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Multifocal Adenocarcinoma of the lung, continual recurrences
We have multifocal adenocarcinoma of the lung. @linda10 and @sakota.- Please join me in this discussion.
For a short explanation of this tongue twister. Briefly, Multifocal Adenocarcinoma (MAC) of the lung is a clinical entity of multiple synchronous (less than 6 months) or metachronous (more than 6 months), often ground-glass opacities (GGO) on CT scan, typically indolent-behaving cancers. There is a scarce amt of clinical data to guide treatment decisions.
This came from http://ascopubs.org/doi/abs/10.1200/JCO.2017.35.15_suppl.e20041.
This means that more than one potential cancerous lesion, mostly ground glass, shows up at a time. For instance I had 3 cancerous lesions 10 years ago in my left lung and in the same area. They were all different sizes. They grow at different rates.
Multifocal adenocarcinoma is a very complex cancer because the medical profession doesn't know if the ground glass lesions are the primary cancer or small metastases of another primary cancer. They don't even know where they start..
Multifocal Adenocarcinoma has sub types and it's management is based on whether it's indolent or very virulent.
These are very simplistic explanations. Even doctors are confused by it and it's only been within the last twenty years that they have separated it from a Bronchioloalveolar Carcinoma (BAC).
The constant recurrences are the buggers. Not only do we have to constantly face lots of CT scans but when lung cells change, which they often do, we are in terror of another virulent cancer. I presently have several ground glass lesions. And I have had many that have disappeared. It's enough to drive you nuts and PTSD is exacerbated by the frequency of these devils.
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Hi @meka, thinking about you. I'm not sure if you're able to respond to messages yet, but wanted to let you know that we send well wishes post surgery.
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3 Reactions@meka- My best to you. You've got this. I know that it's a tough operation. Let us all know how you are when you can. I'm sending a warm hug.
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2 ReactionsSorry I have been gone, know you all are out there, thinking of you, hoping for the best for each of us!! Did find the right group. Surgery tomorrow morning, feeling lucky, hopeful, and very humbled by all of this. Promise to let you know outcome, bless you
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3 ReactionsSakota-I am so sorry. I totally misunderstood what groups you wanted. Thank you @colleenyoung for stepping in.
https://www.healthline.com/health/tmj-exercises#exercise
Also I was fitted for a night guard.
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1 Reaction@colleenyoung Thanks so much for the help and info.
@sakota, I can help you find groups and discussions
1. Cramps, I suggest reviewing the discussions in the Women's Health group https://connect.mayoclinic.org/group/womens-health/
2. TMJ - We have several discussions in a few different groups. I'll like them all here and you can decided which one is for you:
– clicking jaw when i yawn or open my mouth but no pain or any problem https://connect.mayoclinic.org/discussion/clicking-jaw-when-i-yawn-or-open-my-mouth-but-no-pain-or-any-problem/
– TMJ questions https://connect.mayoclinic.org/discussion/i-clench-my-teeth-at-night-which-has-resulted-in-severe-tmj/
– Temporomandibular disorder or tmj disorder https://connect.mayoclinic.org/discussion/temporomandibular-disorder-or-tmj-disorder/
- Research on TMJ https://connect.mayoclinic.org/discussion/research-on-tmj/
Don't hesitate to send me a private message if you're looking for anything else.
sakota- https://scholar.google.com/scholar?q=subsolid+morphology++suggesting+multicentric+synchronous+indolent+primary+lung+cancers&hl=en&as_sdt=0&as_vis=1&oi=scholart
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1 ReactionJoan- Is this what you are looking for:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4209391/
Joan. I just don't know what you are asking. Can you rephrase your question?
I'm sorry merry I just didn't know who else to ask , so asked you...…… I'll try to find someone else...…..Didn't mean to confuse you. @merprep