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Welcome to Connect, @galords,

As a parent, I can see how worrying this must be! After a bit of research, I found this information, particularly about the fact that your son's seizures occur after he wakes up:
In juvenile myoclonic epilepsy (JME), seizures often happen within 30 minutes to an hour of waking up in the morning or after a nap. A cluster of myoclonic jerks may be a warning sign that a tonic-clonic seizure is coming. https://www.epilepsy.com/learn/types-seizures/myoclonic-seizures
I'd also like to bring @sarahlou @dawn_giacabazi @sall and @kerivb into this discussion as they have talked about myoclonic, nocturnal and/or tonic-clonic seizures in the past.

@galords, may I ask if you would share a few more details? What medications is your son taking? Have the doctors offered an explanation as to what may be causing the seizures to occur so frequently?

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Replies to "Welcome to Connect, @galords, As a parent, I can see how worrying this must be! After..."

My daughter only has seizures at nights between 1am and 3am could this be JME? Doctors are not sure if this is epileptic or not her seizures emulate epilepsy but a lot of times she controls the jerking through breathing and it goes away