National Jewish Health Patient Conference tomorrow’4/27

Posted by becleartoday @becleartoday, Apr 26 5:19am

Are you all set for the National Jewish Health Bronchiectasis and NTM Patient Conference tomorrow, Saturday, April 27th? I know I am!

While the agenda includes discussions on NTM lung disease, you can skip those sessions if they don’t apply to you. Instead, tune into topics like bronchiectasis, nutrition, and airway clearance.

For those struggling with being underweight, Michelle MacDonald, the nutrition supervisor at NJH, will share invaluable tips to help you gain healthy pounds. Maintaining a BMI above 18.5 is linked to a better prognosis and being underweight might exclude you from certain clinical trials.

To register for tomorrow’s conference, click here:
https://www.nationaljewish.org/NTMPatient2024

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

scoop | @scoop | Apr 26 11:26am

Looks interesting and apropos! Thank you for posting. @becleartoday -- If you have signed up in years past and paid the conference fee in what form do the materials you have access to afterwards look like? Youtube recordings? I'm not crazy about giving up a Saturday in spring to sit in front of the computer. I know the trade off would be not be able to ask questions. That said, I'm good friends with the speed setting on YouTube videos!

becleartoday | @becleartoday | Apr 26 11:30am

I hear you! I actually listen while I’m taking a walk. I like to listen live because of the questions at the end. I find them very helpful and I’m not sure they’re included with the recording. With that said there will be a recording available at some point.

lilianna | @lilianna | Apr 27 8:51am

Yes I signed up two days ago and I have not been sent a link to participate. Strange.

becleartoday | @becleartoday | Apr 27 9:21am

You can reach out to this email and perhaps they can send it to you:
proed@njhealth.org

@ling | @wangling | Apr 27 3:02pm

In reply to @becleartoday "You can reach out to this email and perhaps they can send it to you: proed@njhealth.org" + (show)

Thank you so much for posting the info. On its website under Bronchiectasis Treatment Program ---
it says:
National Jewish Health doctors have evaluated and treated bronchiectasis for decades. Currently, National Jewish Health scientists are investigating new treatments for bronchiectasis. They are also pursuing aggressive treatment programs designed to minimize or prevent the occurrence of bronchiectasis.
I wonder what new treatments and aggressive treatment programs do they mean. If they mentioned it at the conference.
Ling

becleartoday | @becleartoday | Apr 27 3:20pm

Here is a slide. The conference focused more on NTM

becleartoday | @becleartoday | Apr 27 3:23pm

He mentioned several clinical trials and provided this slide.

kssunflower | @kssunflower | Apr 27 6:24pm

Thank you so much for having shared the link. I learned many new things today!

becleartoday | @becleartoday | Apr 27 6:26pm

Me too!!:)