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galords
@galords

Posts: 1
Joined: Jul 22, 2018

My son’s seizures are always 25 to 30 minutes after he wakes up.

Posted by @galords, Sun, Jul 22 4:08pm

My 33 yr old son started having seizure’s 9 yrs ago. He is currently on a high dose of 2 meds that do not seem to be working. He has not been able to drive now for 3 years after a head on collision occurring 30 minutes after got up to go to work because a worker called in sick. Any suggestions on what to do. He has had 6 seizures in 7 weeks & all have been 25 to 30 minutes after he gets up. He has had several injuries from the seizures requiring emergency room visits. Any ideas on what to do next?

Liked by cjsims

REPLY

@galords

My first question is does your son get at least 8-10 hours of sleep? Does he have any sleep disorders,
like insomnia or sleep apnea or sleep walking etc?

Although some people with Epilepsy can drink alcoholic beverages without seizures others can’t and it can affect sleep habits and also be seizure triggers.
This type of seizure is frequently associated with going out drinking and getting to bed late. Could this be possible?
I would imagine your son is having Tonic Clonic seizures. Has anyone said he’s having myoclonic seizures? You didn’t mention what meds he was on. Is one of the them Depacote / Divalproex by chance? You mentioned he was on two medications. Has he only been on two medications or has he been on others?
Jake

Unfortunately injuries and seizures go together. Be careful and don’t take chances.

Welcome to Connect, @galords,

As a parent, I can see how worrying this must be! After a bit of research, I found this information, particularly about the fact that your son's seizures occur after he wakes up:
In juvenile myoclonic epilepsy (JME), seizures often happen within 30 minutes to an hour of waking up in the morning or after a nap. A cluster of myoclonic jerks may be a warning sign that a tonic-clonic seizure is coming. https://www.epilepsy.com/learn/types-seizures/myoclonic-seizures
I'd also like to bring @sarahlou @dawn_giacabazi @sall and @kerivb into this discussion as they have talked about myoclonic, nocturnal and/or tonic-clonic seizures in the past.

@galords, may I ask if you would share a few more details? What medications is your son taking? Have the doctors offered an explanation as to what may be causing the seizures to occur so frequently?

Need more info, son’s age, what is his epilepsy diagnosis, and same questions as @galords? From what I know that is pretty common, if they have Juvenile Myoclonic Epilepsy

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