Neuropathy pills: How to avoid scams?

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

I have been around Vitamin B supplementation since the 1960s. I never heard of what you are suggesting.

There are endless professional scientific studies indicating the clear benefits of vitamins and other supplements.

The US NIH has recognized a wide range of these things.

If there is some kind of fringe problem with vitamin B6, that is only now being discovered, then we should, by all means, attend to those issues. Of course, there may be professional studies countering the idea that these levels of B6 are dangerous, I don't know. That is the nature of professional studies. There are, frequently, professionals who disagree. I know a bit about it, my ex was a 9 year post doc cancer researcher. Oh, yes, quite true. And yes, I helped her with her grant proposals.

So, while I don't have an MD or a Phd., I do know a few things.

So, for example, you took a supplement and four months later had a medical problem. That does not mean the two things are related. There could have been other, endless causes and the B6 was only coincidental during the period when the actual cause initiated the problems.

Or not. So, I take a Tylenol. Then, I get leg cramps. Did the Tylenol cause the leg cramps? Or were the leg cramps from doing my morning jog, but jogging twice the distance I usually jog?

Dr. Weil is an MD. He went to college. He got excellent grades. He got into medical school and graduated. He is a documented expert and professional. His advice is professional advice from an MD.

Anytime, anywhere, anybody suggests some herb or tea or vitamin can aid health, there is an immediate attack that tries to suggest all such things are nonsense. If you get into the science of it, that, oh....peppermint tea has no benefit, is really like saying that a healthy salad with leafy green vegetables can't possibly be good for you. That is the nonsense, the spin, the scam, the lie.

Of course supplemental nutrients aid health. Now, if you decide to drink 100 ounces of carrot juice daily and have some kind of toxic reaction to high levels of beta-carotene? Sure. If you do anything extreme, it can be dangerous.

I used to do accounting in a funeral home. One of the directors had been a rep for Big Pharma. He told me directly, that he and the other salesmen, used to go out for beers and laugh at how little of a bribe it took, for doctors to prescribe the drugs they wanted.

So, you know...please already, with the idea that every tea bag of chamomile tea is going to end civilization. Anytime big money is involved, there is plenty of corruption. And big Pharma deals in billions. And if you want corruption ...that is home base for it. Tormenting the poor, the disabled, and seniors with ridiculous prices for their life saving medication.

I personally witnessed an elderly lady at a local business, deeply upset because the insurance made a mistake and she was going to be charged $150 for blood pressure medication that usually cost her $15. She did not have the money. She was afraid without her medication, she might die. She was a nice lady that I had dealings with. I came up with the $150 to make sure she would not drop dead.

So please, re corruption and medicine. Any system that will let a nice elderly lady drop dead, because of ridiculous obstructive and abusive rules...is the enemy of decent society.

I take a multi-vitamin with B vitamins. I honor information. I honor knowledge. Because of what you wrote, before I would engage with a B vitamin complex with a large amount of B6, yes, I will look into it.

I respect information.

"Food sources of vitamin B-6 include poultry, fish, potatoes, chickpeas, bananas and fortified cereals."

It is a natural substance. So, if you are proposing the idea that B-6 had a toxic effect on you, you really ought to investigate the full range of foods and other exposures you had during that time.
Because there is every chance, the B6 levels were coincidental, and the real danger to you is out there, undiscovered.

So, say the levels you took were the equivalent of a can of chickpeas. That would be evidence that it is probably not the B6 that caused your problem. If the levels of B6 were the equivalent of 100 cans of chickpeas, a level of the substance you would never encounter in nature...then, sure, something like that could cause a problem.

I have been around Vitamin B supplementation since the 1960s. I never heard of what you are suggesting.

There are endless professional scientific studies indicating the clear benefits of vitamins and other supplements.

The US NIH has recognized a wide range of these things.

If there is some kind of fringe problem with vitamin B6, that is only now being discovered, then we should, by all means, attend to those issues. Of course, there may be professional studies countering the idea that these levels of B6 are dangerous, I don't know. That is the nature of professional studies. There are, frequently, professionals who disagree. I know a bit about it, my ex was a 9 year post doc cancer researcher. Oh, yes, quite true. And yes, I helped her with her grant proposals.

So, while I don't have an MD or a Phd., I do know a few things.

So, for example, you took a supplement and four months later had a medical problem. That does not mean the two things are related. There could have been other, endless causes and the B6 was only coincidental during the period when the actual cause initiated the problems.

Or not. So, I take a Tylenol. Then, I get leg cramps. Did the Tylenol cause the leg cramps? Or were the leg cramps from doing my morning jog, but jogging twice the distance I usually jog?

Dr. Weil is an MD. He went to college. He got excellent grades. He got into medical school and graduated. He is a documented expert and professional. His advice is professional advice from an MD.

