Mayo Clinic Connect
Can increasing blood flow help me manage pain in my extremities diagnosed as peripheral neuropathy?
@johnbishop Yippee another coconut oil fan!!! Thanks, I needed to lighten up. Currently using lemon oil as I need a cleansing.
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It is difficult & it changes who you are. I was an on the go person & I would push thru difficult things. I have to know now that it’s a different phase of my life. I do find when I do something, my pain is less, especially when it’s meaningful. I have led a group called Hopekeepers for years and, like this group, we know what we mean when we say we have pain. I do other volunteering too. But when I hit the wall (can’t do anything) I rest. The first 10 years were the hardest – not that the pain was worst but I had to figure it all out. You can’t help feeling like you don’t want to go on some days but I think it’s important to find something you can do & take baby steps.
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Appreciate your perspective. I’m still in the “figuring out phase” with about 6 years on this journey. It can be so debilitating when you hit the wall and are forced to rest and regroup over and over again. Baby steps…!
Only using Acetametaphin occaisionally. No other pain meds. They have many side effects so I manage without. Some days, hours or minutes are worse, but at least we aren’t using lots of pain (addictive) medication.
I mostly put up with it. Was using lots of Gabapentin but have gotten off of that now..
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would exercise help? I am sometimes off balance
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Hello @homdee3041 – I think exercise is always a good thing if you are able to do it. Here are a few links that may help:
National Institutes of Health – Benefits of exercise intervention in reducing neuropathic pain
Foundation for Peripheral Neuropathy – Exercise & Physical Therapy for Peripheral Neuropathy
Balance Exercises for Neuropathy:
Thank you very much for the information. I will read all and hope to be included in and future conversation.
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Hello @growyourflow, welcome to Connect. You did pose an interesting question. I have had small fiber peripheral neuropathy for over 15 to 20 years. I do take a lot of supplements and one that I take sodium stablized Alpha Lipoic Acid mentions helps with blood flow. I don’t have a medical background or any training but have done a lot of my own digging and searching for answers. I only have numbness with my neuropathy – no pain. The one thing I’ve found is that all of the drugs for neuropathy only address the pain…and they do that by masking it and not really fixing anything.
I did do a search on http://scholar.google.com which does give you the ability to refine the search so you can look for the latest information on your topic, etc.. I used the search phrase – increase blood flow for neuropathy and it found quite a bit of info:
I ,too, have Peripheral Neuropathy with increasing numbness but no pain for 6 or 7 years. I feel that the best thing I can do is keep up my muscle strength and circulation in order to deal with the problem. So, I too take a lot of Shaklee Supplements and go once a week for a massage on my feet and legs. I’m 95 and in good health other than the Neuropathy.
May I ask whether a Tens Unit is part of your therapy for pain, as well as for numbness?
Hi John, You told your doctor that “statins make neuropathy worse”. I have stopped taking lipitor since July 4th with great results in cycling after about 5 weeks. Rode like 3-7 years ago. Now 9/20 its back to being way behind the group going uphill. Seeing my cardiologist Friday who will say its all normal changes with neuropathy and has nothing to do with the statin. Back to your statement that I still agree with. Did you read that somewhere – where or was it your experience. I need some ammunition.
Hi Bob (@downhillbob), There is not much doubt in my mind but I think it’s always a good idea to do some research. Here are the links I found when I was researching the long term affects of statins.
STATINS MAKE PN WORSE
The implications of statin induced peripheral neuropathy
Statin Neuropathy Masquerading as Diabetic Autoimmune Polyneuropathy
Medication Induced Neuropathy
I’m sure there are more if you want to do a search. I would recommend Google Scholar (https://scholar.google.com/) as you can locate the newest information by clicking on the year 2017 link at the left of the list of links it finds on your search terms.
Good for you. That is wonderful. I will check into Shaklee Products and foot message, Thank you
I have worked with Shaklee products for 42 years and would be happy to gove you information . A little about my background. I was in the first Degree Nursing Program starting in 1939 at the College of St. Teresa in Winona and St. MAry’s Hospital and the Mayo Clinic in Rochester. Graduated in 1944 and on intomthe U S Navy Nurse Corp in WWII.
I would love to know more about the Shakee products. And you really feel they have helped you/
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You a contact me at Materk94@yahoo.com
Thanks John for these very good references. I was ready for for a discussion but apparently my neurologist had tagged my chart as being “allergic” to statins based on the huge change after I quit. Going to try adding Zetia to bring the LDL down the last few numbers.
To bring you up to date on my cycling last Friday I rode 52 mi. something I used to do 3x/wk two years ago. My neuropathy “stocking” feeling has dropped from upper calf down to the ankle. Even the toes have less numbness. I feel like I got my life back and am bitter about my previous cardiologist who wouldn’t even talk about trying something else. This trade off of enjoying life so much more vs shorting my lifespan was well worth it to me being 77.
Can I ask what you are doing to get these results ? I have the numbness up just passed my knees but relatively no pain. Particular numbness in feet and feeling like they are swollen but they aren’t.
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