My wife had two life threatening episodes of aneurysms episodes

Posted by umarhameed @umarhameed, Sep 19 6:58am

My wife had recently two life threatening episodes of aneurysm rupture in abdomen and even once she was declared dead . But thanks to God that she came back . She is factor V111 deficient . The factors are given now and they helped. In both episodes she was in shock and bleeding was severe .
In first episode she had abdominal bleeding and in second Heamoptesis . (GI bleed ) . Both times CECT was done which showed abdominal vein rupture . In first episode she did not bleed from mouth or stools but second time she did. Doctors from Gastroenterologist say that there is GI problem and that’s why blood came from mouth. Bit IR radiologist who did the coiling and glue procedures say that the blood has eroded from abdomen to duedonem and that’s why blood has come from mouth and anal cavity. Now endoscopy is to be done to track if there any ulceration in stomach , duedonum . Please advice how can i save my wife from further episodes of aneurysm ruptures . What measures can i take to prevent this though factor V111 is being given now regularly. PLEASE ADVICE

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Hi @umarhameed, welcome to Mayo Clinic Connect. Mayo Clinic Connect is an online community where people can share experiences and ask each other questions about any health issue to help each other learn more about their situation and possible questions to discuss with their providers. If you would like to seek the opinion of Mayo Clinic experts, please contact Mayo Clinic Appointments, https://mayocl.in/1mtmR63.

You and your wife have both endured quite a bit trying to find out what is going on with her aneurysms. It sounds like your providers are hoping to find the root cause with your wife's upcoming endoscopy. Is the goal of this procedure to find any more potential aneurysms before they rupture? How is your wife recovering and handling these difficult situations? How are you coping as a caregiver?

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Hi @umarhameed, welcome to Mayo Clinic Connect. Mayo Clinic Connect is an online community where people can share experiences and ask each other questions about any health issue to help each other learn more about their situation and possible questions to discuss with their providers. If you would like to seek the opinion of Mayo Clinic experts, please contact Mayo Clinic Appointments, https://mayocl.in/1mtmR63.

You and your wife have both endured quite a bit trying to find out what is going on with her aneurysms. It sounds like your providers are hoping to find the root cause with your wife's upcoming endoscopy. Is the goal of this procedure to find any more potential aneurysms before they rupture? How is your wife recovering and handling these difficult situations? How are you coping as a caregiver?

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Hello , thanks for your response . The endoscopy was done to rule out if there are any ulcerations in stomach or duodenum. But there was not any ulceration found so the doctors were of the opinion that bleeding was due to pseudo aneurysms.
Please advice how can we stop aneurysm formation ? How can we detect the early formation of aneurysm before they rupture ? What are the medicines and diet which can help to stop building up aneurysms ?
PLEASE ADVICE

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Doctors seem to be trained to fix problems after they are discovered, apparently not to prevent any problems. Factor VIII is a protein which helps the coagulation of blood. You may already be aware of several things we ingest that can contribute to the thinning of blood. It won't help now because your spouse is in the broken stage. The doctors can fix that. But due to your spouses factor VIII condition, in the future she needs to be aware of all of those things that can thin the blood. Three of my family have intrinsic factor and need to take vitamin B12 shots regularly. I asked my Doctor if I have intrinsic factor & he said no. But I had some of the same symptoms as my family members. So I started researching and found that I was taking a proton pump inhibitor for a hiatal hernia that shuts off 90% of acid in my stomach. And guess what, vitamin B12 requires acid to react with it so the B12 can be absorbed in the small intestine. I found that Costco has a Vitamin B12 that is absorbed sublingually, directly into the blood stream. Symptoms gone and energy back. So, you are smart to ask the community for help. Your spouse will probably be asked to have cat scans for the foreseeable future. That is how doctors can engage in prevention. Veins and arteries have no nerves and therefore there is no pain. That is the reason for the periodic scans. It sounds like your spouse is in good hands now. Good luck.

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