My nebulizer broke and I would love and appreciate any feedback/advice re what brands do you think are the best…I don’t even know where to start!
Thanks
I recently ordered from save rite pharmacy and they did not require a prescription. The ombra has several options, the breath actuated reusable cups are preferred by many on this site and can be used with the Aerobika. You can call with any questions before you place your order.
A few months ago I needed a new nebulizer, too. The Innospire I was using has been discontinued. Mayo Clinic recommended the Pari PRONEB MAX and I am very pleased. It seems to be more powerful and takes me less time to get through all my medications. Good luck.
I have the pro neb by Pari, and prefer it over the vios and Ombra. I think the higher the psi in the compressor part of your system the more force the mist comes out in the cup, which in fact is the nebulizer. Some cups break down the medication/saline into small particles of mist to aid into getting it deep into your lungs. From my experience only I’ve learned that some cups work better and faster than others, the same goes for the compressor part of the of the system. I’ve been told my BE is severe, and worst in both lower lobes in the back part and the right middle lobe. I like everyone else has had to experiment with different types to see which works best for me. I currently use the pro neb compressor, and the Vyaire misty max cup for my bronchodilator, I then wait 10-15 minutes then do 7% saline into the Pari star cup or LC plus cup, and intermittent Autogenic Drainage while doing the saline. All this in the a.m takes about an hour, but I feel it’s worth it if it helps me feel better throughout the day.
I have the pro neb by Pari, and prefer it over the vios and Ombra. I think the higher the psi in the compressor part of your system the more force the mist comes out in the cup, which in fact is the nebulizer. Some cups break down the medication/saline into small particles of mist to aid into getting it deep into your lungs. From my experience only I’ve learned that some cups work better and faster than others, the same goes for the compressor part of the of the system. I’ve been told my BE is severe, and worst in both lower lobes in the back part and the right middle lobe. I like everyone else has had to experiment with different types to see which works best for me. I currently use the pro neb compressor, and the Vyaire misty max cup for my bronchodilator, I then wait 10-15 minutes then do 7% saline into the Pari star cup or LC plus cup, and intermittent Autogenic Drainage while doing the saline. All this in the a.m takes about an hour, but I feel it’s worth it if it helps me feel better throughout the day.
What makes the difference with all the different cups for you? I haven't tried the Pari Star cup but the info says the particles are smaller and it's used for children sometimes but why a different one for the bronchodilator?
The different one for the bronchodilator was recommended for me by the Respiratory Therapist I saw. She said the location and severity of my BE, she thought this would be the best cup for the Bronchodilator. She primarily deals with cystic fibrosis patients who deal with a lot of mucus. Now I do not have cystic fibrosis but do produce 1/8-1/4 cup of mucus daily during my 3 nebbing sessions. And also the RT has over 35 years experience and was highly recommended by my Pulmonologist. As for the star cup, I was told the smaller the partical size the deeper it can get into the lungs.
The different one for the bronchodilator was recommended for me by the Respiratory Therapist I saw. She said the location and severity of my BE, she thought this would be the best cup for the Bronchodilator. She primarily deals with cystic fibrosis patients who deal with a lot of mucus. Now I do not have cystic fibrosis but do produce 1/8-1/4 cup of mucus daily during my 3 nebbing sessions. And also the RT has over 35 years experience and was highly recommended by my Pulmonologist. As for the star cup, I was told the smaller the partical size the deeper it can get into the lungs.
Hello Spider. Have you had BE a long time? Mine is also considered severe. I have had since sometime in the early 2000 years. When you say 1/8 to 1/4 is that each time or total? If you do 3 nebbing sessions, do you have 3 sets of cups or do you just reuse the same cup that was used previously? I always hesitate to reuse a cup so I have two sets for my two sessions. Do you find 3 makes a difference over two? Which cup do you like most for the saline?
Hello Spider. Have you had BE a long time? Mine is also considered severe. I have had since sometime in the early 2000 years. When you say 1/8 to 1/4 is that each time or total? If you do 3 nebbing sessions, do you have 3 sets of cups or do you just reuse the same cup that was used previously? I always hesitate to reuse a cup so I have two sets for my two sessions. Do you find 3 makes a difference over two? Which cup do you like most for the saline?
