Multiple system atrophy (MSA) and Neuropathy

Posted by kachris @kachris, Feb 8 12:21pm

I went to all the tests & everything’s good & normal. But i still have problem with speech & writing b my bp b is normal. First diagnosed with parkinsons but turned out my dormamine is ok. Now they say I have msa. Don’t believe them anymore Help!

Would you tell me what MSA means? Have you seen a neurologist, @kachris ? A few years ago I had started taking Lyrica, when one day I became incoherent and other things that were listed as possible side effects of Lyrica. I couldn't complete a sentence and lost my memory, along with other dire symptoms. I spent a few days in the hospital. So I had to stop taking it, unfortunately. It was the first medication that relieved the pain in my feet. Bummer!

Not being able to speak or write would worry anyone. I hope you find the culprit soon.

Jim

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I am glad your test results came back normal.

I know it is difficult when we still have challenges and don't feel we have the answers we need.

As brilliant as doctors are, they still don't have the owner's manual for each of us.

For each diagnosis, how it presences symptoms can be different for everyone.

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Searched Google Chrome for MSA information.

I tried to post Mayo's MSA link describing MSA and how Mayo treats it.

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@jimhd

Would you tell me what MSA means? Have you seen a neurologist, @kachris ? A few years ago I had started taking Lyrica, when one day I became incoherent and other things that were listed as possible side effects of Lyrica. I couldn't complete a sentence and lost my memory, along with other dire symptoms. I spent a few days in the hospital. So I had to stop taking it, unfortunately. It was the first medication that relieved the pain in my feet. Bummer!

Not being able to speak or write would worry anyone. I hope you find the culprit soon.

Jim

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Multiple system atrophy (MSA)

@kachris, has Mayo accessed to see if you have Chronic Pain Syndrome or Central Sensitization? Mayo's Pain and Rehabilitation Program might be able to help you.

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@healingone

Searched Google Chrome for MSA information.

I tried to post Mayo's MSA link describing MSA and how Mayo treats it.

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@healingone, Thanks for trying @healingone, sometimes those things just happen to the best of us. Let me see if this try works.
https://www.mayoclinic.org/diseases-conditions/multiple-system-atrophy/symptoms-causes/syc-20356153
Is this it? Thanks for your participation on Connect. Be content and at ease tonight. Chris

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@artscaping

@healingone, Thanks for trying @healingone, sometimes those things just happen to the best of us. Let me see if this try works.
https://www.mayoclinic.org/diseases-conditions/multiple-system-atrophy/symptoms-causes/syc-20356153
Is this it? Thanks for your participation on Connect. Be content and at ease tonight. Chris

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Yes.

Thank you!

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@kachris, welcome to Mayo Clinic Connect. It can be a challenge to get to the bottom of a diagnosis. Multiple system atrophy (MSA) is rare. Parkinsonian type is the most common type of MSA and the signs and symptoms are similar to those of Parkinson's disease.

You posted your message in the Neuropathy group, so I was wondering, are you also experiencing peripheral neuropathy? What symptoms led you to seek a diagnosis?

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@colleenyoung

@kachris, welcome to Mayo Clinic Connect. It can be a challenge to get to the bottom of a diagnosis. Multiple system atrophy (MSA) is rare. Parkinsonian type is the most common type of MSA and the signs and symptoms are similar to those of Parkinson's disease.

You posted your message in the Neuropathy group, so I was wondering, are you also experiencing peripheral neuropathy? What symptoms led you to seek a diagnosis?

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Good morning . I don’t know if it’s Peripheral pain or not. I think it’s the ulnar nerve based on the location. I have however had vertigo testing that stated CNS ‘weakening’. I have every symptom of Parkinson but the shakes. Main symptom is my lack of balance. It’s gotten so i can fall forward, sideways or forward. I know I’m safer in a wheelchair but….. I keep trying to walk. I drag my feet when I step and my steps are small. My hand writing is also gotten small. I have double vision & my left eye waters almost constantly now. I drool at night now. DAT Scan revealed low dopamine in the right side of my brain. But an inexperienced crew performed the test. My left arm is almost useless now and I barely swings when I walk. I fell like I weigh a ton and can barely rollover in bed. Neurologists make quick assumptions based on the walk, like MS, Parkinson, MDA, PSA ( Progressive Supra nuclear Palsy) & now Hydrocephalus. Virginia claims they cant narrow my diagnoses down & my primary care Dr has referred me to Mayo which should be able to narrow it down. I pray for a miracle.

Liked by Lisa Lucier, rwinney

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Typos… backwards on falling, not 2 forwards! And MSA not MDA! Sorry, my vision has gotten bad

Liked by Lisa Lucier, rwinney

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@birdierobin

Good morning . I don’t know if it’s Peripheral pain or not. I think it’s the ulnar nerve based on the location. I have however had vertigo testing that stated CNS ‘weakening’. I have every symptom of Parkinson but the shakes. Main symptom is my lack of balance. It’s gotten so i can fall forward, sideways or forward. I know I’m safer in a wheelchair but….. I keep trying to walk. I drag my feet when I step and my steps are small. My hand writing is also gotten small. I have double vision & my left eye waters almost constantly now. I drool at night now. DAT Scan revealed low dopamine in the right side of my brain. But an inexperienced crew performed the test. My left arm is almost useless now and I barely swings when I walk. I fell like I weigh a ton and can barely rollover in bed. Neurologists make quick assumptions based on the walk, like MS, Parkinson, MDA, PSA ( Progressive Supra nuclear Palsy) & now Hydrocephalus. Virginia claims they cant narrow my diagnoses down & my primary care Dr has referred me to Mayo which should be able to narrow it down. I pray for a miracle.

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I'm sending you many, many positive thoughts and energy for a productive trip to Mayo. All the best. -Rachel

20190416_100749

Liked by lorirenee1

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@rwinney

I'm sending you many, many positive thoughts and energy for a productive trip to Mayo. All the best. -Rachel

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…and flowers!

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Thanks everyone for your positive thoughts. I am scared. Life has taken such a turn & not what anyone wants for their life

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@artscaping

@healingone, Thanks for trying @healingone, sometimes those things just happen to the best of us. Let me see if this try works.
https://www.mayoclinic.org/diseases-conditions/multiple-system-atrophy/symptoms-causes/syc-20356153
Is this it? Thanks for your participation on Connect. Be content and at ease tonight. Chris

Jump to this post

All 4 suspected disorders match so well, unfortunately. Makes my diagnosis tough! I don’t really have involuntary movements, just real slow. I forgot to mention I do have the bladder issues. So far the brain is in tack, depending on who you ask ha ha

Liked by Lisa Lucier

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Oh @kachris I am feeling ya all the way. First you have this, then that! I suffer from the same fate. MSA is rare & unkind. My mom has a nurse friend who’s best friend passed away with it. It was tough. Forgot also to mention my speech is affected too. Godspeed with your diagnosis & life.

Liked by Lisa Lucier

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@kachris, can you share what has lead them to a MSA diagnosis? And was it Mayo Clinic?

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