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Multifocal Adenocarcinoma of the lung, continual recurrences

Posted by Merry, Alumni Mentor @merpreb, Dec 11, 2018

We have multifocal adenocarcinoma of the lung. @linda10 and @sakota.- Please join me in this discussion.

For a short explanation of this tongue twister. Briefly, Multifocal Adenocarcinoma (MAC) of the lung is a clinical entity of multiple synchronous (less than 6 months) or metachronous (more than 6 months), often ground-glass opacities (GGO) on CT scan, typically indolent-behaving cancers. There is a scarce amt of clinical data to guide treatment decisions.
This came from http://ascopubs.org/doi/abs/10.1200/JCO.2017.35.15_suppl.e20041.

This means that more than one potential cancerous lesion, mostly ground glass, shows up at a time. For instance I had 3 cancerous lesions 10 years ago in my left lung and in the same area. They were all different sizes. They grow at different rates.

Multifocal adenocarcinoma is a very complex cancer because the medical profession doesn't know if the ground glass lesions are the primary cancer or small metastases of another primary cancer. They don't even know where they start..

Multifocal Adenocarcinoma has sub types and it's management is based on whether it's indolent or very virulent.

These are very simplistic explanations. Even doctors are confused by it and it's only been within the last twenty years that they have separated it from a Bronchioloalveolar Carcinoma (BAC).

The constant recurrences are the buggers. Not only do we have to constantly face lots of CT scans but when lung cells change, which they often do, we are in terror of another virulent cancer. I presently have several ground glass lesions. And I have had many that have disappeared. It's enough to drive you nuts and PTSD is exacerbated by the frequency of these devils.

Interested in more discussions like this? Go to the Lung Cancer Support Group.

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Merry, Alumni Mentor | @merpreb | Jan 6, 2019
In reply to @JustinMcClanahan "Hello @meka, you may find some of the conversations in the Visiting Mayo Clinic group helpful,..." + (show)
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Hello @meka, you may find some of the conversations in the Visiting Mayo Clinic group helpful, https://connect.mayoclinic.org/group/traveling-to-mayo-clinic/. I recently shared a PDF map with another member wondering about what hotels were connected to the downtown Rochester Mayo Clinic campuses. Here is what I posted:

Almost any hotel in downtown Rochester has access to downtown Mayo Clinic buildings via subway or skyway. Here are a few specific ones:

– Marriott Residence Inn
– Kahler Inn & Suites
– Hilton
– Rochester Marriott Hotel

Here is a link to the campus map, which includes a map of the subway system, https://www.mayo.edu/pmts/mc1600-mc1699/mc1663-55.pdf?_ga=2.60956907.67298372.1546544292-1675055088.1541027282.

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Hello Justin- Thank you. I'm sure that this will be very helpful.- this needs to be spread around!

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Merry, Alumni Mentor | @merpreb | Jan 6, 2019
In reply to @linda10 "Merry, I believe Sakota is referring to the Kahler Hotels that are connected to the Mayo..." + (show)
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Merry, I believe Sakota is referring to the Kahler Hotels that are connected to the Mayo Clinic buildings.

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@linda10- Ah ha! I've never heard of them. Thanks

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Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Jan 6, 2019
In reply to @meka "No I haven't, but try again, would like to be closer than a mile away, Holiday..." + (show)
Profile picture for meka @meka

No I haven't, but try again, would like to be closer than a mile away, Holiday inn Express or is that okay??

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Hello @meka, you may find some of the conversations in the Visiting Mayo Clinic group helpful, https://connect.mayoclinic.org/group/traveling-to-mayo-clinic/. I recently shared a PDF map with another member wondering about what hotels were connected to the downtown Rochester Mayo Clinic campuses. Here is what I posted:

Almost any hotel in downtown Rochester has access to downtown Mayo Clinic buildings via subway or skyway. Here are a few specific ones:

– Marriott Residence Inn
– Kahler Inn & Suites
– Hilton
– Rochester Marriott Hotel

Here is a link to the campus map, which includes a map of the subway system, https://www.mayo.edu/pmts/mc1600-mc1699/mc1663-55.pdf?_ga=2.60956907.67298372.1546544292-1675055088.1541027282.

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1 reply
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linda10 | @linda10 | Jan 6, 2019
In reply to @meka "Start Friday at 9:40, blood, MRI, think CT Monday Dr..K, oh would have to look it..." + (show)
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Start Friday at 9:40, blood, MRI, think CT Monday Dr..K, oh would have to look it up again to spell it. Coming over early Thursday evening. Sure there is more, brain break though.. Energy hugs to everyone!!!

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Meka I'm so happy that you made it to Mayo! They are the absolute best. Prayers you find some answers.

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linda10 | @linda10 | Jan 6, 2019
In reply to @merpreb "Sakota- What's a kayler?" + (show)
Profile picture for Merry, Alumni Mentor @merpreb

Sakota- What's a kayler?

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Merry, I believe Sakota is referring to the Kahler Hotels that are connected to the Mayo Clinic buildings.

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1 reply
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Merry, Alumni Mentor | @merpreb | Jan 6, 2019

Meka- We all have your back! We are a small group right now- Tiny but Mighty!

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Merry, Alumni Mentor | @merpreb | Jan 6, 2019
In reply to @sakota "There’s the Marriott or the dfferent kaylers which are connected right to mayo. Depends on the..." + (show)
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There’s the Marriott or the dfferent kaylers which are connected right to mayo. Depends on the amount you want to spend

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Sakota- What's a kayler?

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Merry, Alumni Mentor | @merpreb | Jan 6, 2019
In reply to @colleenyoung "@meka did you know that Mayo Clinic Concierge Services know also has an online chat feature..." + (show)
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@meka did you know that Mayo Clinic Concierge Services know also has an online chat feature during business hours?

Here are all the ways you can contact Concierge Services:
Phone: 507-538-8438
Live Chat: https://www.mayoclinic.org/patient-visitor-guide
Email: concierge@mayo.edu
Web form: https://www.mayoclinic.org/patient-visitor-guide/minnesota/becoming-a-patient/concierge-travel-services
In-person in Rochester MN: Lobby hours are 8:00-5:00 Monday through Friday. Offices are located in the International Center in the Mayo Mathew’s Lobby, Executive Lounge on Mayo 5, Radiation Oncology Lobby – Desk R

Have you used their services before?

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Colleen- Thank you. This is good information for everyone!

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Merry, Alumni Mentor | @merpreb | Jan 6, 2019
In reply to @meka "Start Friday at 9:40, blood, MRI, think CT Monday Dr..K, oh would have to look it..." + (show)
Profile picture for meka @meka

Start Friday at 9:40, blood, MRI, think CT Monday Dr..K, oh would have to look it up again to spell it. Coming over early Thursday evening. Sure there is more, brain break though.. Energy hugs to everyone!!!

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@meka- excellent news! You must feel the weight of the world lifted from your shoulders!

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meka | @meka | Jan 5, 2019

Thanks everyone for sharing once again, it's so nice to know people have your back!!

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