Anytime, anywhere, anybody suggests some herb or tea or vitamin can aid health, there is an immediate attack that tries to suggest all such things are nonsense. If you get into the science of it, that, oh....peppermint tea has no benefit, is really like saying that a healthy salad with leafy green vegetables can't possibly be good for you. That is the nonsense, the spin, the scam, the lie.

Of course supplemental nutrients aid health. Now, if you decide to drink 100 ounces of carrot juice daily and have some kind of toxic reaction to high levels of beta-carotene? Sure. If you do anything extreme, it can be dangerous.

I used to do accounting in a funeral home. One of the directors had been a rep for Big Pharma. He told me directly, that he and the other salesmen, used to go out for beers and laugh at how little of a bribe it took, for doctors to prescribe the drugs they wanted.

So, you know...please already, with the idea that every tea bag of chamomile tea is going to end civilization. Anytime big money is involved, there is plenty of corruption. And big Pharma deals in billions. And if you want corruption ...that is home base for it. Tormenting the poor, the disabled, and seniors with ridiculous prices for their life saving medication.

I personally witnessed an elderly lady at a local business, deeply upset because the insurance made a mistake and she was going to be charged $150 for blood pressure medication that usually cost her $15. She did not have the money. She was afraid without her medication, she might die. She was a nice lady that I had dealings with. I came up with the $150 to make sure she would not drop dead.

So please, re corruption and medicine. Any system that will let a nice elderly lady drop dead, because of ridiculous obstructive and abusive rules...is the enemy of decent society.

I take a multi-vitamin with B vitamins. I honor information. I honor knowledge. Because of what you wrote, before I would engage with a B vitamin complex with a large amount of B6, yes, I will look into it.

I respect information.

"Food sources of vitamin B-6 include poultry, fish, potatoes, chickpeas, bananas and fortified cereals."

It is a natural substance. So, if you are proposing the idea that B-6 had a toxic effect on you, you really ought to investigate the full range of foods and other exposures you had during that time.
Because there is every chance, the B6 levels were coincidental, and the real danger to you is out there, undiscovered.

So, say the levels you took were the equivalent of a can of chickpeas. That would be evidence that it is probably not the B6 that caused your problem. If the levels of B6 were the equivalent of 100 cans of chickpeas, a level of the substance you would never encounter in nature...then, sure, something like that could cause a problem.

My feet burn with neuropathy. A nurse friend sent me (from Amazon) a bottle of frankincense & myrrh. A very small amount rubbed into my feet actually soothes the burning pain. The bottle actually says Neuropathy on it. Use 2 or 3 times a day. Honestly helps

Are you using an essential oil straight with no carrier? I am going to try.

To everyone in this discussion:
A friendly reminder about the Community Guidelines (https://connect.mayoclinic.org/page/about-connect/tab/community-guidelines/). Please see in particular guidelines 1 and 2 excerpted here:
1. Be careful about giving out medical advice
- Sharing your own experience is fine, but don't tell other members what they should do.

2. Remain respectful at all times.
- Exercise tolerance and respect toward other participants whose views may differ from your own. Disagreements are fine, but mutual respect is a must.
- Personal attacks against members or health care providers are not acceptable. Such posts will be removed.

Be supportive. Be kind.

If anyone has further questions about the guidelines, please contact me using this form: https://connect.mayoclinic.org/contact-a-community-moderator/

With respect to vitamin B6 toxicity, see this reference from the National Institues of Health https://ods.od.nih.gov/factsheets/VitaminB6-Consumer/#:~:text=People%20almost%20never%20get%20too,they%20stop%20taking%20the%20supplements

EXCERPT:
"People almost never get too much vitamin B6 from food or beverages. However, taking high amounts of vitamin B6 from supplements for a year or longer can cause severe nerve damage, leading people to lose control of their bodily movements. The symptoms usually stop when they stop taking the supplements. Other symptoms of too much vitamin B6 include painful, unsightly skin patches, extreme sensitivity to sunlight, nausea, and heartburn.

The daily upper limits for vitamin B6 include intakes from all sources—food, beverages, and supplements—and are listed below. These levels do not apply to people who are taking vitamin B6 for medical reasons under the care of a doctor.

Life Stage Upper Limit
Birth to 12 months Not established
Children 1–3 years 30 mg
Children 4–8 years 40 mg
Children 9–13 years 60 mg
Teens 14–18 years 80 mg
Adults 100 mg
Some experts recommend lower limits for vitamin B6. For example, in 2023 the European Food Safety Authority set an upper limit for vitamin B6 of 12 mg per day for all adults, with lower amounts ranging from 2.2 to 10.7 mg per day for infants and children, depending on age."

I agree re: acupucture helps..I go every 5 weeks to keep pain levels down in my neupathic -caused pain in mt toes and big toe!

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Surely some people have found something that has helped with this awful disease. It would be so encouraging to here from anyone who could offer hope. It would even help to hear about those who have tried so called cures that have failed, at least that would warn others not to waste their money. I for one cannot just give in.