Nasopharyngeal carcinoma ENT CANCER

Posted by contulmeuvila2218 @contulmeuvila2218, 5 days ago

Hello everyone,
I’m a cancer survivor who was treated for nasopharyngeal cancer in 2009. I experience some mild side affects, but overall I recovered well . However, in 2022 (13 years later), I suddenly developed difficulty moving my tongue and speaking clearly. I have seen multiple ENT specialists, but so far I haven’t received a clear diagnosis or effective treatment, only exercises have been recommended:( I would like to ask if anyone here has experienced something similar and whether you found any improvement with other treatments or approaches beyond exercise?
Thank you very much in advance for your help!

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Hi @contulmeuvila2218
I'm on the ENT journey too.
I practice mindfulness & meditation.
This routine has helped me to stay grounded.
I hope you get some solution really soon.
Maybe ask for a biopsy?
That's what I had for tongue tumour.
Be well.

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Profile picture for zenren14 @zenren14

Hi @contulmeuvila2218
I'm on the ENT journey too.
I practice mindfulness & meditation.
This routine has helped me to stay grounded.
I hope you get some solution really soon.
Maybe ask for a biopsy?
That's what I had for tongue tumour.
Be well.

Jump to this post

@zenren14 it’s nothing tumorous-I’ve had a pet-ct. There are just delayed effects of radiotherapy , a lot of fibrosis. I also undergo lung aspiration. I’m looking into whether there are any alternatives besides exercises.

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Profile picture for contulmeuvila2218 @contulmeuvila2218

@zenren14 it’s nothing tumorous-I’ve had a pet-ct. There are just delayed effects of radiotherapy , a lot of fibrosis. I also undergo lung aspiration. I’m looking into whether there are any alternatives besides exercises.

Jump to this post

@contulmeuvila2218
I had a radical neck dissection (scar tissue feels like a zipper).
Aspiration is very common in HNC.
Do you go for a lung test?
Sounds like your keeping on top of things!

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Sure, I m under supervision, I’m just looking for alternatives, not only exercise . I am 47 years old and I know the situation will worsen-i don’t want to wait until the last moment.
Thank you!

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