My wife has Parkinson’s disease. Can she participate in a research?

Posted by jameswright @jameswright, Dec 19, 2023

Is there a Mayo number to call for my wife(has Parkinson’s) to participate in a research study for stem cell therapy?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Teresa, Volunteer Mentor | @hopeful33250 | Dec 20, 2023

Hello @jameswright and welcome to Connect. If you are interested in learning more about clinical trials at Mayo Clinic, here is the website where you can find more information, https://www.mayo.edu/research/clinical-trials/about-clinical-studies. As you can see, there is a phone number where you can call.

Also, here is a link to the National Library of Medicine, where you can search for clinical trials worldwide.
https://www.clinicaltrials.gov/

As this is your first post, and as you are comfortable doing so, please share a bit more about your wife's journey with Parkinson's. Is Parkinson's a new diagnosis for your wife? What symptoms are the most difficult for her right now?

tsch | @tsch | Dec 20, 2023

University of Indiana has a long term study for people with and without PD. Funded in part thru Michael J. Fox Foundation. My husband participating- but does not have PD.

jameswright | @jameswright | Dec 20, 2023

Thanks for that info. Much appreciated.

Teresa, Volunteer Mentor | @hopeful33250 | Dec 20, 2023

In reply to @jameswright "Thanks for that info. Much appreciated." + (show)

I would be interested in hearing what you learn about stem cell therapy. Would you be so kind as to post an update if you find a clinical trial such as this?

Teresa, Volunteer Mentor | @hopeful33250 | Dec 20, 2023

In reply to @tsch "University of Indiana has a long term study for people with and without PD. Funded in..." + (show)

Hello @tsch

Thanks for adding to this discussion about clinical trials and studies. If you are comfortable doing so, would you please share the type of study your husband is involved in? Does it involve new medications or treatments?

jameswright | @jameswright | Dec 20, 2023

In reply to @hopeful33250 "I would be interested in hearing what you learn about stem cell therapy. Would you be..." + (show)

Yes, I will do that Teresa.

jameswright | @jameswright | Dec 20, 2023

In reply to @hopeful33250 "Hello @jameswright and welcome to Connect. If you are interested in learning more about clinical trials..." + (show)

Did you receive my reply regarding my wife’s PD onset?

tsch | @tsch | Dec 20, 2023

In reply to @hopeful33250 "Hello @tsch Thanks for adding to this discussion about clinical trials and studies. If you are..." + (show)

It involves alot: he just had a scan looking at ldopa in the brain, upcoming could be spinal tap, blood tests, and a skin punch. A participant can opt out at any time, and many medical centers are involved. This study started 12 years ago I believe. All costs are covered for the participant. Person will be followed for 5 years at least I think. My husband is participating just to aid science. The letters PPMI may be meaningful.

tsch | @tsch | Dec 20, 2023

In reply to @tsch "It involves alot: he just had a scan looking at ldopa in the brain, upcoming could..." + (show)

PS, this is not a study to treat people, it is looking for ways to identify the disease early I think. So there are no meds or treatments to benefit the participant, as far as I know.

tsch | @tsch | Dec 20, 2023

In reply to @hopeful33250 "Hello @tsch Thanks for adding to this discussion about clinical trials and studies. If you are..." + (show)

PS, this is not a study to treat people, it is looking for ways to identify the disease early I think. So there are no meds or treatments to benefit the participant, as far as I know. I hope this gets to the moderator!