Neuropathy and constipation

Posted by korgman123 @korgman123, Nov 6, 2022

I've always had issues with constipation. I've got SFN now for 2 years in my feet and hands, numbness mainly, and notice my constipation is getting worse. Any suggestions?

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@korgman123 - I have had issues off and on for a few years with constipation and think I finally might have it under control. I'm not sure it's related to my small fiber peripheral neuropathy but it may have played a part in the problem. A few weeks ago I had bilateral inguinal hernia surgery but before the surgeon agreed to do the surgery I had to spend a little over a month getting the constipation under control. I used Miralax daily and sometimes twice daily along with an Rx of Lactulose to kick start the movements - https://www.mayoclinic.org/drugs-supplements/lactulose-oral-route/side-effects/drg-20528356. I am still taking Miralax daily but was told I can reduce the amount to see how it goes. The goal is for me not to strain when having a bowel movement to unfix the hernia surgery.

I've also worked on eater more fiber rich food to help. I found this article that talks on the topic of treating constipation and might be helpful.

-- Treatment of gastrointestinal autonomic neuropathy
https://link.springer.com/article/10.1007/s00125-015-3828-9

Have you discussed the constipation with your doctor or tried using any over the counter remedies like Miralax, fiber supplements, etc...?

REPLY
@johnbishop

@korgman123 - I have had issues off and on for a few years with constipation and think I finally might have it under control. I'm not sure it's related to my small fiber peripheral neuropathy but it may have played a part in the problem. A few weeks ago I had bilateral inguinal hernia surgery but before the surgeon agreed to do the surgery I had to spend a little over a month getting the constipation under control. I used Miralax daily and sometimes twice daily along with an Rx of Lactulose to kick start the movements - https://www.mayoclinic.org/drugs-supplements/lactulose-oral-route/side-effects/drg-20528356. I am still taking Miralax daily but was told I can reduce the amount to see how it goes. The goal is for me not to strain when having a bowel movement to unfix the hernia surgery.

I've also worked on eater more fiber rich food to help. I found this article that talks on the topic of treating constipation and might be helpful.

-- Treatment of gastrointestinal autonomic neuropathy
https://link.springer.com/article/10.1007/s00125-015-3828-9

Have you discussed the constipation with your doctor or tried using any over the counter remedies like Miralax, fiber supplements, etc...?

Jump to this post

Thanks John. I will try Miralax.

REPLY
@johnbishop

@korgman123 - I have had issues off and on for a few years with constipation and think I finally might have it under control. I'm not sure it's related to my small fiber peripheral neuropathy but it may have played a part in the problem. A few weeks ago I had bilateral inguinal hernia surgery but before the surgeon agreed to do the surgery I had to spend a little over a month getting the constipation under control. I used Miralax daily and sometimes twice daily along with an Rx of Lactulose to kick start the movements - https://www.mayoclinic.org/drugs-supplements/lactulose-oral-route/side-effects/drg-20528356. I am still taking Miralax daily but was told I can reduce the amount to see how it goes. The goal is for me not to strain when having a bowel movement to unfix the hernia surgery.

I've also worked on eater more fiber rich food to help. I found this article that talks on the topic of treating constipation and might be helpful.

-- Treatment of gastrointestinal autonomic neuropathy
https://link.springer.com/article/10.1007/s00125-015-3828-9

Have you discussed the constipation with your doctor or tried using any over the counter remedies like Miralax, fiber supplements, etc...?

Jump to this post

John - I've had on and off issues and my doc suggested I try Citrucel and that has worked well, fiber being important and yes, no doubt this can be an issue with some neuropathy.

REPLY
@johnbishop

@korgman123 - I have had issues off and on for a few years with constipation and think I finally might have it under control. I'm not sure it's related to my small fiber peripheral neuropathy but it may have played a part in the problem. A few weeks ago I had bilateral inguinal hernia surgery but before the surgeon agreed to do the surgery I had to spend a little over a month getting the constipation under control. I used Miralax daily and sometimes twice daily along with an Rx of Lactulose to kick start the movements - https://www.mayoclinic.org/drugs-supplements/lactulose-oral-route/side-effects/drg-20528356. I am still taking Miralax daily but was told I can reduce the amount to see how it goes. The goal is for me not to strain when having a bowel movement to unfix the hernia surgery.

I've also worked on eater more fiber rich food to help. I found this article that talks on the topic of treating constipation and might be helpful.

-- Treatment of gastrointestinal autonomic neuropathy
https://link.springer.com/article/10.1007/s00125-015-3828-9

Have you discussed the constipation with your doctor or tried using any over the counter remedies like Miralax, fiber supplements, etc...?

Jump to this post

A lot of us have intestinal issues especially if you taking pain medication. Yogurt is wonderful for this if eaten daily. It’s important that it has live cultures. That’s the stuff that helps. Not a solution for all but it helps.
I hope you all get a good nights rest.

