I live near a great place to fine the nutritional supplements, as it has help with my fatigue, I see no change in the overall neuropathy, not saying other may find help I did not….
What I need is a doctor who will find out what I have, if there a cause and if it is all SFN, or damage from the SFN, or other things..
I get tried of these doctor wanting us to go to pain management with out knowing all…
I know that there is more going on with my feet and legs, and don’t want to take things that put you to sleep…
And believe me many of the nutrients, pills and injections..can do more harm than good…
I have learned even with vitamin you can do more harm thawing to much or the ones that should not be taking together…
I need a doctor who listen…understands
Hello bowersra.....
If you like I can refer you to this doctor.
I am going to start a few sessions of Decompression bed treatments which lightly stretches your spine to separate the discs to allow the nerves to transmit normally again.
Sadly I have come to the conclusion that GP’s no very little about neuropathy mine just advised me to just live with it. I have been forced to resort to the internet.
I have to admit that the information on the internet is very good but there is the danger of doing more harm than good but it at least makes yo feel as if your doing something.
Does anyone take vitamin B12 and folate on a regular basis and at what dosages.
I take a b12 2000mg every day with my vitamin D3
I was told that B6 is bad for neuropathy from a specialist in IU Medical in Indianapolis…. So stop the B complex
Not sure if it helped I had taken the B’s together for 3 or 4 years…
Only take B12 now…
Want to try the B12 shot, I need a primary doctor than understand or will listen to neuropathy…
Neurologist I had was some what ok but couldn’t move on anything.. took him 1 1/2 years to get a skin punch
Hello bowersra.....
If you like I can refer you to this doctor.
I am going to start a few sessions of Decompression bed treatments which lightly stretches your spine to separate the discs to allow the nerves to transmit normally again.
Under scams Anyone tried nooro ultimate foot massager SCAM?Anyone tried the nooro ultimate foot massager they claim it works wonders Been trying it for 5 days now nothing so far 15minutes a day twice.
as far as I am concerned it is a scam, I have had better luck with a product called power plate it seems to kind of even out the level so I can get on with my life.
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
I would love to know if anyone has tried hyperbaric chamber sessions for neuropathy. I am out of ideas but I’ve never tried this or seen ir mentioned. Probably a scam but I’m desperate enough to fall for any scam at this point
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
Perfect request. Thank you. I stopped my statin to see if both my legs respond by relinquishing moderate numbness during sleep hours. After a month or two there is improvement.
I liken trying to find something that helps my neuropathy to playing whack a mole at a carnival. Sometimes it seems the target keeps moving. I’ve tried so many things it’s hard to keep track of them all.
Also, there is a 2021 research article that might provide more information for you.
--- Mechanistic Rationale and Clinical Efficacy of Hyperbaric Oxygen Therapy in Chronic Neuropathic Pain: An Evidence-Based Narrative Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8084668/
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
Have any of you tried the Nooro electrode? It's a patch that you charge in the wall, then place on your leg/knee/calves/etc., and push the activator on the patch to increase the electric intensity or decrease. It turns itself off in about 10 minutes, then I move it to a new place. This has made a huge improvement in the amount of burning and pain I get when I sleep. I put Nooro on about 4 or 5 places an hour or so before I go to bed. I'm getting longer and better sleep between wake times, and fewer of them.
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Hello bowersra.....
If you like I can refer you to this doctor.
I am going to start a few sessions of Decompression bed treatments which lightly stretches your spine to separate the discs to allow the nerves to transmit normally again.
I take a b12 2000mg every day with my vitamin D3
I was told that B6 is bad for neuropathy from a specialist in IU Medical in Indianapolis…. So stop the B complex
Not sure if it helped I had taken the B’s together for 3 or 4 years…
Only take B12 now…
Want to try the B12 shot, I need a primary doctor than understand or will listen to neuropathy…
Neurologist I had was some what ok but couldn’t move on anything.. took him 1 1/2 years to get a skin punch
Where is this doctor
as far as I am concerned it is a scam, I have had better luck with a product called power plate it seems to kind of even out the level so I can get on with my life.
I would love to know if anyone has tried hyperbaric chamber sessions for neuropathy. I am out of ideas but I’ve never tried this or seen ir mentioned. Probably a scam but I’m desperate enough to fall for any scam at this point
Perfect request. Thank you. I stopped my statin to see if both my legs respond by relinquishing moderate numbness during sleep hours. After a month or two there is improvement.
Have you ever tried a hyperbaric chamber? I can’t find any personal anecdotes of anyone who has for neuropathy
I have not.
@mlee5309, You might want to look through discussion and comments on hyperbaric treatments for neuropathy I found using the search on Connect - https://connect.mayoclinic.org/search/?search=hyperbaric+treatments+for+neuropathy.
Also, there is a 2021 research article that might provide more information for you.
--- Mechanistic Rationale and Clinical Efficacy of Hyperbaric Oxygen Therapy in Chronic Neuropathic Pain: An Evidence-Based Narrative Review
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8084668/
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1 ReactionHave any of you tried the Nooro electrode? It's a patch that you charge in the wall, then place on your leg/knee/calves/etc., and push the activator on the patch to increase the electric intensity or decrease. It turns itself off in about 10 minutes, then I move it to a new place. This has made a huge improvement in the amount of burning and pain I get when I sleep. I put Nooro on about 4 or 5 places an hour or so before I go to bed. I'm getting longer and better sleep between wake times, and fewer of them.
Barb