← Return to Cauda Equina Syndrome: Pain, symptoms, management & prognosis

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@lorirenee1

Hi Skip,
I do not have what you have at all, except that after breast cancer surgery, within 4 weeks, I developed severe nerve damage in my feet, and pretty much have severe pain on a daily basis; thank God, not all day, but parts of the day. I know what excruciating pain feels like. So I am posting all the things that have helped me, in that they might help you. The meds, such as Gabapentin, Lyrica,....the ones to treat nerve pain, have not worked that well, but take the edge off. What has helped, but only at times. are Lidocaine patches, 5% Lidocaine, prescription dose. You put the patch on wherever hurts, and it numbs the area all day. There are 2 products that have helped me tremendously for immediate pain, when you can't take it anymore. They are CBD products that I researched on line for hours, and come from two different companies. Maybe they will help you. One is a salve, that you rub into areas that hurt, and it helps immediately. It is a Godsend for me. It is from the Ananda CBD oil company. They have only one salve, so you cannot buy the wrong one. It is about twenty five dollars, and worth every penny. The other product is a tincture, and you put the CBD drops under your tongue. It is very relaxing and distances you from your pain. You don't get high from it, but it creates immediate relaxation. This product is from the CBD oil Distillery company. I use the 1000 mg. CBD oil, and stick drops under my tongue. There are two 1000 mg. products, and I use the one that is about 5 bucks more, because it contains a bit of marijuana in it, is still legal, and works so well. You may explore even stronger milligrams. I am also exploring getting stem cells. Living with pain is no joke, and you have way beyond this. To be frank, Lawsuit also came to mind when I read about you. Get all your surgical records, a good malpractice lawyer, and find out what happened to you. I hope you don't mind me saying that. I just go really upset after reading the horror you are going through.

God bless, and regards in your journey...

Lori Renee

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Replies to "Hi Skip, I do not have what you have at all, except that after breast cancer..."

Hi Lori, sorry for not responding sooner, seems I spend most of my time at Doctor visits. Sorry to hear about your cancer, are you in remission? I hope so. I have looked into CBD oils, currently I'm a medical marijuana patient, found a strain of weed that seems to help some with pain and I'll take anything I can get. The strain is White Widow, everyone has their own strains so it depends on where you purchase seeds from, not all White Widow strains will be the same. Marijuana helps me with a lot of things that I deal with like insomnia and at times just getting through the day. Talked to my new Surgeon, he ordered EMG test on both legs and discussed another surgery that may help but I'm real gun shy about more surgeries, at least right away. He asked me if I had a Lawyer, I was a bit hesitant but I said yes and the reason he asked was he felt it was important that they get his records as well. Seems the surgery he says I need was caused by the surgery I just had. So far two Doctors have made suggestions that I should sue the Surgeon that did my surgery. The idea of suing someone doesn't sit well with me but someone needs to pay for what they did to me. I'm 61 and feel I have some years ahead of me but now the prospect is dim.