Moyamoya disease
My 20 month had a stroke and an aneurysm leak, and we found out he has moya moya. He had a procedure to help but it takes 3 to 6 months for it to work. Right now he has seizures and mood problems and most of all pain in his head.
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My adult child was recently diagnosed with Moyamoya and is preparing for EC IC surgery at Mayo. I am looking for people who have Moyamoya or loved ones with this disease. Please let me know if you are out there!
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