Mucous Membrane Pemphigoid
Need information on Mucous Membrane Pemphigoid.
Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.
Need information on Mucous Membrane Pemphigoid.
Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.
I have been battling MMP since October, it is better, but I'm on so many meds that they are ruining my teeth. Is anyone else having this issue?
How many different medications are their for this? Anything natural you can do to help with the gums and blisters?
I know they say this can come from many things combined but, I truly believe mine was too much stress in my life last year.
Brenda
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1 ReactionI am also having problems with blisters and very red gums. The cause is pemphigoid. Lots of pain. My dentist made 2 mouth pieces and is having me try Triamcinolone (Kenolog). I am not sure it is working but am trying. I was on Imuran but had bad side effects. I am off all meds. The drug Tradjenta caused my bullous pemphigoid.
Darlene
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1 ReactionI have MMP in my mouth, left nostril, and eyes. I use a mouth rinse, Taculimus, and it certainly helps. Early on, when I didn't have a diagnosis, I use Dental Pro 7. It is a herbal mixture from the UK. I sometimes put it on my toothbrush and brush my teeth. I sometimes put a few drops in a small cup of water and swish and spit. I also have put a few drops on my finger and rub it over any break out areas in my mouth. I am followed by dermatology for my mouth, ENT for my nose and ophthalmology for my eyes.
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1 ReactionThe Dental Pro 7 is not a toothpaste. It is a liquid herbal solution. I am in WA state.
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1 ReactionI am on Dapsone 50 mg a day. I cannot take Mycophenolate. It Caused an increase in my BP. I can't take many drugs because I am allergic to yellow dye and compound. I have asked about taking something more natural but there doesn't seem to be enough information on reactions to this condition. I also have the mmp in my left nostril. My ENT has tried several gels, etc. He also did several tests to see if it was an infection. I am now using a dab of vancomyscin in each nostril 3 times a week. I started out using it twice a day.
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1 ReactionI have not lost any teeth, I had an upper tooth that feels funny. My gums had been very irritated above this tooth. One day while eating lunch I noticed that it just didn't feel right. No pain, no looseness. I went to my dentist, She put ice on it. She tapped on it, Nothing. After several months now, I feel a bit os sensation with very cold drinks. I am able to eat on that side. It seems to be okay. She thinks that my gums in that area got very irritated that it affected the root. Thankfully, no sign of loosing it.
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1 ReactionHave you tried the turemic/curcumin combo on your gums? If so, did it work?
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1 ReactionDo you mean you take a medicine, tacrolimus? If so, then this is an immune surpressant. I use it for an organ transplant.
I’m just going to start my first treatment with Dapsone. In left eye about 8 months.
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1 ReactionNo I have not tried this but I might. I have been taken off all meds except the Doxycline, and went off of this for a vacation for 3 weeks. Unfortunately, my gums have been inflamed not for two days. I just went back on the antibiotic so I am hoping this helps and I don't have to go back on steroids. So disappointed, because I also did 4 infusions that are suppose to be working best by June...
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