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I agree with the MiraLAX. My constipation is related to slow motility, and may be related to my SFN. I showed my gastroenterologist a list of all the over-the- counter laxatives I was trying, and he recommended the MiraLAX. I can use it twice a day if needed, and not use it at all if I choose. I find that the fiber options (and foods) cause ridiculous distention and discomfort.
I also have a prescription for Motegrity, taken once a day. My dr. tried several others, and I like this one the best.

My opioid intake is pretty low these days - 7.5 mg per day. Looking back, this problem started before my pain did.

Not being able to take a brisk walk doesn’t help either!

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Medication can cause a lot of problems with constipation, I found that eating several Fiber Gummies works well for me. If I don't have the gummies then I have issues.

REPLY
@njed

John - I've had on and off issues and my doc suggested I try Citrucel and that has worked well, fiber being important and yes, no doubt this can be an issue with some neuropathy.

Jump to this post

Thank you for your reply

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I developed neuropathy first in my feet and now legs. I was diagnosed with length dependent sensory neuropathy and was referred a spine center for steroid injection for pain. I kept trying to convey to the people at the spine center that pain was not the major issue, it was lack of sensation in feet that made walking and driving a car difficult (now impossible). Around the same time I started to suffer from constipation but I did not link the two. I went to a gastroenterologist who referred me for an x-ray to see my colon, which turned out to vividly confirm constipation. He referred me for a defacography exam which indicated my neuropathy was causing a lack of proper bowel function. A colonoscopy indicated no obstructions in the bowel and the conclusion was that the problem was definitely related to the neuropathy and his solution was to recommend suppositories or enemas. I have used Miralax and the generic and it helps some but definitely not a solution.
A neurosurgeon thinks that my spinal stenosis and spine misalignment are contributing to the neuropathy. I am planning to go ahead with the spine surgery and hope it will result in some improvement. One neurosurgeon I saw felt all of my neuropathy was due to my back problems. We shall see.

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@louise1942

I developed neuropathy first in my feet and now legs. I was diagnosed with length dependent sensory neuropathy and was referred a spine center for steroid injection for pain. I kept trying to convey to the people at the spine center that pain was not the major issue, it was lack of sensation in feet that made walking and driving a car difficult (now impossible). Around the same time I started to suffer from constipation but I did not link the two. I went to a gastroenterologist who referred me for an x-ray to see my colon, which turned out to vividly confirm constipation. He referred me for a defacography exam which indicated my neuropathy was causing a lack of proper bowel function. A colonoscopy indicated no obstructions in the bowel and the conclusion was that the problem was definitely related to the neuropathy and his solution was to recommend suppositories or enemas. I have used Miralax and the generic and it helps some but definitely not a solution.
A neurosurgeon thinks that my spinal stenosis and spine misalignment are contributing to the neuropathy. I am planning to go ahead with the spine surgery and hope it will result in some improvement. One neurosurgeon I saw felt all of my neuropathy was due to my back problems. We shall see.

Jump to this post

Louise1942 I have been dealing with constipation also and learned it is a result of the pills I am taking for neuropathy. It says right on the bottle that they may cause constipation. I have changed my diet to include more ruffage foods and bran buds sprinkled on your yogurt or other things also help this problem. I also take two tabs of senicot at bed time. You can get this in any pharmacy. I would be interested in knowing if your spinal surgery works. I wish you all the best and do keep in touch. Hugs

REPLY
@louise1942

I developed neuropathy first in my feet and now legs. I was diagnosed with length dependent sensory neuropathy and was referred a spine center for steroid injection for pain. I kept trying to convey to the people at the spine center that pain was not the major issue, it was lack of sensation in feet that made walking and driving a car difficult (now impossible). Around the same time I started to suffer from constipation but I did not link the two. I went to a gastroenterologist who referred me for an x-ray to see my colon, which turned out to vividly confirm constipation. He referred me for a defacography exam which indicated my neuropathy was causing a lack of proper bowel function. A colonoscopy indicated no obstructions in the bowel and the conclusion was that the problem was definitely related to the neuropathy and his solution was to recommend suppositories or enemas. I have used Miralax and the generic and it helps some but definitely not a solution.
A neurosurgeon thinks that my spinal stenosis and spine misalignment are contributing to the neuropathy. I am planning to go ahead with the spine surgery and hope it will result in some improvement. One neurosurgeon I saw felt all of my neuropathy was due to my back problems. We shall see.

Jump to this post

My story is similar to yours. I have the neuropathy and had to have spine surgery but for a different reason. After total recovery I too added roughage to my diet, eat prunes every morning take psyllium every day and make sure to drink plenty of water. It is also important to be active. These steps have helped me maintain my GI system. If it does happen that I don't have a bowel movement for 3 days, I take Senokot as prescribed on the bottle. It is OTC. I hope this helps.

REPLY
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