I have been taking 12 hour Mucinex twice a day. I read on label not to take ongoing……any opinions?
Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.
Just an update. My new pulmonologist (specialist in bronchiectasis) said it was okay to go on and off mucinex as needed. He said it is a common practice in Europe now (tho it is not common in the states). He also suggested that I take it prophylactically before, during, and after trips. (I have a tendency to get sick or have an exacerbation of my bronchiectasis when I travel). He is also a believer in bringing along antibiotics for this purpose also. It was wonderful having a doctor that supported all the information that I have learned on this site over the last 3 years. Just an FYI, my daily regimen mirrors the healthy practice of 7% S.C. nebs, aerobika, and ACT (airway clearance) and exercise. I completed big 3, am clear of MAC, but have not had a pulmonary function test in 3 years. Still send sputum samples every 2 months. He also said there is a new medicine coming on the market next year for bronchiectasis. (not sure if it is not a wider trial). Excited for the news tho.
My primary suggested that I take Muxinex every 12 hours. I just started and the first three days went well. Really controlled my cough however, the fourth and fifth days were terrible. I was right back to coughing all day. Not sure why. Humidity increases my coughing spells, but that was not case. I will continue to try and might go to a compounding pharmacy in town.
Are you thinking of getting straight guafenesin compounded?
Jump to this post
Your new pulmonologist sounds like a great find -congratulations! If this is anywhere in the Northeast, I would love to know. It's interesting following European info on bronchiectasis (it's I think the University of Dundee that is exploring a strong possible link between broncheictasis and IBD, for instance). I am really interested to hear that taking mucinex like that is standard.
I am newly-diagnosed and am curious if you take anything in your nebs besides 7% outside of flareups? I also have asthma and am having the hardest time introducing saline to my body, even at 3%.
I am thinking about it. Would like more feedback on the compound.
No, I don’t have asthma, so the 7% is all i do. In the beginning the increased sodium chloride was a bit much. Someone suggested to breathe normally during nebs. That helped(not taking such deep breaths, but slow). I live in Louisiana.
I’m going to national Jewish health on the 26. Denver. I’ll ask about the Mucinex and post on here!
i use an aerobika attached to my nebulizer and it filters that strong salt reaction a bit......
Great news Cindy!Interesting to know about the European use too.
Congratulations for getting rid of MAC and thank you for your helpful post. I am wondering how do you know which antibiotics to bring for an exacerbation of your bronchiectasis? Sounds like you have an antibiotic for this purpose, if so, what is that? I am preparing for my China trip.
Connect with thousands of patients and caregivers for support and answers.
Already have an account? Sign In