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MRI Brain scan 25yo male-lesion
Hi,
My son experienced what was called a 'complex migraine' 2 weeks ago and went to ER. CT was clean. Went to Neurologist followup and an MRI (withand without contrast) was ordered.
The MRI revealed "Lesion in the region of the right foramen of Luschka with brisk somewhat heterogeneous enhancement with a maximum diameter of 1.5 cm with some extension into the inferior fourth ventricle, suspected to be extra medullary, but potentially with an intramedullary component, which statistically most likely represents an ependymoma, with other considerations including medulloblastoma..."
Neurologist has not reviewed yet, but we will hear back tomorrow. Anyone familiar with this? He has had migraines in the past. 3 episodes in his teens that lead to a negative meningitis test.
Thank you for any light you can shine on this.
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My granddaughter was 25 when she was diagnosed with an ependymoma in 4/24. It was removed surgically. Had radiation.
She then got another tumor in early spring of 2025. Removed surgically and another course of radiation.
That fall her MRI showed another smaller one growing. Radiation and oral chemotherapy with 2 drugs.
She gets MRIs every other month because her second tumor wasn’t there one month but was already 3 cm 8 weeks later.
We’re grateful to have her with us but this is an exhausting process for her. She had started a new job and eventually had to leave. She’s receiving disability. Our family helps her financially.
They are in the midst of her second GoFundMe to help with living expenses.
@wisco50
I’m trying to find what causes ependymomas. Does anyone know?
please follow my 28 yr. old grandson, jordantrimble.substack.com AKA:Blankslate Endurance
He too, was dx with an ependymoma and now has MRI’s every four months.
@ptrimble1
I don’t think anyone truly knows what causes brain tumors (other than if they are metastasized from a primary tumor)…?
There are SO many kinds and types of brain tumors. It’s rare but sometimes infants are born with a tumor 😩 Neuroblastoma is the most common in that case if I remember correctly.
I worked as a nurse for 43 years and was familiar with names of many different types but I had never heard of an ependymoma!
@wisco50
I’m learning there are many different kinds. Jordan’s was thought to be 2 others before finally being identified as an ependymoma.
My husband was diagnosed with Acoustic Neuroma in December 2025. We saw one neurosurgeon in December and he said surgery a week later another neurosurgeon in the same practice asked us to come talk to him. He suggested waiting 3 months and repeat MRI so we go April 10 for that.
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Prayers for you, your granddaughter and family. Brain tumor was/is the scariest thing I’ve encountered and then how it changes your child or grandchild’s life. Our grands were dx about the same age, I would love to follow her.
Can you share your Go Fund Me page then I’ll share on FB?
@ptrimble1
I think it’s under my daughter’s name, Meredith Clay Smith.
My granddaughter’s name is
Vittoria/goes by Tori Smith