alcoholism for about 15 years. I stopped 7 years ago but the neuropathy did not improve. Now im flooded with tons of advice from people to “cure” it and nothing has helped. So I’m careful and sought help here.

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@davidlscott73, It sounds similar to my neuropathy journey but mine wasn't caused by alcohol as far as I know. I posted my journey here - https://connect.mayoclinic.org/comment/310341/. You might want to scan through the discussions and comments on neuropathy with numbness only. Here is a link that lists discussions, comments and more - https://connect.mayoclinic.org/search/discussions/?search=neuropathy%20numbness%20only

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@bigjohnscho

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

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I think, generally, we are too quick to label something as "a scam."

Sometimes a supplement or therapy will help to a degree, but not to a degree where we consciously become aware of its effect.

So, for example, everyone knows that eating a healthy salad with a lot of leafy green vegetables is good for us.

But who FEELS the effect of eating that salad? We don't feel the effects, but it clearly is helping us.

So, some therapies or supplements may be giving us improvement at a low level...5% or 10% improvement, but it is not noticeable.

And then, some therapies / supplements may take months to show results.

from Dr. Andrew Weil, an Integrative Medicine, MD...

He seems very wise, grounded, down to earth and reasonable. Will easily advise traditional medicine over natural medicine. Not some fadist...

Neuropathy Symptoms and Treatments
https://www.drweil.com/health-wellness/body-mind-spirit/diabetes/neuropathy-symptoms-and-treatment/
Excerpt:

What neuropathy treatment and natural remedies does Dr. Weil recommend?

Your first step should be a general medical checkup to determine if an underlying disease or injury is the cause of your neuropathy symptoms, and if so, to determine its nature. Your doctor should do complete blood work and may refer you to a neurologist who will probably do an EMG (electromyelogram) to assess muscles and nerve conduction. If you have no underlying disease, you can try one or all of the following neuropathy foot treatment strategies:

Take one B-100 B-complex vitamin daily. The B vitamins are necessary for normal nerve function, and supplementing is a good preventive measure. Do not take more than 200 mg of B-6, as higher daily doses can actually cause symptoms of neuropathy.

Take 100 mg of alpha-lipoic acid daily. This antioxidant protects microcirculation to the nerves. You can gradually increase the dose to 300 mg twice a day over the next month.

Acupuncture can help relieve peripheral neuropathy pain. Additionally, a practitioner of Chinese medicine can provide you with herbs that may speed recovery. You might also try reflexology for neuropathy of the legs, feet and toes. If a toxic exposure is the cause, time is your greatest ally – injured nerves will slowly recover, as long as the exposure has stopped.

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@samcal9977zz

I think, generally, we are too quick to label something as "a scam."

Sometimes a supplement or therapy will help to a degree, but not to a degree where we consciously become aware of its effect.

So, for example, everyone knows that eating a healthy salad with a lot of leafy green vegetables is good for us.

But who FEELS the effect of eating that salad? We don't feel the effects, but it clearly is helping us.

So, some therapies or supplements may be giving us improvement at a low level...5% or 10% improvement, but it is not noticeable.

And then, some therapies / supplements may take months to show results.

from Dr. Andrew Weil, an Integrative Medicine, MD...

He seems very wise, grounded, down to earth and reasonable. Will easily advise traditional medicine over natural medicine. Not some fadist...

Neuropathy Symptoms and Treatments
https://www.drweil.com/health-wellness/body-mind-spirit/diabetes/neuropathy-symptoms-and-treatment/
Excerpt:

What neuropathy treatment and natural remedies does Dr. Weil recommend?

Your first step should be a general medical checkup to determine if an underlying disease or injury is the cause of your neuropathy symptoms, and if so, to determine its nature. Your doctor should do complete blood work and may refer you to a neurologist who will probably do an EMG (electromyelogram) to assess muscles and nerve conduction. If you have no underlying disease, you can try one or all of the following neuropathy foot treatment strategies:

Take one B-100 B-complex vitamin daily. The B vitamins are necessary for normal nerve function, and supplementing is a good preventive measure. Do not take more than 200 mg of B-6, as higher daily doses can actually cause symptoms of neuropathy.

Take 100 mg of alpha-lipoic acid daily. This antioxidant protects microcirculation to the nerves. You can gradually increase the dose to 300 mg twice a day over the next month.

Acupuncture can help relieve peripheral neuropathy pain. Additionally, a practitioner of Chinese medicine can provide you with herbs that may speed recovery. You might also try reflexology for neuropathy of the legs, feet and toes. If a toxic exposure is the cause, time is your greatest ally – injured nerves will slowly recover, as long as the exposure has stopped.

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I developed B6 Toxicity from ingesting 100 MG B Complex for 4 months. My primary symptom was neuropathy, but there are others caused by the Small Fiber Polyneuropathy that this neurotoxin can cause. Research now shows adverse effects of B6 in amounts as low as 1.4 mg. The proposed upper limit in Getmany is 3.5mg. The EU proposes an upper limit of 12 mg. Australia requires warning labels.
for products containing more than 10 mg. Learn more at UnderstandingB6Toxicity.com Also, there is a FB support group Understanding B6 Toxicity Using Western Research

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