Cauda equina syndrome (CES)

Posted by sheabebabe @sheabebabe, May 2, 2017

2011 I started with pain down my legs I could hardly walk it was so painful. After the MRI didn’t come out well at a clinic I went to the hospital suicidal saying I’d rather die than live like that another day. They did MRI and found I had L5S1 slipped disk. They admitted me for pain management and started me on pain meds. I was relived finally I knew what was wrong and had meds to help the pain. Found a pain clinic and my first injection was wonderful took the shooting leg pain away. I tried a couple more with little success then the last on he knick something which caused a large hematoma. So very painful. Swore I’d never do it again. Last nov I turned from the sink heard a pop and instant pain I thought it was like other times where some prednisone would do the trick. It got worse I started loosing feeling below and pee just poured out when I stood. I went right to ER. The surgery they said I could not have because of weight was finally being done. 5 months later I still have tons of nerve type pain and I have a foley cuz I have Cauda equina syndrome (CES).

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I have had symptoms of CES since I had a burst fracture of L1 over 4 years ago. Wasn't diagnosed until recent. So has anyone had success in decreasing this horrific nerve pain? Seeing 2nd surgeon this month. Haven't had any decompression, or any surgery regarding this. It all may be too late.

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I am 38 and new to CES. In July 2018 my back started to hurt. I stepped out onto my front porch heard a pop, drop to my knees and lost all feeling in my right leg. Had my children help me to my bed call the ambulance. When the ambulance arrived they asked me to sit up so I did and I heard another pop screamed from the pain and almost blacked out. Lost all the feeling from the waist down. Arrived at my local hospital where they give me pain medicine told me to go home and call my local provider. I was not satisfied with that so I had a friend drive me 2 hours to another hospital. The hospital gave me an emergency MRI and told me I had to have surgery right away. (I went in to emergency surgery only 3-4 hours after the nerves were compressed). When I woke from surgery I had little feeling in the front of my legs, none in the back of my legs, and my whole saddle area is numb/on fire. I did physical therapy but that cause a lot of pain. I ended up having surgery again Feb 2019. I still have lots of pain and it seems nothing is getting better. I take 100 mg Lyrica 2 times a day and spend 90% of my time in bed. It hurts to walk, sit, or function like a normal person. No one understands.

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@briannan

I am 38 and new to CES. In July 2018 my back started to hurt. I stepped out onto my front porch heard a pop, drop to my knees and lost all feeling in my right leg. Had my children help me to my bed call the ambulance. When the ambulance arrived they asked me to sit up so I did and I heard another pop screamed from the pain and almost blacked out. Lost all the feeling from the waist down. Arrived at my local hospital where they give me pain medicine told me to go home and call my local provider. I was not satisfied with that so I had a friend drive me 2 hours to another hospital. The hospital gave me an emergency MRI and told me I had to have surgery right away. (I went in to emergency surgery only 3-4 hours after the nerves were compressed). When I woke from surgery I had little feeling in the front of my legs, none in the back of my legs, and my whole saddle area is numb/on fire. I did physical therapy but that cause a lot of pain. I ended up having surgery again Feb 2019. I still have lots of pain and it seems nothing is getting better. I take 100 mg Lyrica 2 times a day and spend 90% of my time in bed. It hurts to walk, sit, or function like a normal person. No one understands.

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@briannan I'm so sorry for your pain and situation I had 2back fractures L2L4 The Dr sent me to the orthopedic Dr for 3months I was in a turtle shell brace my legs where also numb at first and had to lift my hips to turn in bed.Then water therapy that's better for you then on land for 9 months. HAVE YOU SEEN THE ORTHOPEDIC DR? If your PCP isn't helping you see a Orthopedic Dr Your to Young for this I hope you come back and let us know how your doing, connect is a good group and caring group I send you my Welcome Linda

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@briannan

I am 38 and new to CES. In July 2018 my back started to hurt. I stepped out onto my front porch heard a pop, drop to my knees and lost all feeling in my right leg. Had my children help me to my bed call the ambulance. When the ambulance arrived they asked me to sit up so I did and I heard another pop screamed from the pain and almost blacked out. Lost all the feeling from the waist down. Arrived at my local hospital where they give me pain medicine told me to go home and call my local provider. I was not satisfied with that so I had a friend drive me 2 hours to another hospital. The hospital gave me an emergency MRI and told me I had to have surgery right away. (I went in to emergency surgery only 3-4 hours after the nerves were compressed). When I woke from surgery I had little feeling in the front of my legs, none in the back of my legs, and my whole saddle area is numb/on fire. I did physical therapy but that cause a lot of pain. I ended up having surgery again Feb 2019. I still have lots of pain and it seems nothing is getting better. I take 100 mg Lyrica 2 times a day and spend 90% of my time in bed. It hurts to walk, sit, or function like a normal person. No one understands.

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Have you tried a Transcutaneus Electrical Nerve Stimulator ( TENS)out side the body. electrodes above and below back pain and crossed. I used them all the time as a physical Thearpist. Interferential surging type also worked, I know nothing about implants, but this foegotten therapy did give relief..for a while.

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