Hello Irene, I was first diagnosed with BE in March of 2021, the same day I was diagnosed with NSIP with fibrosis. Mine is considered “Traction Bronchiectasis” as the cause is from the pulmonary fibrosis. The mucus I expel is the total of all three sessions I do. And that total is always between 1/8 - 1/4 cup. I could probably get by with two sessions, am & pm but I normally do them every 6 hours or so time permitting if course. I have skipped the afternoon session at times, and have found my mucus becomes harder and seems thicker to cough up in the evening session. I use the same cup for my Bronchodilator morning and evening sessions for two consecutive days, and the same for the 7% saline, that cup is the LC Star. Now in my afternoon session I use my rescue inhaler two puffs, wait 15 minutes then do 7% in a LC plus cup, and doing intermittent Autogenic drainage. I find getting well hydrated before AND during my sessions really helps. I’m constantly sipping water with my 7% saline session each time. I usually consume 1/2 - 3/4 of a 16oz bottle each time. Mornings are much harder as the mucus has settled while sleeping, and I haven’t been able to hydrate as well. I also usually take 400mg of liquid Guaifenesin am & pm sessions, and find that that along with hydration really helps loosen the mucus especially in the morning. It’s called Geri-Tussin and I get on Amazon about $10.00 a bottle no Rx needed. I always wash my cups in the hot soapy water after the two days of use, and sterilize weekly. I have two sets of the same items in containers and that’s where they go after use. Hope this helps. Best wishes for better breathing. I also am currently on Brinsupri, and have been for 12 days, no noticeable improvement yet I’m sure to early, no noticeable side effects either though.
Hello Irene, I was first diagnosed with BE in March of 2021, the same day I was diagnosed with NSIP with fibrosis. Mine is considered “Traction Bronchiectasis” as the cause is from the pulmonary fibrosis. The mucus I expel is the total of all three sessions I do. And that total is always between 1/8 - 1/4 cup. I could probably get by with two sessions, am & pm but I normally do them every 6 hours or so time permitting if course. I have skipped the afternoon session at times, and have found my mucus becomes harder and seems thicker to cough up in the evening session. I use the same cup for my Bronchodilator morning and evening sessions for two consecutive days, and the same for the 7% saline, that cup is the LC Star. Now in my afternoon session I use my rescue inhaler two puffs, wait 15 minutes then do 7% in a LC plus cup, and doing intermittent Autogenic drainage. I find getting well hydrated before AND during my sessions really helps. I’m constantly sipping water with my 7% saline session each time. I usually consume 1/2 - 3/4 of a 16oz bottle each time. Mornings are much harder as the mucus has settled while sleeping, and I haven’t been able to hydrate as well. I also usually take 400mg of liquid Guaifenesin am & pm sessions, and find that that along with hydration really helps loosen the mucus especially in the morning. It’s called Geri-Tussin and I get on Amazon about $10.00 a bottle no Rx needed. I always wash my cups in the hot soapy water after the two days of use, and sterilize weekly. I have two sets of the same items in containers and that’s where they go after use. Hope this helps. Best wishes for better breathing. I also am currently on Brinsupri, and have been for 12 days, no noticeable improvement yet I’m sure to early, no noticeable side effects either though.
Thanks! The liquid Geri Tussin sounds interesting. Never heard of that. I have to wait for Brinsupri until I get on Medicare Part D which I currently do not have. Your mucus amount is not that much so that is good. And it does not sound like you are battling any infections? I tried the LC cup this morning. It takes much longer than the sprint cups. I have not done 3 sessions of nebulizing a day because I do not like to reuse a previously used cup without soaking it and letting it totally dry out. I would need to purchase a third set. So far I do 2 sessions am and late afternoon/early evening. Take care.
I’m surprised you dont think my mucus amount is not that much! Both of my Pulmonologists think it is a lot. I really don’t know what others expel, so I don’t really know what is considered normal or a lot. Hope if you try the Geri-Tussin it helps you. I tried the LC sprint and yes much faster, but I thought less efficient. Couldn’t bring up much mucus at all.
@spider109@irenea8
My big question for you both. How can you get an actual measurement on the amount of mucus you bring up and out? I ask because when I remove what comes up into the clear solo cup it has more than mucus from what I can tell. Such as moisture/water, saliva and as well the mucus and mucus plugs. It appears to me when I put the solo cup up to the light I see thick mucus and mucus plugs along with some saliva and much moisture/water.
Have you come across information that indicates how much mucus is a lot in terms of mL?
Barbara
I recently ordered from save rite pharmacy and they did not require a prescription. The ombra has several options, the breath actuated reusable cups are preferred by many on this site and can be used with the Aerobika. You can call with any questions before you place your order.
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1 ReactionI have this Pro-neb max, too, and like it much more than my first. It's loud though- I use headphones.
