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Multiple system atrophy (MSA) and Neuropathy

Posted by kachris @kachris, Feb 8, 2020

I went to all the tests & everything’s good & normal. But i still have problem with speech & writing b my bp b is normal. First diagnosed with parkinsons but turned out my dormamine is ok. Now they say I have msa. Don’t believe them anymore Help!

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Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 10, 2020
In reply to @rwinney "I'm sending you many, many positive thoughts and energy for a productive trip to Mayo. All..." + (show)
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I'm sending you many, many positive thoughts and energy for a productive trip to Mayo. All the best. -Rachel

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...and flowers!

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Robin | @birdierobin | Feb 10, 2020

Thanks everyone for your positive thoughts. I am scared. Life has taken such a turn & not what anyone wants for their life

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Robin | @birdierobin | Feb 10, 2020
In reply to @artscaping "@healingone, Thanks for trying @healingone, sometimes those things just happen to the best of us. Let..." + (show)
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@healingone, Thanks for trying @healingone, sometimes those things just happen to the best of us. Let me see if this try works.
https://www.mayoclinic.org/diseases-conditions/multiple-system-atrophy/symptoms-causes/syc-20356153
Is this it? Thanks for your participation on Connect. Be content and at ease tonight. Chris

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All 4 suspected disorders match so well, unfortunately. Makes my diagnosis tough! I don’t really have involuntary movements, just real slow. I forgot to mention I do have the bladder issues. So far the brain is in tack, depending on who you ask ha ha

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Robin | @birdierobin | Feb 10, 2020

Oh @kachris I am feeling ya all the way. First you have this, then that! I suffer from the same fate. MSA is rare & unkind. My mom has a nurse friend who’s best friend passed away with it. It was tough. Forgot also to mention my speech is affected too. Godspeed with your diagnosis & life.

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Robin | @birdierobin | Feb 10, 2020

@kachris, can you share what has lead them to a MSA diagnosis? And was it Mayo Clinic?

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shelleystolfi | @shelleystolfi | Jul 10, 2025

It is hard to diagnose, but my husband has MSA.

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melissachev | @melissachev | Mar 7 9:47am
In reply to @birdierobin "Good morning . I don’t know if it’s Peripheral pain or not. I think it’s the..." + (show)
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Good morning . I don’t know if it’s Peripheral pain or not. I think it’s the ulnar nerve based on the location. I have however had vertigo testing that stated CNS ‘weakening’. I have every symptom of Parkinson but the shakes. Main symptom is my lack of balance. It’s gotten so i can fall forward, sideways or forward. I know I’m safer in a wheelchair but..... I keep trying to walk. I drag my feet when I step and my steps are small. My hand writing is also gotten small. I have double vision & my left eye waters almost constantly now. I drool at night now. DAT Scan revealed low dopamine in the right side of my brain. But an inexperienced crew performed the test. My left arm is almost useless now and I barely swings when I walk. I fell like I weigh a ton and can barely rollover in bed. Neurologists make quick assumptions based on the walk, like MS, Parkinson, MDA, PSA ( Progressive Supra nuclear Palsy) & now Hydrocephalus. Virginia claims they cant narrow my diagnoses down & my primary care Dr has referred me to Mayo which should be able to narrow it down. I pray for a miracle.

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@birdierobin did I get you somewhere that your blood pressure is normal?

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