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Multifocal Adenocarcinoma of the lung, continual recurrences

Lung Cancer | Last Active: 2 days ago | Replies (457)
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@vic83

Hi Spike - Sorry, I should clarify. I did not have a recurrence of my removed cancer. My nodules were not new. I started with multiple nodules. I have multifocal lung cancer which means I have multiple lung nodules which are thought to be independent cancers (but some may not be) and they are in different stages of development.
These nodules start with ground glass opacity and may develop part solid components.
My first CT scan (not at Mayo) found a nodule in each lung. Mayo removed the largest one which was a 3.1cm stage 1b cancer. The nodule in the other lung has remained stable for a year so it may not be cancer. The remaining nodules are smaller and not necessarily picked up with a common CT scan. Mayo sets it equipment to pick up the smaller nodules which is why I know how many there are. They watch for growth and in that case the nodule may be treated. They also watch for the appearance of any new nodules. Sounds terrible but I feel fine.

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Merry, Alumni Mentor | @merpreb | Dec 16, 2022

Vic- Excellent explanation. My Oncologist said that treating this type of cancer is like a whac-a-mole. Kind of not encouraging yet not too bad either. I've had lung cancer for 25 years with a 10 yr break between my first and second. When the second hit my cancer had changed. There were three different lesions of three different sizes all in my left upper left lung. My latest one was treated at MGH (Mass General) with SBRT. I had two right next to each other and very near my heart. I feel good too.

I have had another larger one for many years in my lower left lobe. It's barely grown in more than 5 years or more. I seem not to pay attention too much to size and location after having so many lesions. It holds me back from living the best life that I have at this moment. But this is me. I'm sure that a lot of it is my emotional defense system. Everyone is so different in the way they handle cancer.

How are you doing?

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