I have the pro neb by Pari, and prefer it over the vios and Ombra. I think the higher the psi in the compressor part of your system the more force the mist comes out in the cup, which in fact is the nebulizer. Some cups break down the medication/saline into small particles of mist to aid into getting it deep into your lungs. From my experience only I’ve learned that some cups work better and faster than others, the same goes for the compressor part of the of the system. I’ve been told my BE is severe, and worst in both lower lobes in the back part and the right middle lobe. I like everyone else has had to experiment with different types to see which works best for me. I currently use the pro neb compressor, and the Vyaire misty max cup for my bronchodilator, I then wait 10-15 minutes then do 7% saline into the Pari star cup or LC plus cup, and intermittent Autogenic Drainage while doing the saline. All this in the a.m takes about an hour, but I feel it’s worth it if it helps me feel better throughout the day.
-
Like -
Helpful -
Hug
2 ReactionsWhat makes the difference with all the different cups for you? I haven't tried the Pari Star cup but the info says the particles are smaller and it's used for children sometimes but why a different one for the bronchodilator?
-
Like -
Helpful -
Hug
1 ReactionThe different one for the bronchodilator was recommended for me by the Respiratory Therapist I saw. She said the location and severity of my BE, she thought this would be the best cup for the Bronchodilator. She primarily deals with cystic fibrosis patients who deal with a lot of mucus. Now I do not have cystic fibrosis but do produce 1/8-1/4 cup of mucus daily during my 3 nebbing sessions. And also the RT has over 35 years experience and was highly recommended by my Pulmonologist. As for the star cup, I was told the smaller the partical size the deeper it can get into the lungs.
Hello Spider. Have you had BE a long time? Mine is also considered severe. I have had since sometime in the early 2000 years. When you say 1/8 to 1/4 is that each time or total? If you do 3 nebbing sessions, do you have 3 sets of cups or do you just reuse the same cup that was used previously? I always hesitate to reuse a cup so I have two sets for my two sessions. Do you find 3 makes a difference over two? Which cup do you like most for the saline?
Hello Irene, I was first diagnosed with BE in March of 2021, the same day I was diagnosed with NSIP with fibrosis. Mine is considered “Traction Bronchiectasis” as the cause is from the pulmonary fibrosis. The mucus I expel is the total of all three sessions I do. And that total is always between 1/8 - 1/4 cup. I could probably get by with two sessions, am & pm but I normally do them every 6 hours or so time permitting if course. I have skipped the afternoon session at times, and have found my mucus becomes harder and seems thicker to cough up in the evening session. I use the same cup for my Bronchodilator morning and evening sessions for two consecutive days, and the same for the 7% saline, that cup is the LC Star. Now in my afternoon session I use my rescue inhaler two puffs, wait 15 minutes then do 7% in a LC plus cup, and doing intermittent Autogenic drainage. I find getting well hydrated before AND during my sessions really helps. I’m constantly sipping water with my 7% saline session each time. I usually consume 1/2 - 3/4 of a 16oz bottle each time. Mornings are much harder as the mucus has settled while sleeping, and I haven’t been able to hydrate as well. I also usually take 400mg of liquid Guaifenesin am & pm sessions, and find that that along with hydration really helps loosen the mucus especially in the morning. It’s called Geri-Tussin and I get on Amazon about $10.00 a bottle no Rx needed. I always wash my cups in the hot soapy water after the two days of use, and sterilize weekly. I have two sets of the same items in containers and that’s where they go after use. Hope this helps. Best wishes for better breathing. I also am currently on Brinsupri, and have been for 12 days, no noticeable improvement yet I’m sure to early, no noticeable side effects either though.
-
Like -
Helpful -
Hug
2 ReactionsThanks! The liquid Geri Tussin sounds interesting. Never heard of that. I have to wait for Brinsupri until I get on Medicare Part D which I currently do not have. Your mucus amount is not that much so that is good. And it does not sound like you are battling any infections? I tried the LC cup this morning. It takes much longer than the sprint cups. I have not done 3 sessions of nebulizing a day because I do not like to reuse a previously used cup without soaking it and letting it totally dry out. I would need to purchase a third set. So far I do 2 sessions am and late afternoon/early evening. Take care.
I’m surprised you dont think my mucus amount is not that much! Both of my Pulmonologists think it is a lot. I really don’t know what others expel, so I don’t really know what is considered normal or a lot. Hope if you try the Geri-Tussin it helps you. I tried the LC sprint and yes much faster, but I thought less efficient. Couldn’t bring up much mucus at all.
@spider109 @irenea8
My big question for you both. How can you get an actual measurement on the amount of mucus you bring up and out? I ask because when I remove what comes up into the clear solo cup it has more than mucus from what I can tell. Such as moisture/water, saliva and as well the mucus and mucus plugs. It appears to me when I put the solo cup up to the light I see thick mucus and mucus plugs along with some saliva and much moisture/water.
Have you come across information that indicates how much mucus is a lot in terms of mL?
Barbara