Questions about Reclast for osteoporosis.

Posted by phoebejo @phoebejo, Apr 16, 2016

My endocrinologist has recently recommended Reclast for my osteoporosis. I have TMJD and also type 2 diabetes which I believe puts me at greater risk for a heart condition. My research indicates that side effects of Reclast can do damage to the heart (atrial fibrillation) and bone disfuregurement in the jaw. I. Would like to know when Reclast was introduced and the efficacy stated in percentages. I have seen information that indicates fatal outcomes for small numbers but nothing to compare that too in terms of successful treatment.

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@friend123

I just had an appointment with my endocrinologist and he wants me to try either Fosamax or Reclast. I am in good health but am terrified reading the side effects. He has asked me to do a blood test and 24 hr urine test before we discuss which treatment would be best. I’m scared! 😱

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Welcome to Connect. Please know that your post is quite appropriate given that you are encountering a very important decision in your life. I don't know enough about you to make any decisive comments. Both of these medications have been selected by quite a few Connect members. I will start with myself.

Fosamax was my endocrinologist's choice for me after two years of successful bone-building with Tymlos. It seems to fit my body's preferences and I will find out if it has helped maintain my Dexa scores in a few months. I have had no side effects for almost two years.

My very close friend, Patsy has been a Reclast patient for several years. She just turned 70 last week and will soon find out if her bone density has remained satisfactory.

It does seem like we all have slightly different response issues. The only caution I might share with you is to think ahead. If you need or want to have significant bone growth, you should probably not start with either of these options. Tymlos, Forteo, and Evenity are the three medications that foster bone growth and based upon your age and your Dexa scores may be helpful at this point.

May you be safe, protected, and free from inner and outer harm.

Chris

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Hi Chris,
Thank you so much for your quick response! Before my appointment, I did a little research and asked my doctor about the three meds you mentioned. He told me they were more for people in more advanced stages. I was curious about them because they seem to have fewer side effects. I'll be curious as to how my urine results and blood work come back. It is such a difficult decision. He also was very thorough in his questions about my health. It was a Zoom call but he spent at least 45 with me to get a complete history. My bone scan came as a result of my breast cancer diagnosis. Thank God everything turned out fine and I opted not to go on Femara or Aromasin due to the osteo diagnosis

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I've had 3 Reclast infusions (2019, 2021, 2023) and was sick for a few days after each. Mostly mild flu-like symptoms (none of the rare reactions). Reclast did improve my T scores (bone density), but I had minor osteoporosis to begin with (69 yo). I also take calcium and magnesium citrate, D3, and lift weights to increase bone density. I have a friend with severe osteoporosis that has been taking Reclast pills for some years; it reversed or stopped the progression but had the side effect of losing her smell and taste. Don't know why she opted for pills rather than the infusion.

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My gynecologist wanted to put me on a liquid medication that she wouldn't name but she said she doubts my insurance would cover it. I told her they would. She said it would help stop bone loss and actually help to grow bone. I'm tired. Thank you for responding. Pamela

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@rubles

My gynecologist wanted to put me on a liquid medication that she wouldn't name but she said she doubts my insurance would cover it. I told her they would. She said it would help stop bone loss and actually help to grow bone. I'm tired. Thank you for responding. Pamela

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What do you mean that she "wouldn't name it"?
Make sure that you know exactly what the name is then do the research!

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