Muscle Spams and Neuropathy

I've been told the same potassium and/or magnesium prescriptions by doctors too. I have Ibs-d, and the magnesium just disabled me even more. Potassium isn't a problem to take but it hasn't cured a thing either. I never heard of the soap in the bedding thing. I'll try it. Bending body parts that are cramping in the opposite direction does work. If you can do that. Like for a foot, or even the muscles on the lower leg. Often, I've had to get out of bed, to stand on my feet to get them to stop cramping. That's while I'm taking Cyclobenzaprine 3 times a day, too. But when it's parts of your spine (which mine is) that's difficult and they just plain won't unbend, without the prescription helps. So, it kinda depends on how severe yours is, what will work, and what won't. I have exercise intolerance and have recently been diagnosed with Fibromyalgia. Like I needed one more chronic and painful condition. CFS and exercising doesn't work. I know that but have to have someone label me with CFS before it's respected. My favorite exercise is walking anyway, which is why I've gotten my other foot fixed. It takes time to work through all the options, do what you can, when you can and if something works for you, keep it, but also keep an open mind. I'd be perfectly happy to quit prescriptions if one spine injection fixes it all, but also am not holding my breath for that to happen. It's like eating an elephant. The only way to do that is to eat it one bite at a time. By the time you figure out what animal you been working on, you're almost done. Keep at it anyway.

Hi !....
I also have PN...and find that using a pillow at the end of my bed, under the duvet...keeps a bit of room and weight off of my feet. This has really helped with cramps as well as them getting either too warm or too cold....seems to be making a difference.
Good luck to all...many belessings....

My “nerve” hit between 2 next my lower back. A few weeks ago, I had a surgery at that hospital. It took hours from Doctor A. He’s been there from my TBI accident 12 years ago. He moved that “nerve” so it would be by itself. That ended pain from my left leg, right leg and both of my rear ends.

Now, today, I need to exercise my body on my right side from the top to the bottom leg. My inbalanced (sp?) causes of falling down - , so he gave me -in my surgery - on my back. But no moving down, moving my dance-like left-right and little stretching above that I need.

Every 3 days a week, helpers come to me. That’s an hour that day by stretching your legs/heat - but still my back is straight; some walking tp\oo

I am just starting to get regular muscle spasm in left leg and foot. It brings me to tears and causes me to forget about any other pain. I don’t understand why , now?

I had the most painful and tightened spasm in my left leg that rendered it numb forever. Doctors took way too long to give treatment and meds. Drink lots of water and stretch and exercise it. I also take meds for it.

Hello,

I have been dealing with neuropathy over 10+ years. I suffer from degenerative disc disease, spinal stenosis, and herniated discs. I've read that radicuapthy gets confused with periphial neuropathy.
I have had doctors tell me I have fibromyalgia which I do not. I am on all the correct medications for burning pain but it's gotten so bad. I talked to my doctors about the butrans patch which is an opiate in a patch. Has anyone in this group tried the butrans patch?

Idoyon my symptoms are exactly like yours--did physical therapy help???? I feel like I am going nuts--Plus where I live in Pooler Georgia there are no indoor pools which is really the only exercise that I can do forever--This sucks --what exercise works for you! when I walk I get these spasms in my lumbar area which is where my spinal damage is located-what meds are you on? My older children think I am going to fall over my balance is off too!!! SUGGESTIONS

find a GOOD MFR therapist and go 2 times a month. Increase your exercise SAFELY. I got an indoor exercise bike for $129 on Amazon. took me 3 years to get on it, but once I did, I found it really helped the weakness/pain in my leg due to damaged nerves exiting my lumber.
@ldoyon - yes - I was told all that "stuff" but I have radiculopathy from 20 years of waiting for lumbar surgery. I take low dose opioid for the coccyx tailbone pain and exercise (safely) as much as I can. I had a horrible problem with my foot. But after the pain resolved I had MORE mobility in flexing my toes for the first time in a decade! Healing does occur. @tyronie1117 - forget what your kids say - what do YOU SAY?! do you think your balance is off? Walk with a cane. Its better than falling and breaking something!

Hello,
I’m really sorry about what you’re experiencing.
Yes, I also get not only spasms but also bad cramps at the same time and it’s only in one leg at a time for some reason. In my case it’s the entire leg from the foot to the hip that completely shuts down and stops working. Nothing really helps during such episodes. I just have to stand up on the other leg and let the spasms and cramps work themselves out. It takes somewhere between 15 to 30 minutes. Thank GOD I am not having them as often these days even though my peripheral neuropathy is worsening.
I wish you the best and hope you’ll be able to find something that can help you.
Take care and have a serene afternoon,
gus

I tried mustard and pickle juice but both made me throw up.