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kachris (@kachris)

Multiple system atrophy (MSA) and Neuropathy

Neuropathy | Last Active: Feb 10, 2020 | Replies (15)

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Good morning . I don’t know if it’s Peripheral pain or not. I think it’s the ulnar nerve based on the location. I have however had vertigo testing that stated CNS ‘weakening’. I have every symptom of Parkinson but the shakes. Main symptom is my lack of balance. It’s gotten so i can fall forward, sideways or forward. I know I’m safer in a wheelchair but….. I keep trying to walk. I drag my feet when I step and my steps are small. My hand writing is also gotten small. I have double vision & my left eye waters almost constantly now. I drool at night now. DAT Scan revealed low dopamine in the right side of my brain. But an inexperienced crew performed the test. My left arm is almost useless now and I barely swings when I walk. I fell like I weigh a ton and can barely rollover in bed. Neurologists make quick assumptions based on the walk, like MS, Parkinson, MDA, PSA ( Progressive Supra nuclear Palsy) & now Hydrocephalus. Virginia claims they cant narrow my diagnoses down & my primary care Dr has referred me to Mayo which should be able to narrow it down. I pray for a miracle.

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I'm sending you many, many positive thoughts and energy for a productive trip to Mayo. All the best. -Rachel

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