Multifocal Adenocarcinoma of the lung, continual recurrences
We have multifocal adenocarcinoma of the lung. @linda10 and @sakota.- Please join me in this discussion.
For a short explanation of this tongue twister. Briefly, Multifocal Adenocarcinoma (MAC) of the lung is a clinical entity of multiple synchronous (less than 6 months) or metachronous (more than 6 months), often ground-glass opacities (GGO) on CT scan, typically indolent-behaving cancers. There is a scarce amt of clinical data to guide treatment decisions.
This came from http://ascopubs.org/doi/abs/10.1200/JCO.2017.35.15_suppl.e20041.
This means that more than one potential cancerous lesion, mostly ground glass, shows up at a time. For instance I had 3 cancerous lesions 10 years ago in my left lung and in the same area. They were all different sizes. They grow at different rates.
Multifocal adenocarcinoma is a very complex cancer because the medical profession doesn't know if the ground glass lesions are the primary cancer or small metastases of another primary cancer. They don't even know where they start..
Multifocal Adenocarcinoma has sub types and it's management is based on whether it's indolent or very virulent.
These are very simplistic explanations. Even doctors are confused by it and it's only been within the last twenty years that they have separated it from a Bronchioloalveolar Carcinoma (BAC).
The constant recurrences are the buggers. Not only do we have to constantly face lots of CT scans but when lung cells change, which they often do, we are in terror of another virulent cancer. I presently have several ground glass lesions. And I have had many that have disappeared. It's enough to drive you nuts and PTSD is exacerbated by the frequency of these devils.
Interested in more discussions like this? Go to the Lung Cancer Support Group.
I am three months post op from a right lower lobectomy. Doing well and praying follow up CT in Jan will be all clear as well. I had a PET scan in October and it was clear! Praying you both have good outcomes!
I don’t think so? No one mentioned it.
Good morning spikeb1- Cancer has a mind of its own but recurrences happen with multifocal adenocarcinomas all the time. It doesn't mean that there is a need for treatment. Do you have multifocal lung cancer?
Good morning Vic. If you looked at all of my lesions it would look like a road map across some strange country. Isn't it amazing what information we are sometimes in the dark about?
Although no cancer is good cancer, multifocal, I like to think as a chronic disease. Treatments are only used as needed. And this means that lesions are treated after they get to a certain size. It sounds as if you have a great doctor who knows about multifocal lung cancer.
Multifocal lung cancers for the most part can be very very lazy. It's a good thing, right?
I am exactly 1 month post left upper lobectomy for NSCLC and doing well. I am stage 1-all nodes removed were negative and no treatment needed at this point. I have my first CT Scan in April and praying it is okay. I wasn’t aware that reoccurrences were so common. Praying.
Here is an interesting update for multifocal lung cancer. A year ago, I had a 3.1cm stage 1b cancer removed from right lung (wedge resection). I am being monitored with usual CT scans. I had a recent CT scan which was more intense compared to the usual ones I do because of some pleurisy. This scan listed 8 lung nodules in various stages of development from pure ground glass to part solid components. The report stated that some nodules mildly increased and many likely reflect adenocarcinoma spectrum lesions. I asked about all these nodules and was advised that the nodules are treatable if we need to. If they don't grow very fast, then we may not have to do anything.
Had my six month follow up CT scan after lobectomy in March, 4mm and 6mm nodules seem stable so go back in six months. As they all say, this is the new normal, waiting for 6 months at a time. Best of luck to you Mary on your next scan, stay positive!
That is so sad, never heard of this before, do you have pet scans each time
Do they see a new one on a CT scan? They tell me you see more on a pet scan.
They can see your whole body that way.
Thank you for sharing this, I had never heard of it before.
I am going for my second pass of followup nodules in my lungs in a few weeks. I am hopeful since the one in my thyroid has neither grown nor changed--but they may not be connected. My Vit D levels are finally normal after six months of taking a daily dose. I had covid and was concerned, but passed the PFT, I believe.
I'm still living with it and get my ct scans every 6 months but things have been pretty quiet in my lungs for awhile now. I go again for ct in september so will find out then if anything is new. Guess I take each day as it comes and thankful for each day I have. I am also dealing with copd now and last winter was not a good one, was in out and out of the hospital. I am now in assisted living and things seem to go ok. Keep the faith and family close .. Hugs to you all. Joan