Multifocal Adenocarcinoma of the lung, continual recurrences

Posted by Merry, Alumni Mentor @merpreb, Dec 11, 2018

We have multifocal adenocarcinoma of the lung. @linda10 and @sakota.- Please join me in this discussion.

For a short explanation of this tongue twister. Briefly, Multifocal Adenocarcinoma (MAC) of the lung is a clinical entity of multiple synchronous (less than 6 months) or metachronous (more than 6 months), often ground-glass opacities (GGO) on CT scan, typically indolent-behaving cancers. There is a scarce amt of clinical data to guide treatment decisions.
This came from http://ascopubs.org/doi/abs/10.1200/JCO.2017.35.15_suppl.e20041.

This means that more than one potential cancerous lesion, mostly ground glass, shows up at a time. For instance I had 3 cancerous lesions 10 years ago in my left lung and in the same area. They were all different sizes. They grow at different rates.

Multifocal adenocarcinoma is a very complex cancer because the medical profession doesn't know if the ground glass lesions are the primary cancer or small metastases of another primary cancer. They don't even know where they start..

Multifocal Adenocarcinoma has sub types and it's management is based on whether it's indolent or very virulent.

These are very simplistic explanations. Even doctors are confused by it and it's only been within the last twenty years that they have separated it from a Bronchioloalveolar Carcinoma (BAC).

The constant recurrences are the buggers. Not only do we have to constantly face lots of CT scans but when lung cells change, which they often do, we are in terror of another virulent cancer. I presently have several ground glass lesions. And I have had many that have disappeared. It's enough to drive you nuts and PTSD is exacerbated by the frequency of these devils.

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Merry, Alumni Mentor | @merpreb | Feb 26, 2020

In reply to @meka "It is a CT on the 10th. Breathing is good most of the time considering what..." + (show)

@meka- That's great. When do you have breathing problems and what do you do to help yourself breathe easier?

meka | @meka | Feb 25, 2020

In reply to @merpreb "@meka - Good morning. It is amazing how your body can change. I'm so glad that..." + (show)

It is a CT on the 10th. Breathing is good most of the time considering what I have put my lungs through.

Merry, Alumni Mentor | @merpreb | Feb 24, 2020

In reply to @meka "Doing good, gained back all the weight lost and more, amazing how your whole body can..." + (show)

@meka - Good morning. It is amazing how your body can change. I'm so glad that you are doing well. Do you have any breathing problems?

Colleen Young, Connect Director | @colleenyoung | Feb 23, 2020

In reply to @meka "Doing good, gained back all the weight lost and more, amazing how your whole body can..." + (show)

Welcome back, @meka. Really good to hear you're doing well and have gained weight back.

Joan @sakota, How are you doing? I know it's been a struggle lately, especially with mood and feeling down with all the health burden.

I also want to invite you both and anyone else in this discussion to join @merpreb who is taking part in this virtual walking group. Read more here:
- Let’s Go Walking! Join me for a virtual walking support group https://connect.mayoclinic.org/discussion/lets-go-walking-join-me-for-a-virtual-walking-support-group/
I think it might be nice to something together, each person at their own pace. What do you think?

meka | @meka | Feb 23, 2020

In reply to @merpreb "Meka! Hello. You are always welcome on Connect. We understand that people take breaks. But we..." + (show)

Doing good, gained back all the weight lost and more, amazing how your whole body can change!!

Merry, Alumni Mentor | @merpreb | Feb 23, 2020

In reply to @meka "Not sure if I am still welcome. Will be coming over to Mayo next month for..." + (show)

Meka! Hello. You are always welcome on Connect. We understand that people take breaks. But we are always here whenever you need us. Are you due for a CT scan? How are you doing?

meka | @meka | Feb 23, 2020

Not sure if I am still welcome. Will be coming over to Mayo next month for follow-up, and yes it's scary. Glad to see folks are still here 😁.

Merry, Alumni Mentor | @merpreb | Feb 15, 2020

In reply to @sakota "Hi merry. How are you. I just finished reading in connect about radiation damaging the heart...." + (show)

@sakoa- Good morning Joan. I am so glad to hear from you! I'm doing ok. I had a scare with some Vertigo this past month but other than that I've been pretty healthy. Yes, radiation can cause damage to the heart or any organ for that matter. Now with that blanket statement made I also want to say that there are new types of radiation treatments with different types of radiation and different machines that try and avoid direct hits to important organs. I'm sure that if radiation is an option for you than all of your previous history would be taken into consideration. And hey, you will be going to Mayo! They will do the best that they can for you, I'm sure.
So how have you been? Any major complaints or good news?

sakota9 (Joan) | @sakota | Feb 14, 2020

I guess with this cold winter I go into hibernation So how are you.

sakota9 (Joan) | @sakota | Feb 14, 2020

In reply to @merpreb "@sakota- Good morning Joan! I haven't heard from you in a while. How are you feeling?..." + (show)

No I go to mayo in April. So will find out then.

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