@rlf66attnet , With the recent clinical advances, 'Lung Cancer' is now known to include many different types of cancer. Knowing the specific type will help your oncologist to select the most appropriate treatment. I'm sorry that you are facing this. I know how scary it can be. There have been so many advances in treatments. The outlook for us is better than ever. There are more and more of us living longer, even with stage IV disease. Will you let us know what you learn at your appointment?
@lls8000 I am finally beginnin treatment on 12/2. One round of chemo and immunotherapy. This followed by (after 21 days) another round of chemo and more immunotherapy. Doctor stated that I would be on immunotherapy indefinitely. I have NO clue as to what my results of all of this will be. However, am optimistic that I am in God's hands and the treatment will work. Pray to God all goes well. It took a long time for me to obtain treatment. This is the second oncologist I am seeing. First one took over two weeks to get all my records to my current one. All is well. Again, I pray that I will respond well to all of the chemicals which will be introduced into my body. I do have adenocarcinoma of the left lung. I had a lession removed from my right temple, it turned out to have metastesized from my left lung. I also have a small area of lymph nodes bet. both lungs which will have to be treated. I have NO mutations so, chemo is my only option for now and immnotherapy. Bless to all Happy Thanksgiving. rlf66
My stage 4 lung adenocarcinoma was diagnosed in October of 2010, so more than 15 years ago. The current treatments are standard of care because they are more effective than the one I had then.
My stage 4 lung adenocarcinoma was diagnosed in October of 2010, so more than 15 years ago. The current treatments are standard of care because they are more effective than the one I had then.
@denzie could u please tell me what it is that worked for you and has caused your longevity. It would be very much appreciated by me and many more similar to me. rlf66.
It's not really understood why I had such a complete response. I'm in a study with the NIH and Harvard Medical called the Network of Enigmatic Exceptional Responders. There are more than 100 of us. They've taken bio samples, tumor slides and asked us to complete lifestyle questionnaires.
It helped that my oncologist felt my stage 4 behaved more like a 3b and gave me the most aggressive protocol available at the time which was concurrent chemoradiation with Cisplatin and etopicide. It was extremely debilitating. Unlike todays protocol where you have 1-3 days of chemo out of 21, I had 8 days of chemo. Keytruda was not yet in trials for lung cancer.
Today's treatments have improved outcome's significantly. When diagnosed, there was a 1% chance I might survive 5 years. That number doubled several times in the early days of immunotherapy. With the introduction of new targeted treatments those numbers are improving further.
@lls8000 I am finally beginnin treatment on 12/2. One round of chemo and immunotherapy. This followed by (after 21 days) another round of chemo and more immunotherapy. Doctor stated that I would be on immunotherapy indefinitely. I have NO clue as to what my results of all of this will be. However, am optimistic that I am in God's hands and the treatment will work. Pray to God all goes well. It took a long time for me to obtain treatment. This is the second oncologist I am seeing. First one took over two weeks to get all my records to my current one. All is well. Again, I pray that I will respond well to all of the chemicals which will be introduced into my body. I do have adenocarcinoma of the left lung. I had a lession removed from my right temple, it turned out to have metastesized from my left lung. I also have a small area of lymph nodes bet. both lungs which will have to be treated. I have NO mutations so, chemo is my only option for now and immnotherapy. Bless to all Happy Thanksgiving. rlf66
I was diagnosed with stage four lung cancer in 2016 at which time they hit me with the “big guns” (chemo) which blew a hole in my right lung and was assured I’d be dead in 2 weeks, however I was busy with much unfinished business so…still here, don’t know if that helps you any but I consider myself a stage 4 cancer survivor- course that’s just so far today so… I’ve often thought that the medical team/staff whatever might kill me before the cancer gets around to it- gotta watch those guys and I’d recommend self educating and read all their medical/clinical notes as many are somewhat notorious for leaving out lots of details.
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@lls8000 I am finally beginnin treatment on 12/2. One round of chemo and immunotherapy. This followed by (after 21 days) another round of chemo and more immunotherapy. Doctor stated that I would be on immunotherapy indefinitely. I have NO clue as to what my results of all of this will be. However, am optimistic that I am in God's hands and the treatment will work. Pray to God all goes well. It took a long time for me to obtain treatment. This is the second oncologist I am seeing. First one took over two weeks to get all my records to my current one. All is well. Again, I pray that I will respond well to all of the chemicals which will be introduced into my body. I do have adenocarcinoma of the left lung. I had a lession removed from my right temple, it turned out to have metastesized from my left lung. I also have a small area of lymph nodes bet. both lungs which will have to be treated. I have NO mutations so, chemo is my only option for now and immnotherapy. Bless to all Happy Thanksgiving. rlf66
See above
See above.
My stage 4 lung adenocarcinoma was diagnosed in October of 2010, so more than 15 years ago. The current treatments are standard of care because they are more effective than the one I had then.
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3 Reactionsthanks so much.bless u. rlf66
thanks
@denzie could u please tell me what it is that worked for you and has caused your longevity. It would be very much appreciated by me and many more similar to me. rlf66.
It's not really understood why I had such a complete response. I'm in a study with the NIH and Harvard Medical called the Network of Enigmatic Exceptional Responders. There are more than 100 of us. They've taken bio samples, tumor slides and asked us to complete lifestyle questionnaires.
It helped that my oncologist felt my stage 4 behaved more like a 3b and gave me the most aggressive protocol available at the time which was concurrent chemoradiation with Cisplatin and etopicide. It was extremely debilitating. Unlike todays protocol where you have 1-3 days of chemo out of 21, I had 8 days of chemo. Keytruda was not yet in trials for lung cancer.
Today's treatments have improved outcome's significantly. When diagnosed, there was a 1% chance I might survive 5 years. That number doubled several times in the early days of immunotherapy. With the introduction of new targeted treatments those numbers are improving further.
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Like -
Helpful -
Hug
2 Reactions@rlf66, Thinking of you as you start treatment. I hope the appointments go well for you, and with minimal side effects. Be sure to hydrate.
I was diagnosed with stage four lung cancer in 2016 at which time they hit me with the “big guns” (chemo) which blew a hole in my right lung and was assured I’d be dead in 2 weeks, however I was busy with much unfinished business so…still here, don’t know if that helps you any but I consider myself a stage 4 cancer survivor- course that’s just so far today so… I’ve often thought that the medical team/staff whatever might kill me before the cancer gets around to it- gotta watch those guys and I’d recommend self educating and read all their medical/clinical notes as many are somewhat notorious for leaving out lots of details.